Category Archives: Events

Industry Symposium & Back to School Event

Novel Therapies: What’s Upcoming for the Bleeding Disorders Community


Join us for our annual Industry Symposium & Back to School Event. You will have the opportunity to learn about Gene Therapy, product updates and enjoy an afternoon on the bay! Participants will also have the opportunity to visit bleeding disorder industry representatives at the Exhibitor Fair. Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area. This event will be presented in English. 

Back to school giveaways for children/teens in attendance will be provided. 

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

DATE | TIME

Saturday, August 26, 2023 | 9:00AM – 3:00PM

LOCATION
Courtyard by Marriott San Diego Airport/Liberty Station
2592 Landing Rd.
San Diego, CA 92106

PARKING
Complimentary parking in Marriott parking lot.

REGISTRATION TABLE
HASDC’s registration table can be found outside the hotel. Please arrive on time as the registration table will be closing at 9:45AM and we will be unable to provide entry past that time.

AGENDA

SAN DIEGO BAY WATER ACTIVITIES

Join us for a morning of education and an afternoon on the San Diego Bay. Participants will be able to enjoy paddle boarding and kayaking on the bay after lunch. Please indicate your preference on your registration form.

Items to bring:
– Blanket/towel for the grass
– Sunscreen
– Swimsuit or clothes appropriate for paddle boarding/kayaking
– Hat

CHILDCARE

Complimentary childcare will be provided for children ages 3-12 only. Young adults 13 and older are invited to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

REGISTRATION

WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSORS

Thank you to our sponsors for making this event possible.

Food for Thought

Join us for Food for Thought: an HASDC Educational Dinner. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

DATE | TIME (Fecha | Hora)

Wednesday, October 4, 2023 | 6:00PM – 8:00PM

LOCATION
Seasons 52 (UTC Mall)
4505 La Jolla Village Dr.
San Diego, CA 92122

PARKING
Public parking in lot outside of restaurant. Parking will be $2 after two hours (make sure to validate your parking in the restaurant).

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en inglés

TOPIC (Tema)

“Gene Therapy in Hemophilia: Come find out what all the buzz is about—from curiosity to eligibility and beyond”

Gene Therapy has arrived! Join us for a one-hour presentation to hear how gene therapy is designed to work and why eligibility testing is the first step on the gene therapy journey. We’ll share the findings from a clinical trial and what it could mean for you. Learn how to get started, what questions to ask your doctor, and hear one patient’s experience.

SPEAKER (Presentador)

Billy Duckworth
Sr. Account Manager, Gene Therapy, BioMarin

AGENDA (Agenda)

5:45 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
6:30 PM Dinner Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

Registration for this program is now closed as we have reached capacity.
Please contact our office if you would like to be added to the Waitlist.

WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Food for Thought

Join us for Food for Thought: an HASDC Educational Dinner. Our educational dinner programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

DATE | TIME (Fecha | Hora)

Monday, October 30, 2023 | 6:00PM – 8:00PM

LOCATION
Seasons 52 (UTC Mall)
4505 La Jolla Village Dr.
San Diego, CA 92122

PARKING
Public parking in lot outside of restaurant.

PROGRAM LANGUAGE (Idioma del programa)

Presented in Spanish | Presentado en español

TOPIC (Tema)

Emotional Wellbeing: Exploring the Mind-Body Connection
Venga a aprender, compartir e interactuar con personas que “lo entienden” porque también viven con esos trastornos. Estas presentaciones están diseñadas de manera personalizada para ayudarle a comprender la base científica que has detrás de los trastornos sanguíneos o a afrontar los desafíos a los que podría enfrentarse. A cargo de un presentador de Takeda que proporcionará al grupo asesoramiento práctico y consejos útiles.

SPEAKER (Presentador)

Annabelle Garcia
Community Education Specialist, Takeda

AGENDA (Agenda)

5:45 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
6:30 PM Dinner Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

Registration for this program is now closed.

WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Food for Thought

Join us for Food for Thought: an HASDC Educational Dinner. Our educational dinner programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

DATE | TIME (Fecha | Hora)

Thursday, November 9, 2023 | 6:00PM – 8:00PM

LOCATION
Puesto (Mission Valley)
5010 Mission Center Road
San Diego, CA 92108

PARKING
Public parking in lot outside of restaurant.

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en inglés

TOPIC (Tema)

“HEMGENIX”
The first and only FDA approved Gene Therapy for Hemophilia B. This educational program offers you and your family members the opportunity to:

  • Learn about HEMGENIX, the first and only gene therapy approved for Hemophilia B.
  • Gain insightful information and deepen your understanding of HEMGENIX through a LIVE Q&A session.
  • Ask questions and receive new resources on gene therapy.

