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Connections & Conversations: Hemophilia B & IXINITY:

Connections & Conversations, a program series to keep the bleeding disorders community informed and connected with peers. Learn about new products, treatments and services available to the bleeding disorders community. Our Connections & Conversations programs are open to all patients with a bleeding disorder and their immediate family members.

Bleeding disorder participants and their immediate family (living in our service area) who register by May 19 and are logged in for the full 1.5-hour program will be entered into a drawing for a $100 Von’s Grocery Gift Card. Two winners will be announced. 

JOIN US VIRTUALLY

HEMOPHILIA B: IXINITY AND MEDEXUS PROGRAMS
Medexus Pharma’s (formally Aptevo) Samuel Gbadebo and Myles Ganley will be providing an informational presentation on IXINITY® (coagulation factor IX [recombinant]), as well as programs, scholarships and services that Medexus Pharma offers to the community. This program will be presented in English. 

PROGRAM SPEAKERS
Samuel Gbadebo
Rare Disease and Immunology Specialist, Medexus Pharma

Myles Ganley
Medexus Pharma 

DATE
Wednesday, May 20, 2020

TIME
5:30 PM – 7:00 PM

AGENDA
5:25 PM Connect to Zoom link (make sure everything is working)
5:30 PM Welcome & Program Begins
6:30 PM Q&A
7:00 PM Program Concludes

PROGRAM FLYER
Click Here for Program Flyer

LOCATION
From your home! Virtually attend from any smart phone, tablet, laptop or computer.

TECHNOLOGY
All of our virtual (online) programs are offered through Zoom. It is a free service with a downloadable app for your smart phone, tablet or you can go online. Some sessions will have video chat options – which we encourage because seeing familiar faces can help reduce isolation and increase your mental health. For sessions without video chat options, please use the chat feature to type in your questions.

IN PARTNERSHIP WITH

REGISTRATION

Connections & Conversations - May 20

  • We will use this to know who you are if you will be calling in for this program.
  • How many people from your family will be participating in this virtual program?
  • This field is for validation purposes and should be left unchanged.

FREQUENTLY ASKED QUESTIONS

How do I join the webinar?
After you have registered via the HASDC website, a join webinar link will be emailed to you from HASDC. Please use the “Click Here to Join” link in that email.

How do I access video from my smart phone or tablet?
Download the free Zoom App available for apple, google and android. If you have already downloaded Zoom, please make sure to download the most recent upgrade.

Is this a video conference? Can people see me?
Yes, your video camera will be turned on upon entry into the webinar. If you do not wish to show your face, you can turn your camera off. All participants will be placed on mute.

How do I submit questions during the program?
Please use Zoom’s chat feature to submit questions during the program. We will make sure to answer them during the Q&A. We ask that you only use this feature to submit questions and limit conversation.

I don’t have a strong enough internet connection at home or a device: There is a call-in option for the conference. Please let us know ahead of time if this is an issue for you and we will send you the presentation images and the call-in number.

What if I get disconnected or can’t login?
We will be actively troubleshooting throughout the web-conference. Text 619-325-9401 if you have any technical difficulties and we will try to help you get back into the web-conference. We encourage everyone to start logging in at 5:25 pm so that we have time to help you troubleshoot and you will still be eligible for the dinner.

Who is eligible for the grocery gift card drawing?
Bleeding disorder participants and their immediate family (living in our service area*) who register by May 19 and are logged in for the full 1.5-hour program are eligible for the drawing for a $100 Vons grocery gift card. Two winners will be announced. *Our service area is San Diego and Imperial Counties.

If I win the drawing, how will I receive the gift card?
If pre-registered and you are logged in and actively participating during the full 1.5-hour for the web-conference (5:30 PM – 7:00 PM), you will be entered into the drawing. Winners will be emailed an e-gift card from Vons to be used for groceries (please note: winners gift cards will be sent to the email you used to register).

If I get disconnected will I still be eligible for the grocery gift card drawing?
To be eligible for the grocery gift card drawing after a disconnection, you need to try to log back in and attempt to join by phone only. If you’ve exhausted all options, cannot log back in, and have completed 75% or less of the web-conference, you will be ineligible for the drawing.