At Sanofi Genzyme, treating rare blood disorders isn’t just what we do—it’s who we are. Because rare is in our blood. It’s why we strive to make a difference in the lives of patients, caregivers, and physicians. It’s why we pursue the best possible therapies, services, and resources. Why we research, develop, and discover groundbreaking advancements. Why we use our global scale to create a true, lasting difference. From pipeline to patients, we know that our commitment has the potential to truly transform. To shift the trajectory. To change lives.
Pfizer is honored to partner and serve the bleeding disorder community for over 20 years. As you Patient Affairs Liaison, my role is non-sales non-promotional and I am here to answer any questions regarding, resources, education and product information reactively.
UC San Diego Health Hemophilia and Thrombosis Treatment Center (HTTC), CIBD, and LA Ortho will host a Family Day filled with fun interactive activities and keynote speakers from their extraordinary healthcare providers on various topics. The following services will be provided at Family Day: childcare, free parking, and lunch!
Get a Hand – Lend a Hand!
Join us for our Infusion Training Program in partnership with Rady Children’s Hospital HTTC & UC San Diego Health HTTC. This educational initiative is designed to make infusion easier for both patients and their caregivers. In a relaxed setting and with direction from licensed medical professionals, patients can practice the technique of self-infusion and caregivers can learn to administer home infusions for others. Light breakfast and boxed lunch provided. Rock climbing to follow.
Practical Application All skill levels welcome. Training will consist of what you need to know to self-infuse, determining readiness for self-infusion, safety precautions, and staying organized.
Training will be offered by a team of treatment center nurses on cuffs, practice arms and one-on-one self-infusion. Training to include Sub-Q injections.
Already know how to self-infuse? Come join us to brush up on safety tips and hone your skills.
DATE February 8, 2020
TIME 10:00am – 1:30pm
LOCATION Mesa Rim – Mira Mesa
10110 Mesa Rim Road
San Diego, CA 92121
10:00 – 10:30am Registration
10:30 – 11:30am Program & Infusion Training
11:30 – 12:00pm Closing and Box Lunch
12:00 – 1:30pm Rock Climbing
REGISTRATION Registration for this event is now closed as we have reached capacity. Please look out for our next training in the fall.
Learn to better advocate for yourself personally, professionally and politically. Join us for our annual Advocacy Forum. Attendees will have the opportunity to learn about what advocacy is, the importance of being a self-advocate, and how to politically advocate at the local, state and national levels. This event is open to all members of the bleeding disorders community, their immediate family members and caregivers.
DATE | TIME(Fecha | Hora)
Saturday, February 25, 2023 | 9:00AM – 2:00PM Location: San Diego Zoo Safari Park Venue: Hunte Nairobi Pavilion
San Diego Zoo Safari Park 15500 San Pasqual Valley Rd. Escondido, CA 92027
Parking: Complimentary parking for ONE car per registered family. Update 2.15.23: Parking passes have been emailed to all registered attendees.
Weather: 51 | Rain (please plan attire accordingly; venue is covered)
CHILDCARE (cuidado de ni´ños)
Complimentary childcare will be provided for children ages 4-12 only. Children will participate in a tram tour and a behind the scenes animal presentation. Young adults 13 and older are expected to participate in the educational program. Children under 4 are welcome to stay with their parents or please make alternate arrangements.
Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.
Join us in-person for an evening of education. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members.
DATE | TIME (Fecha | Hora)
Thursday, March 16, 2023 | 6:00PM – 8:00PM
Location: Puesto (Mission Valley) 5010 Mission Center Rd. San Diego, CA 92108
PROGRAM LANGUAGE (Idioma del programa)
Presented in English | Presentado en ingles
“Sounds Familiar?: A thought-provoking team competition and discussion based on familiar hemophilia challenges“
100 points are on the board. Survey says?! Join the bleeding disorders community and BioMarin for this fun, interactive program where two teams will play for bragging rights and learn what others have said their top challenges are in living with severe hemophilia A. Will we agree, disagree or land somewhere in the middle with the trials and tribulations faced by ourselves or loved ones? There’s only one way to find out. Come play, join the conversation and express yourself with us—Game on!
Billy Duckworth Senior Account Manager – Hemophilia, BioMarin
6:00 PM Arrive at (Location TBD) 6:15 PM Dinner Begins 6:30 PM Welcome & Program Begins 8:00 PM Program Concludes
Registration for this program will close on March 16, 2023
Thank you to our sponsor for partnering with us to make this educational program possible.
The National Hemophilia Foundation (NHF) will be hosting its annual Washington Days advocacy event as a virtual experience this year.
NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage and access to care.
Registration opportunities and Issues will be announced soon.
DATE | LOCATION
March 8-10, 2023 | Washington D.C.
Please click here for more information on how to register.
Please address any additional registration or housing questions to: