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Advocacy Forum

Learn to better advocate for yourself personally, professionally and politically. Join us for our annual Advocacy Forum. Attendees will have the opportunity to learn about what advocacy is, the importance of being a self-advocate, and how to politically advocate at the local, state and national levels. This event is open to all members of the bleeding disorders community, their immediate family members and caregivers.


Saturday, February 27, 2021 | 10:00AM – 2:00PM


Welcome & Sponsor Remarks

Empowered: Tools for Self-Advocacy
Eva Felix will inform you on how to recognize and discuss the unique challenges of hemophilia. She will provide practical tips and resources to individuals with hemophilia to help them become self-advocates in many areas of life.

How to Advocate for You and Your Family in California
Lynne Kinst is the new Executive Director for the Hemophilia Council of California.  She will review the Hemophilia Council of California’s advocacy strategy, key issues in 2021, as well as how to get involved in protecting your access to care in California.

Resilience: Growing Through Life’s Changes 
Managing stress is an important aspect of our everyday lives. Amalia Vega will discuss some of the common causes of stress and provide some examples of how to better adapt and manage adversity. Through some interactive and fun activities, you will explore what it means to be resilient and learn some associated skills as well as tips and tools for living a healthy lifestyle.


Registration will open January 15, 2021.


Thank you to our sponsors for making this program possible.