REGISTRATION FORM
Thank you for your interest in participating in our Food for Though program on October 30, 2023 at Seasons 52 (UTC Mall). Capacity is limited, therefore only register if you are certain you can attend this program.
REGISTRATION FORM
Thank you for your interest in participating in our Food for Though program on October 30, 2023 at Seasons 52 (UTC Mall). Capacity is limited, therefore only register if you are certain you can attend this program.
WHO IS BIOMARIN?
BioMarin is a world leader in developing and commercializing innovative therapies for rare diseases driven by genetic causes. Visit www.biomarin.com to learn more.
WEBSITE
Learn more about Gene Therapy: https://www.hemdifferently.com
BROCHURE
CONTACT US
Billy Duckworth
Hemophilia Sr. Account Manager
E: Billy.Duckworth@bmrn.com
P: 949-537-1063
Register Today for a CBCD Program!
The Center for Bleeding and Clotting Disorders at UC San Diego Health offers engaging, monthly Patient Programs that are well-attended by our patients and caregivers. They invite you to join these fun, free, interactive programs. Find the 2025 Calendar of Events HERE.
Register Today to Join Our Upcoming Open House
Hosted by the Center for Bleeding & Clotting Disorders at UC San Diego Health
9333 Genesee Ave., Suite 310
San Diego, CA 92121
JUNE 5
Transition Open House
Your care teams at Rady Children’s Health and UC San Diego Health are committed to ensuring your smooth transition to adult care. The Center for Bleeding and Clotting Disorders at UC San Diego Health invites you to tour our clinic, meet our providers and clinical staff, get your questions answered, and enjoy lunch with us.
Parking Information
Parking is available in the underground parking structure, and validation will be provided.
Time: 11:00AM – 1:00PM
In partnership with Rady Children’s Health HTTC and HASDC
REGISTRATION
Spaces are limited for each class, please register to reserve your spot. For any questions, please contact Clinic Supervisor, Charles Hutchison, at cdhutchison@health.ucsd.edu.
Register Today to Join CBCD for Their Upcoming Lunch & Learn
Hosted by the Center for Bleeding & Clotting Disorders at UC San Diego Health
9333 Genesee Ave., Suite 310
San Diego, CA 92121
MAY 15
Mindfulness Practice
Join us for an hour-long guided meditation class with Certified Mindfulness-Based Stress Reduction (MBSR) and Mindfulness-Based Cognitive Therapy (MBCT) teacher, Helen Kim. This mindfulness class offers hands-on, practical mindfulness training, including a walking meditation in our peaceful courtyard, weather permitting. Chairs will be available to support participants with mobility challenges.
Time: 11:00AM – 12:00PM
Instructor: Helen Kim, Certified MBSR and Certified MBCT Teacher
REGISTRATION
Spaces are limited for each class, please register to reserve your spot. For any questions please contact UCSD CBCD at UCSDCBCDPrograms@health.ucsd.edu.
Join us for Food for Thought: an HASDC Educational Dinner. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.
DATE | TIME (Fecha | Hora)
Friday, January 24, 2025 | 6:00PM – 8:00PM
Location: Phil’s BBQ (Sports Arena)
Phil’s BBQ (Sports Arena)
3750 Sports Arena Blvd.
San Diego, CA 92110
PARKING
Public parking in lot outside of restaurant.
PROGRAM LANGUAGE (Idioma del programa)
Presented in English | Presentado en ingles
TOPIC (Tema)
“Women with Hemophilia: New Emphasis and About Time!”
This presentation reviews the history of women and hemophilia and how culture has shaped their experiences. Along with history, genetics and research are also presented specific to women. Finally, a review of treatment paradigm changes needed to fully meet the needs of a women today.
SPEAKERS (Presentadore)
Amber Federizo
Octapharma
AGENDA (Agenda)
6:00 PM Arrive at Phil’s BBQ (please arrive on time)
6:15 PM Welcome & Program Begins
8:00 PM Program Concludes
REGISTRATION (Inscripción)
Registration for this program is now closed.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
WAITLIST POLICY
If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
SPONSOR (Patrocinador)
Thank you to our sponsor for partnering with us to make this educational program possible.
