Category Archives: Event Sponsors

Camp Firefly Registration

CAMPER REGISTRATION FORM

Thank you for your interest in registering for Camp Firefly. Camp capacity is limited, therefore only enroll if you feel you and your camper are able to fully participate virtually each day.

Thank you for your interest in Camp Firefly. Registration for this program is now closed.

Camp Dragonfly Registration

CAMPER REGISTRATION FORM

Thank you for your interest in registering for our teen camp, Camp Dragonfly. Camp capacity is limited, therefore only enroll if you feel you and your camper are able to fully participate virtually each day.

Thank you for your interest in Camp Firefly. Registration for this program is now closed.

Yoga in the Park Registration

REGISTRATION FORM

Thank you for your interest in participating in our Wellness Wednesday program, Yoga in the Park. Capacity is very limited, therefore only register if you are certain you can attend this program in-person.

This event is not intended for young children, therefore only register those 14-years of age and older.

Thank you for your interest in our Yoga in the Park event. Registration for this program is now closed.

Hike the Coast Registration

REGISTRATION FORM

Thank you for your interest in participating in our Wellness Wednesday program, Hike the Coast. Capacity is very limited, therefore only register if you are certain you can attend this program in-person.

Thank you for your interest in our Yoga in the Park event. Registration for this program is now closed.

Genentech

WHO IS GENENTECH?

For more than 40 years, Genentech has been following the science, seeking solutions to unmet medical needs. As a proud member of the Roche Group, Genentech makes medicines to treat patients with serious medical conditions. Genentech is headquartered in South San Francisco, California.

WEBSITE

Learn more about Genentech: www.TreatHemA.com

CONTACT US

Angelica Flores, MSN, RN, PHN
Clinical Education Manager
E: flores.angelica@gene.com
P: 951-903-6860

Bayer

WHO IS BAYER?

Bayer is a global enterprise with core competencies in the life science fields of health care and nutrition. Its products and services are designed to benefit people by supporting efforts to overcome the major challenges presented by a growing aging population. Bayer is committed to the principles of sustaining development, and the Bayer brand stands for trust, reliability, and quality throughout the world.

*This information has been reviewed according to the US law and is consistent with US Prescribing Information and is intended for US audience only. Prescribing Information may vary depending on local approval in each country.

https://www.medinfo.bayer.com

https://labeling.bayerhealthcare.com/html/privacy.htm

WEBSITES

Learn more about Jivi: https://www.jivi-us.com/

BROCHURES

CONTACT US

Shirley Wycoco
Bayer Representative
E: shirley.wycoco@bayer.com
P: 412-260-5282

CSL Behring

WHO IS CSL BEHRING?

CSL Behring is a global biotherapeutics leader driven by its promise to save lives. Focused on serving patients’ needs by using the latest technologies, we develop and deliver innovative therapies that are used to treat coagulation disorders, primary immune deficiencies, hereditary angioedema, respiratory disease, and neurological disorders. The company’s products are also used in cardiac surgery, burn treatment and to prevent hemolytic disease of the newborn. CSL Behring operates one of the world’s largest plasma collection networks, CSL Plasma. For inspiring stories about the promise of biotechnology, visit Vita CSLBehring.com/vita and follow us on Twitter.com/CSLBehring.

WEBSITE

Learn more about CSL Behring

BROCHURE

CONTACT US

Denise Atkinson-Thomas
Manager, Coagulation Products
E: Denise.Atkinson@cslbehring.com
P: 858-344-2691

Spark Therapeutics

WHO IS SPARK THERAPEUTICS?

Spark Therapeutics is creating a path for advancements in hemophilia gene therapy research. We are committed to discovering, developing and delivering gene therapies, we challenge the inevitability of genetic diseases.

WEBSITE

Learn more about Investigational Gene Therapy: https://hemophiliaforward.com/

Science of Gene Therapy Video

BROCHURES

CONTACT US

Guillermo Campillo
Sr. Patient Education Liaison
E: guillermo.campillo@sparktx.com
P: 720-364-6214

CVS Specialty

WHO IS CVS SPECIALTY?

Our commitment to helping patients and their physicians manage complex drug therapies by delivering expert individualized care and unmatched, multi-channel access has made us one of the leading specialty pharmacies in the country. We provide a full-range of pharmaceutical care, dispensing the latest FDA-approved medications.

Nuestro compromiso de ayudar a los pacientes y a sus médicos a administrar terapias farmacológicas complejas al brindar atención individualizada experta y acceso multicanal sin igual nos ha convertido en una de las farmacias especializadas líderes en el país. Ofrecemos una gama completa de atención farmacéutica, distribuyendo los últimos medicamentos aprobados por la FDA.

WEBSITE

Learn more about CVS: https://www.cvsspecialty.com/wps/portal/specialty

CONTACT US

Felipe Greven
Client Relations Executive
E: felipe.greven@cvshealth.com
P: 510-468-8845

Novo Nordisk

WHO IS NOVO NORDISK?

For 30 years, Novo Nordisk has been a driving force for people living with rare bleeding disorders. We take pride in striving for innovative solutions to help improve patients’ lives. This motivates us to uphold the highest standards in our product research and development. This vital research is just the beginning of our commitment in hemophilia. We’ll continue our research and connect with people with hemophilia and healthcare professionals to ensure we understand and respond to specific needs of the hemophilia community. We’ll continue to develop innovative solutions that can help improve the lives of people with hemophilia in the future.

WEBSITE

Learn more about Novo Nordisk: https://www.changinghemophilia.com/

BROCHURE

CONTACT US

Marquez Washington
Hemophilia Community Liaison
E: MQWT@novonordisk.com
P: 279-321-2757