« Back to All Events

Virtual Dinner Program – Investigación sobre la terapia genética: Entendiendo la ciencia:

Join us virtually for an evening of education. Our Virtual Educational Dinner Programs are open to all patients with a bleeding disorder and their immediate family members.

Bleeding disorder participants and their immediate family (living in our service area) who register by June 29 and are logged in for the full 1.5-hour program will receive a GrubHub Gift Card* to purchase dinner on a later date. *One per family. 

Investigación sobre la terapia genética: Entendiendo la ciencia
En asociación con BioMarin y el Dr. Miguel Escobar. La terapia genética ha sido explorada como un posible enfoque de tratamiento durante más de 50 años.  Ésta charla les proporcionará una visión general sobre las siguientes preguntas: ¿Qué causa las condiciones genéticas? ¿Cuáles son los diferentes tipos de terapia genéticas que se están explorando? ¿Qué están tratando de resolver los ensayos de terapia genética?

GENE THERAPY RESEARCH: UNDERSTANDING THE SCIENCE
In partnership with BioMarin and Dr. Miguel Escobar. Gene therapy has been explored as a potential treatment approach for well over 50 years.  This talk will provide a general overview of the following questions: What causes genetic conditions? What are the different types of gene therapies being researched? What are gene therapy trials trying to figure out?

PROGRAM SPEAKERS
Robert Friedman
Sr. Account Manager – Hemophilia, BioMarin

Miguel Escobar, MD
Professor, McGovern Medical School

This program will be presented in Spanish ONLY. 


DATE
Tuesday, June 30, 2020

TIME
5:30 PM – 7:00 PM

AGENDA
5:20 PM Connect to Zoom link (make sure everything is working)
5:30 PM Welcome & Program Begins
6:30 PM Q&A
7:00 PM Program Concludes

LOCATION
From your home! Virtually attend from any smart phone, tablet, laptop or computer.

TECHNOLOGY
All of our virtual (online) programs are offered through Zoom. It is a free service with a downloadable app for your smart phone, tablet or you can go online. Some sessions will have video chat options – which we encourage because seeing familiar faces can help reduce isolation and increase your mental health. 

IN PARTNERSHIP WITH

REGISTRATION

Registration for this event is now closed.

FREQUENTLY ASKED QUESTIONS

How do I join the webinar?
After you have registered via the HASDC website, a join webinar link will be emailed to you from HASDC. Please use the “Click Here to Join” link in that email.

How do I access video from my smart phone or tablet?
Download the free Zoom App available for apple, google and android. If you have already downloaded Zoom, please make sure to download the most recent upgrade.

Is this a video conference? Can people see me?
No, your video camera will be turned off upon entry into the webinar. All participants will be placed on mute.

How do I submit questions during the program?
Please use Zoom’s chat feature to submit questions during the program. We will make sure to answer them during the Q&A. We ask that you only use this feature to submit questions and limit conversation.

I don’t have a strong enough internet connection at home or a device: There is a call-in option for the conference. Please let us know ahead of time if this is an issue for you and we will send you the presentation images and the call-in number.

What if I get disconnected or can’t login?
We will be actively troubleshooting throughout the web-conference. Text 619-325-9401 if you have any technical difficulties and we will try to help you get back into the web-conference. We encourage everyone to start logging in at 5:25 pm so that we have time to help you troubleshoot and you will still be eligible for the dinner.

Who is eligible for a gift card?
Bleeding disorder participants and their immediate family (living in our service area*) who register by June 29 and are logged in for the full 1.5-hour program are eligible for a GrubHub gift card* to purchase dinner on a later date. *One gift card provided per family. *Our service area is San Diego and Imperial Counties. If there is availability, those living outside our service area may qualify; distributed in order based on registration date/time. 

How will I receive my dinner gift card?
If pre-registered and you are logged in and actively participating during the full 1.5-hour for the web-conference (5:30 PM – 7:00 PM), you will be emailed a e-gift card from GrubHub to be used to purchase dinner on a later date (please note: gift cards will be sent to the email you used to register).