REGISTRATION FORM
Thank you for your interest in participating in our Food for Though program on October 30, 2023 at Seasons 52 (UTC Mall). Capacity is limited, therefore only register if you are certain you can attend this program.
REGISTRATION FORM
Thank you for your interest in participating in our Food for Though program on October 30, 2023 at Seasons 52 (UTC Mall). Capacity is limited, therefore only register if you are certain you can attend this program.
WHO IS CSL BEHRING?
CSL Behring is a global biotherapeutics leader driven by its promise to save lives. Focused on serving patients’ needs by using the latest technologies, we develop and deliver innovative therapies that are used to treat coagulation disorders, primary immune deficiencies, hereditary angioedema, respiratory disease, and neurological disorders. The company’s products are also used in cardiac surgery, burn treatment and to prevent hemolytic disease of the newborn. CSL Behring operates one of the world’s largest plasma collection networks, CSL Plasma. For inspiring stories about the promise of biotechnology, visit Vita CSLBehring.com/vita and follow us on Twitter.com/CSLBehring.
WEBSITE
Learn more about CSL Behring
BROCHURE
CONTACT US
Denise Atkinson-Thomas
Manager, Coagulation Products
E: Denise.Atkinson@cslbehring.com
P: 858-344-2691
WHO IS BIOMARIN?
BioMarin is a world leader in developing and commercializing innovative therapies for rare diseases driven by genetic causes. Visit www.biomarin.com to learn more.
WEBSITE
Learn more about Gene Therapy: https://www.hemdifferently.com
BROCHURE
CONTACT US
Billy Duckworth
Hemophilia Sr. Account Manager
E: Billy.Duckworth@bmrn.com
P: 949-537-1063
WHO IS TAKEDA?
Interested in learning more about Takeda’s current products and resources? Follow the link below.
VIDEO
CONTACT US
Mary Shaw
Territory Business Manager
P: 949-315-5413
Paid Volunteers Needed!
UT Health San Antonio is looking to hire 18 live models for a Point-of-care Ultrasound Workshop on Thursday, April 11th, 2024 at the Hilton Gaslamp Quarter in downtown San Diego!
Physician faculty will be teaching advanced point-of-care ultrasound skills to physicians attending the course from all over the country. We will need ultrasound models for the hands-on scanning portion of this continuing medical education event.
Please see flyer below for more information and click this SURVEY link if you are interested in participating. If you are unable to attend, please pass this along to friends and/ or family members who fit the criteria and could possibly help us during our POCUS CME workshop.
If you have any questions, please don’t hesitate to reach out to Kathryn Krellenstein or Natalie Smith.
Register for Lunch & Learn
UC San Diego Health Hemophilia and Thrombosis Treatment Center (HTTC) is hosting their next Lunch & Learn on Monday, March 25, 2024.
Learn to better advocate for yourself personally, professionally and politically. Join us for our annual Advocacy Forum. Attendees will have the opportunity to learn about what advocacy is, the importance of being a self-advocate, empowerment, how to politically advocate at the local, state and national levels and current state of health insurance in California.
This year’s event will include a session on Infusion Training provided by our local Hemophilia Treatment Centers!
*Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area.
DATE | TIME (Fecha | Hora)
Saturday, February 17, 2024 | 9:00AM – 2:00PM
Location: San Diego Zoo Safari Park
Venue: Kijamii Overlook (CLICK HERE FOR MAP)
San Diego Zoo Safari Park
15500 San Pasqual Valley Rd.
Escondido, CA 92027
Parking: Complimentary parking for ONE car per registered family.
Weather: Sunny/63 (please plan attire accordingly; venue is covered but has open walls)
CHILDCARE (cuidado de ni´ños)
Complimentary childcare will be provided for children ages 3-12 only. Children will participate in a tram tour. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements.
Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.
AGENDA
REGISTRATION (Inscripción)
Registration for this event is now closed.
We are unable to take late registration requests.
*WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
SPONSORS (Patrocinadores)
Thank you to our sponsors for making this program possible.
Join us for Food for Thought: an HASDC Educational Dinner. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
DATE | TIME (Fecha | Hora)
Tuesday, February 20, 2024 | 6:00PM – 8:00PM
Location: Seasons 52 (UTC Mall)
Seasons 52 (UTC Mall) – Napa Room
4505 La Jolla Village Drive
San Diego, CA 92122
PROGRAM LANGUAGE (Idioma del programa)
Presented in English | Presentado en ingles
TOPIC (Tema)
“HEMGENIX (etranacogene dezaparvovec-drlb): Gene Therapy Education Program“
This educational program offers you and your family members the opportunity to:
SPEAKERS (Presentadores)
Richard Lemons, MD, PhD
University of Utah
Denise Atkinson
Manager, Coagulation Products, CSL Behring
AGENDA (Agenda)
6:00 PM Arrive at Seasons 52
6:15 PM Dinner Begins
6:30 PM Welcome & Program Begins
8:00 PM Program Concludes
REGISTRATION (Inscripción)
Registration for this program will close on Sunday, February 18, 2024
SPONSOR (Patrocinador)
Thank you to our sponsor for partnering with us to make this educational program possible.
The National Hemophilia Foundation (NHF) will be hosting its annual Washington Days advocacy event as a virtual experience this year.
NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage and access to care.
Registration opportunities and Issues will be announced soon.
DATE | LOCATION
March 8-10, 2023 | Washington D.C.
REGISTRATION
Please click here for more information on how to register.
QUESTIONS
Please address any additional registration or housing questions to:
Alla Vaynshteyn
NHF Meetings Specialist
avaynshteyn@hemophilia.org
For any other concerns, please contact:
advocate@hemophilia.org
EVENT CANCELLED
Join us this Bleeding Disorders Awareness Month for our Saturday Sweat: an HASDC Mindful Movement event. Our Saturday Sweat event is open to individuals with a bleeding disorder, their immediate family members and friends living in HASDC’s service area.
Please note: Attendees must be 15-years old or older to attend.
DATE | TIME (Fecha | Hora)
THIS EVENT HAS BEEN CANCELLED
Location: F45 Training Sorrento Valley
F45 Training Sorrento Valley
6765 Mira Mesa Blvd. Suite 148
San Diego, CA 92121
PROGRAM LANGUAGE (Idioma del programa)
Presented in English | Presentado en ingles
TOPIC (Tema)
Join us for our Saturday Sweat event as we join F45 Training Sorrento Valley for a HIIT style workout. Bring a friend and come workout with us! Moving the body not only improves joint health, but your overall health as well.
“Heroes Hollywood Workout“
Heroes Hollywood is a 60-minute session designed to get your weekend off to a great start! This workout is a hybrid workout which will consist of 18 stations where you will have 40 seconds of work, 15 seconds of rest, 1 set at each station and 3 laps through the room. There will be a 45-second hydration break between each lap.
SPEAKERS (Presentadores)
Peter Aguero, PT, DPT, RMSK
Physical Therapist III, UC San Diego Health Hemophilia & Thrombosis Treatment Center
Rob MacDonald, LMT
Licensed Massage Therapist, UC San Diego Health Hemophilia & Thrombosis Treatment Center
AGENDA (Agenda)
11:45AM Arrive at F45 Training Sorrento Valley (please arrive early to complete waivers)
12:00PM Heroes Hollywood Workout Begins (no late arrivals)
1:00PM Post Workout Refreshments, PT Demonstration, Massage Therapy benefits
1:30PM Event Concludes
REGISTRATION (Inscripción)
THIS EVENT HAS BEEN CANCELLED
*WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
SPONSOR (Patrocinador)
Thank you to our supporter for partnering with us to make this event possible.