Educational Dinner Program
Join us an evening of education. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
DATE | TIME (Fecha | Hora)
Thursday, June 8, 2023 | 6:00PM – 8:00PM
LOCATION
Fogo de Chão
668 Sixth Ave.
San Diego, CA 92101
PARKING
Public parking lot across the street from restaurant. Parking will be $1 per hour.
PROGRAM LANGUAGE (Idioma del programa)
Presented in English | Presentado en inglés
TOPIC (Tema)
“Introducing Investigational Gene Therapy Clinical Trials for Hemophilia”
Do you have questions about the clinical trial process for hemophilia gene therapy research?
Join us for an interactive session which dives into the journey of considering, deciding about, or participating in an investigational hemophilia gene therapy clinical trial. This session is intended for any community member, those who are affected by hemophilia and those who support them. Our aim is to provide a space for active consideration so that session participants walk away feeling more informed and empowered.
SPEAKER (Presentador)
Guillermo Campillo
Senior Patient Education Liaison, Spark Therapeutics
Guillermo Campillo is the liaison between Spark Therapeutics and non-profit patient advocacy groups/organizations in the hemophilia and other bleeding disorder communities, with the goals of communicating information about gene therapy and helping develop educational materials with input from the community. Guillermo has six years of industry and advocacy experience from his business development and hemophilia community specialist roles in the biopharma world. Guillermo also spent five years prior volunteering with the National Hemophilia Foundation and chapters, serving on the board of the Colorado Chapter of the National Hemophilia Foundation and contributing as part of the Diversity Working Group and Steps for Living at the National Hemophilia Foundation. Guillermo received a B.S. in Business Administration with a double major in international business and marketing with a minor in Spanish from the University of Colorado. In Addition, Guillermo obtained a Certificate of Genetics and Genomics from Stanford University.
AGENDA (Agenda)
5:45 PM Arrive at Fogo de Chão (please arrive on time)
6:15 PM Dinner Begins
6:30 PM Welcome & Program Begins
8:00 PM Program Concludes
REGISTRATION (Inscripción)
Registration for this program is now CLOSED as we have reached capacity.
WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
SPONSOR (Patrocinador)
Thank you to our sponsor for partnering with us to make this educational program possible.