SPEAKER (Presentador)

Doris Quon, MD, PhD
Orthopedic Institute for Children Los Angeles

AGENDA (Agenda)

5:45 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
6:30 PM Dinner Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

If you have any questions regarding your registration please email the office at info@hasdc.org

WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Factor & Frost

JOIN US (Únete a nosotros)

‘TIS THE SEASON TO WEAR YOUR FAVORITE HOLIDAY SWEATER!

Wear your favorite holiday sweater and join us for our annual end of the year gathering and celebration of the season. Factor & Frost is open to all individuals with a bleeding disorder and their immediate family members.

Contest
Best Holiday Sweater (adult)
Best Holiday Sweater (child)

Drawings
Exhibitor Booth Passport
Various Gift Baskets

DATE | TIME (Fecha | Hora)

Date: Saturday, December 2, 2023 | 11:00AM – 2:00PM
Location: San Diego Marriott Mission Valley

Venue Address
San Diego Marriott Mission Valley
8757 Rio San Diego Dr.
San Diego, CA 92108

Parking: Complimentary valet parking for ONE car per registered family.
Weather: This event will be inside & outside. Please plan your attire accordingly.

PROGRAM AGENDA

REGISTRATION (Inscripción)

Registration for this event is now closed.
Please contact us if you have any questions or need to make a change to your current registration.

WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database Form before your registration can be confirmed. 

SPONSORS (Patrocinadores)

Thank you to our sponsors for partnering with us to make this end of the year program possible.

Wellness Wednesdays: It’s About Bloody Time

Join us virtually for our Wellness Wednesdays: Summer Series. Our Wellness Wednesdays series will bring you interactive conversations and movement opportunities as we provide you with wellness resources. Our Wellness Wednesdays: Summer Series is open to individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

GIVEAWAY
$25 Target gift card from HASDC. See details below on how to qualify. 

DATE | TIME (Fecha | Hora)

Wednesday, July 7, 2021 | 5:30PM – 6:30PM

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en Inglés

TOPIC (TEMA)

“It’s About Bloody Time”
For women with bleeding & clotting disorders. The need for menstrual control is common through reproductive lifestages, but an underrecognized issue in women’s health. We will discuss various menstrual control methods, common misconceptions, and how they pertain to women with bleeding and clotting disorders.

SPEAKER (Presentador)

Dr. Hilda Ding, MD, MS
Pediatric Hematologist/Oncologist, Rady Children’s Hospital HTC

AGENDA (Agenda)

5:20 PM Connect to Zoom link (make sure everything is working)
5:30 PM Welcome & Program Begins
6:15 PM Q&A
6:30 PM Program Concludes

REGISTRATION (Inscripción)

GIVEAWAY

**Bleeding disorder participants and their immediate family, living in our service area, who register and are logged in for the full 1-hour program are eligible for a Target gift card. Additionally, to qualify for our program giveaway, we ask that you be logged on by 5:30PM and actively participate by having your camera on and/or participating in the chat throughout the program. One gift card provided per family.

Our service area is San Diego and Imperial Counties. If there is availability, those living outside our service area may qualify; distributed in order based on registration date/time. 

SPONSOR (Patrocinador)

Thank you to our program sponsor and partner for making this Wellness Wednesday program possible.

FREQUENTLY ASKED QUESTIONS

How do I join the webinar?
After you have registered via the HASDC website, you will receive a confirmation email directly from Zoom with the program link. Please use the “Click Here to Join” link in that email.

What if I get disconnected or can’t login?
We will be actively troubleshooting throughout the web-conference. Text 619-325-9401 if you have any technical difficulties and we will try to help you get back into the web-conference. We encourage everyone to start logging in at 5:20PM so that we have time to help you troubleshoot and you will still be eligible for the dinner.

How will I receive my gift card?
HASDC will email you an e-gift card from GrubHub to be used to purchase a meal on a later date. Please note: gift cards will be sent to the email you used to register.

Wellness Wednesdays: Hike the Coast

 

Join us virtually for our Wellness Wednesdays: Summer Series. Our Wellness Wednesdays series will bring you interactive conversations and movement opportunities as we provide you with wellness resources. Our Wellness Wednesdays: Summer Series is open to individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

GIVEAWAY
HASDC will cover parking for one vehicle per household. Any additional cars will have to pay the parking cost of $35 on their own. We will also provide a snack for reach participant. 

