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Virtual Dinner Program: My Journey to JIVI (Spanish):

Join us virtually for an evening of education. Our Virtual Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members.

Bleeding disorder participants and their immediate family (living in our service area) who register by June 2 and are logged in for the full 1.5-hour program will receive a Gift Card* to purchase dinner on a later date. *One per family. 

ÚNETE A NOSOTROS VIRTUALMENTE | JOIN US VIRTUALLY

MI JORNADA HACIA JIVI
En asociación con bayer, Mi Jornada hacia Jivi reúne a la comunidad para escuchar historias que inspiriran de primera mano sobre los momentos decisivos y los hitos que han dado forma a los viajes de todos los ámbitos de la vida. Únase a nosotros mientras escuchamos historias sobre experiencias de vida y la transición a Jivi. También aprenderá más sobre la ciencia detrás de Jivi. Este programa se presentará en español. 

MY JOURNEY TO JIVI
In partnership with Bayer, My Journey to Jivi brings the community together to hear inspiring firsthand stories of the defining moments and milestones that have shaped journeys from all walks of life. Join us as we hear stories about life experiences and transitions to Jivi. You will also learn more about the science behind Jivi. This program will be presented in Spanish. 

ORADOR DEL PROGRAMA | PROGRAM SPEAKER
Juan Pablo Lopez
Patient Speaker; a 24 yr old young man from Hermosillo, Sonora Mexico . He will share the interesting journey severe Hemophilia A has taken him on.

DATE
Wednesday, June 3, 2020

TIME
5:30 PM – 7:00 PM

AGENDA
5:25 PM Connect to Zoom link (make sure everything is working)
5:30 PM Welcome & Program Begins
6:30 PM Q&A
7:00 PM Program Concludes

PROGRAM FLYER
Click Here for Program Flyer

LOCATION
From your home! Virtually attend from any smart phone, tablet, laptop or computer.

TECHNOLOGY
All of our virtual (online) programs are offered through Zoom. It is a free service with a downloadable app for your smart phone, tablet or you can go online. Some sessions will have video chat options – which we encourage because seeing familiar faces can help reduce isolation and increase your mental health. For sessions without video chat options, please use the chat feature to type in your questions.

IN PARTNERSHIP WITH

REGISTRATION

Registration for this event is now closed.

FREQUENTLY ASKED QUESTIONS

How do I join the webinar?
After you have registered via the HASDC website, a join webinar link will be emailed to you from HASDC. Please use the “Click Here to Join” link in that email.

How do I access video from my smart phone or tablet?
Download the free Zoom App available for apple, google and android. If you have already downloaded Zoom, please make sure to download the most recent upgrade.

Is this a video conference? Can people see me?
Yes, your video camera will be turned on upon entry into the webinar. If you do not wish to show your face, you can turn your camera off. All participants will be placed on mute.

How do I submit questions during the program?
Please use Zoom’s chat feature to submit questions during the program. We will make sure to answer them during the Q&A. We ask that you only use this feature to submit questions and limit conversation.

I don’t have a strong enough internet connection at home or a device: There is a call-in option for the conference. Please let us know ahead of time if this is an issue for you and we will send you the presentation images and the call-in number.

What if I get disconnected or can’t login?
We will be actively troubleshooting throughout the web-conference. Text 619-325-9401 if you have any technical difficulties and we will try to help you get back into the web-conference. We encourage everyone to start logging in at 5:25 pm so that we have time to help you troubleshoot and you will still be eligible for the dinner.

Who is eligible for a gift card?
Bleeding disorder participants and their immediate family (living in our service area*) who register by June 2 and are logged in for the full 1.5-hour program are eligible for a Grub Hub gift card* to purchase dinner on a later date. *One gift card provided per family. *Our service area is San Diego and Imperial Counties. If there is availability, those living outside our service area may qualify; distributed in order based on registration date/time. 

How will I receive my dinner gift card?
If pre-registered and you are logged in and actively participating during the full 1.5-hour for the web-conference (5:30 PM – 7:00 PM), you will be emailed a e-gift card from Grub Hub to be used to purchase dinner on a later date (please note: gift cards will be sent to the email you used to register).

If I get disconnected will I still be eligible for the dinner gift card?
To be eligible for the dinner gift card after a disconnection, you need to try to log back in and attempt to join by phone only. If you’ve exhausted all options, cannot log back in, and have completed 75% or less of the web-conference, you will be placed on a waiting list for the gift cards if supplies are available.