Join us for Food for Thought: an HASDC Educational Dinner. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.
DATE | TIME (Fecha | Hora)
Monday, March 3, 2025 | 6:00PM – 8:00PM
Location: Seasons 52
Seasons 52
Napa Room
4505 La Jolla Village Drive
San Diego, CA 92122
PARKING
Public parking in lot outside of restaurant. Make sure to get parking ticket validated inside restaurant.
PROGRAM LANGUAGE (Idioma del programa)
Presented in English | Presentado en ingles
TOPIC (Tema)
“Transforming Lives: Discover the Power of Gene Therapy for Hemophilia B”
Lived Experience Perspectives from Patients and Providers
This educational program offers you and your family members the opportunity to learn how HEMGENIX works, the process for treatment and how CSL Behring can best support your treatment decisions.
SPEAKERS (Presentadore)
Doris Quon, MD, PhD
Orthopedic Institute for Children Los Angeles
AGENDA (Agenda)
5:45 PM Arrive at Seasons 52/Check-In
6:00 PM Program Begins
8:00 PM Program Concludes
REGISTRATION (Inscripción)
Registration for this program is now closed.
Priority registration will be given to those with Hemophilia B.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
WAITLIST POLICY
If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
SPONSOR (Patrocinador)
Thank you to our sponsor for partnering with us to make this educational program possible.
Learn to better advocate for yourself personally, professionally and politically. Join us for our annual Advocacy Forum. Attendees will have the opportunity to learn about what advocacy is, the importance of being a self-advocate, empowerment, how to politically advocate at the local, state and national levels and current state of health insurance in California.
This year’s event will include a session on Infusion Training provided by our local Hemophilia Treatment Centers!
*Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area.
DATE | TIME (Fecha | Hora)
Saturday, February 17, 2024 | 9:00AM – 2:00PM
Location: San Diego Zoo Safari Park
Venue: Kijamii Overlook (CLICK HERE FOR MAP)
San Diego Zoo Safari Park
15500 San Pasqual Valley Rd.
Escondido, CA 92027
Parking: Complimentary parking for ONE car per registered family.
Weather: Sunny/63 (please plan attire accordingly; venue is covered but has open walls)
CHILDCARE (cuidado de ni´ños)
Complimentary childcare will be provided for children ages 3-12 only. Children will participate in a tram tour. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements.
Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.
AGENDA
REGISTRATION (Inscripción)
Registration for this event is now closed.
We are unable to take late registration requests.
*WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
SPONSORS (Patrocinadores)
Thank you to our sponsors for making this program possible.
ABOUT WASHINGTON DAYS
The National Bleeding Disorders Foundation’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. We look forward to meeting with legislators and staff in person with hundreds of volunteer advocates across the United States to discuss issues important to our community.
THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN.
DATES
March 5-7, 2025 | Washington D.C.
VENUE
Hyatt Regency Washington on Capitol Hill
400 New Jersey Avenue, NW
Washington, D.C. 20001
REGISTRATION
Please click here to visit NBDF’s website and review more information on how to register.
REGISTER TODAY
The Hemophilia Federation of America (HFA) will be holding their annual Symposium March 27-30, 2025 here in San Diego!
THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN, NO SCHOLARSHIPS AVAILABLE THROUGH HASDC.
DATES | LOCATION
March 27-30, 2025 | The Sheraton San Diego Hotel & Marina
The Sheraton San Diego Hotel & Marina
1380 Harbor Island Drive
San Diego, CA 92101
SYMPOSIUM AGENDA
CLICK HERE to view HFA Symposium’s agenda.
REGISTRATION
Registration is now open. Please note: childcare registration closes March 14, 2025.
If you need financial assistance to attend the HFA Symposium, you can refer to the Hemophilia Federation of America’s Scholarship page.