DATE | TIME| LOCATION (Fecha | Hora | Lugar)

Please note this event is on a Saturday
Saturday, July 24, 2021 | 9:00AM – 10:00AM | Cabrillo National Monument

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en Inglés

ACTIVITY (Activo)

Hike the Coast
Join us for a guided hike along the coast with Nichole Wilkinson. We will be hiking the Bayside Trail at Cabrillo National Monument which is a 2.5 mile hike up with an elevation gain of 340ft in Point Loma. You will have the option to go see the tide pools on the other side of the hill when we finish. The hike should take 1.5 hours. Make sure to wear comfortable shoes, bring a snack, and one liter of water. For more tips on hiking you can check out Nichole’s Top Ten Hiking Essentials.

Disclaimer: Contact your doctor or physical therapist before starting any physical activity or exercise program for recommendations that are specific to your current level of health. Do not practice yoga if a joint or muscle has had a recent bleed, is swollen, warm, or painful.

SPEAKER (Presentador)

Nichole Wilkinson
Soul Vibes Yoga

A lifelong San Diegan with a penchant for the outdoors, Nichole craves connecting with other outdoor enthusiasts, encouraging others to start hiking, and compiling tips and advice from her own experience. She is First Aid, CPR, and AED certified and brings adventure and outdoor education to her members and local schools. She offers a monthly membership that includes 2 guided hikes per month, monthly education and REI meetups, exclusive invitations to backpacking and climbing trips, as well as priority registration to the upcoming backpacking course!

AGENDA (Agenda)

8:50 AM Arrive at Cabrillo and wait for gates to open to park
9:00 AM Check-in for Hike (no late arrivals)
9:10 AM Hike Begins
10:00 AM Hike Concludes

REGISTRATION (Inscripción)

GIVEAWAYS

**Bleeding disorder participants and their immediate family, living in our service area, who register and attend the full 1-hour program are eligible for a the yoga mat and towel. Additionally, to qualify for our program giveaway, we ask that you be arrive on time, no later than 9:00AM. One yoga mat and towel per participant.

Our service area is San Diego and Imperial Counties. If there is availability, those living outside our service area may qualify; distributed in order based on registration date/time. 

SPONSOR (Patrocinador)

Thank you to our program sponsor for making this Wellness Wednesdays program possible.

Educational Dinner Program

Join us virtually for an evening of education. Our Educational Dinner Programs are open to those with a bleeding disorder and their immediate family members living in HASDC’s service area. 

GIVEAWAY
$50 Grubhub gift card from HASDC to purchase a meal on a later date. See details below on how to qualify. 

DATE | TIME (Fecha | Hora)

Thursday, September 30, 2021 | 6:00PM – 7:00PM

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en Inglés

TOPIC (Tema)

Hemophilia & Academic Success: Tools for Success in College
Do you know how to define your adult identity and take ownership of your health management in college? We’ll discuss powerful tools to make the transition to college easier, successful, and exciting. Let’s hit the ground running!

This program is also great for parents to help transitioning students to college.

SPEAKER (Presentadore)

Marquez Washington, MBA
SR HCL – Southern California, Hawaii

AGENDA (Agenda)

5:50 PM Connect to Zoom link (make sure everything is working)
6:00 PM Welcome & Program Begins
6:45 PM Q&A
7:00 PM Program Concludes

REGISTRATION (Inscripción)

GRUBHUB GIFT CARDS (Tarjetas de regalo de Grubhub)

**Bleeding disorder participants and their immediate family, living in our service area, who register and are logged in for the full 1-hour program are eligible for a Grubhub gift card to purchase a meal on a later date. Additionally, to qualify for our program giveaway, we ask that you be logged on by 6:00 PM and actively participate by having your camera on and participating in the chat throughout the program. One gift card provided per family.

Our service area is San Diego and Imperial Counties. If there is availability, those living outside our service area may qualify; distributed in order based on registration date/time. 

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

FREQUENTLY ASKED QUESTIONS

How do I join the webinar?
After you have registered via the HASDC website, you will receive a confirmation email directly from Zoom with the program link. Please use the “Click Here to Join” link in that email.

What if I get disconnected or can’t login?
We will be actively troubleshooting throughout the web-conference. Text 619-325-9401 if you have any technical difficulties and we will try to help you get back into the web-conference. We encourage everyone to start logging in at 5:50PM so that we have time to help you troubleshoot and you will still be eligible for the dinner.

How will I receive my dinner gift card?
HASDC will email you an e-gift card from GrubHub to be used to purchase a meal on a later date. Please note: gift cards will be sent to the email you used to register.