All posts by Nooshin Kosar

Genentech

WHO IS GENENTECH?

For more than 40 years, Genentech has been following the science, seeking solutions to unmet medical needs. As a proud member of the Roche Group, Genentech makes medicines to treat patients with serious medical conditions. Genentech is headquartered in South San Francisco, California.

WEBSITE

Learn more about Genentech: www.TreatHemA.com

CONTACT US

Angelica Flores, MSN, RN, PHN
Clinical Education Manager
E: flores.angelica@gene.com
P: 951-903-6860

Bayer

WHO IS BAYER?

Bayer is dedicated to providing treatment options for people living with rare, serious and life-threatening disease. Bayer has been a committed partner to the community delivering therapeutic options, educational and support programs and continuing research designed to meet the needs of patients throughout their life journey.

WEBSITE

Learn more about Jivi: https://www.jivi-us.com/

BROCHURES

CONTACT US

Karen Arrieta
Account Manager
E: karen.arrieta@bayer.com
P: 714-746-9000

CSL Behring

WHO IS CSL BEHRING?

CSL Behring is a global biotherapeutics leader driven by its promise to save lives. Focused on serving patients’ needs by using the latest technologies, we develop and deliver innovative therapies that are used to treat coagulation disorders, primary immune deficiencies, hereditary angioedema, respiratory disease, and neurological disorders. The company’s products are also used in cardiac surgery, burn treatment and to prevent hemolytic disease of the newborn. CSL Behring operates one of the world’s largest plasma collection networks, CSL Plasma. For inspiring stories about the promise of biotechnology, visit Vita CSLBehring.com/vita and follow us on Twitter.com/CSLBehring.

WEBSITE

Learn more about CSL Behring

BROCHURE

CONTACT US

Denise Atkinson-Thomas
Manager, Coagulation Products
E: Denise.Atkinson@cslbehring.com
P: 858-344-2691

Spark Therapeutics

WHO IS SPARK THERAPEUTICS?

Spark Therapeutics is creating a path for advancements in hemophilia gene therapy research. We are committed to discovering, developing and delivering gene therapies, we challenge the inevitability of genetic diseases.

WEBSITE

Learn more about Investigational Gene Therapy: https://hemophiliaforward.com/

Science of Gene Therapy Video

BROCHURES

CONTACT US

Guillermo Campillo
Sr. Patient Education Liaison
E: guillermo.campillo@sparktx.com
P: 720-364-6214

CVS Specialty

WHO IS CVS SPECIALTY?

Our commitment to helping patients and their physicians manage complex drug therapies by delivering expert individualized care and unmatched, multi-channel access has made us one of the leading specialty pharmacies in the country. We provide a full-range of pharmaceutical care, dispensing the latest FDA-approved medications.

Nuestro compromiso de ayudar a los pacientes y a sus médicos a administrar terapias farmacológicas complejas al brindar atención individualizada experta y acceso multicanal sin igual nos ha convertido en una de las farmacias especializadas líderes en el país. Ofrecemos una gama completa de atención farmacéutica, distribuyendo los últimos medicamentos aprobados por la FDA.

WEBSITE

Learn more about CVS: https://www.cvsspecialty.com/wps/portal/specialty

CONTACT US

Felipe Greven
Client Relations Executive
E: felipe.greven@cvshealth.com
P: 510-468-8845

Novo Nordisk

WHO IS NOVO NORDISK?

For 30 years, Novo Nordisk has been a driving force for people living with rare bleeding disorders. We take pride in striving for innovative solutions to help improve patients’ lives. This motivates us to uphold the highest standards in our product research and development. This vital research is just the beginning of our commitment in hemophilia. We’ll continue our research and connect with people with hemophilia and healthcare professionals to ensure we understand and respond to specific needs of the hemophilia community. We’ll continue to develop innovative solutions that can help improve the lives of people with hemophilia in the future.

WEBSITE

Learn more about Novo Nordisk: www.signup.novonordiskhemophilia.com

BROCHURE

CONTACT US

Marquez Washington
Hemophilia Community Liaison
E: MQWT@novonordisk.com
P: 279-321-2757

Pfizer

WHO IS PFIZER?

At Pfizer, we apply science and our global resources to bring therapies to people that extend and significantly improve their lives. We strive to set the standard for quality, safety and value in the discovery, development and manufacture of health care products. Every day, Pfizer colleagues work across developed and emerging markets to advance wellness, prevention, treatments and cures that challenge the most feared diseases of our time.

WEBSITE

Learn more about Pfizer: http://www.hemophiliavillage.com/

BROCHURE

Pfizer Pal: https://www.pfizerpal.com/

CONTACT US

Eva Felix
Patient Affairs Liaison
E: eva.felix@pfizer.com
P: 661-632-6735

COVID-19: Community Events Update

HASDC Community Members,

As the world health community continues to monitor closely the emergence of “coronavirus disease 2019” (COVID-19), we want to make sure you are kept informed of how to stay healthy during this time. You are our greatest asset and you are the heart of our mission, and your health and safety is paramount to us.

Given the uncertainty of the situation, and in order to follow the recommendations of social distancing, the HASDC office is temporarily closed. We encourage everyone to follow suite in social distancing to stay safe and healthy while being mindful of your emotional well-being.

Our goal is to keep you informed, therefore we want to ensure the continuity of chapter communications and operations. We will continue to monitor the situation and take appropriate action in light of recommendations from local and national public health officials. 

UPCOMING SPRING EVENTS
Per the CDC recommendation to postpone or cancel any gatherings of 10 people or more, all HASDC events scheduled until April 30 are postponed. The following event have been postponed: Advocacy Forum. We will inform you when this event has been rescheduled.

We appreciate your understanding and continued support during these unprecedented times. Do not hesitate to contact us with any questions/concerns: info@hasdc.org or 619.325.3570 (leave a voicemail).

Please stay healthy during this time,

Nooshin Kosar
HASDC Executive Director