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Advocacy Forum

Learn to better advocate for yourself personally, professionally and politically. Join us for our annual Advocacy Forum. Attendees will have the opportunity to learn about what advocacy is, the importance of being a self-advocate, and how to politically advocate at the local, state and national levels. This event is open to all members of the bleeding disorders community, their immediate family members and caregivers.

Program Language
Presented in English with live Spanish translation available. 


Saturday, February 27, 2021 | 10:00AM – 2:00PM


**Pre-registered families attending for the entire day (must be logged on by 10:00am) will receive a post-conference box filled with product literature and giveaways including a $50 Target Gift Card. One box per mailing address.

 **Giveaways, boxes and gift cards are only for HASDC members and their immediate family only.  (An HASDC member is defined as someone who is currently on our mailing list and who resides in or receives treatment in San Diego or Imperial County).


Learn more about our exhibitors! Click below to view our Virtual Booth Scavenger Hunt questions. You can click through each sponsor’s virtual booth page, under the Advocacy Forum tab (to the left), to find the answers. Answer the questions correctly and you will be entered into a drawing for a $50 Amazon gift card. One entry per email.

Must be present on 2.27.21 live program to win!  


Welcome & Ice Breaker

Sponsor Breakouts
Have a chance to meet with representatives from Bayer, Genentech & Novo Nordisk.

Empowered: Tools for Self-Advocacy
Eva Felix will inform you on how to recognize and discuss the unique challenges of hemophilia. She will provide practical tips and resources to individuals with hemophilia to help them become self-advocates in many areas of life.

Born from Advocacy – A California Story
Lynne Kinst, Executive Director for the Hemophilia Council of California, will review the Hemophilia Council of California’s advocacy strategy, key issues in 2021, as well as how to get involved in protecting your access to care in California.

Sponsor Breakouts
Have a chance to meet with representatives from Pfizer and Takeda.

Put Yourself Out There: Sharing and Advocating for Bleeding Disorders
Everyone has a story to tell. It is important that real people share their experiences to help advocate for those within the bleeding disorder community and themselves. Gain confidence, improve your communications skills, and make connections.

COVID Vaccines & Bleeding Disorders
Leonard A. Valentino, MD, President & CEO of the National Hemophilia Foundation, will be sharing COVID-19 updates and what those with bleeding disorders should know when thinking about getting vaccinated.