All posts by Nooshin Kosar

Camp Dragonfly

ABOUT CAMP DRAGONFLY

HASDC’s Camp Dragonfly has been serving the teens of San Diego and Imperial Counties since for over 10-years. Camp Dragonfly is an outdoor adventure summer camp, hosted by the Hemophilia Association of San Diego County in partnership with Rady Children’s Health Hemophilia & Thrombosis Treatment Center. Camp Dragonfly serves campers affected with hemophilia, von Willebrand’s disease, platelet disorders, and other rare bleeding disorders from San Diego and Imperial Counties. 

Come experience the beauty of the South Fork of the American River, and the excitement, challenge and connection to nature that comes with whitewater rafting. This is a memorable adventure, perfect for those who have spent time on the river before or novice paddlers. We will be tent camping for six days and five nights in Lotus, CA. Along with rafting, participants will be sleeping under the stars, cooking all meals in their full outdoor kitchen, enjoying group activities and nightly campfires. Please note: there will be accessible bathrooms but no showers.

WHO CAN ATTEND CAMP?

HASDC’s Camp Dragonfly is for teen campers, ages 14-18, diagnosed with a bleeding disorder (given priority), carriers and their siblings. Campers must be 14-years old by the first day of camp in order to attend. Siblings must attend with their affected sibling in order to attend. Campers diagnosed with a bleeding disorder must independently manage all personal care and mobility, which includes being able to self-infuse OR administer factor product. Those living within San Diego & Imperial Counties will be given priority.

WHY ATTEND CAMP?

Camp Dragonfly provides teens with the tools they need to overcome the challenges presented to them by their disorder as well as connect with peers, gain leadership skills, test personal limits and the opportunity to commune with nature. By attending Camp Dragonfly, campers will experience camping and an outdoor program which challenges at both the individual and group levels.

Professional medical staff from Rady Children’s Health Hemophilia & Thrombosis Treatment Center are on site for duration of the camp program.

DATES & LOCATION

Monday, July 13 – Saturday, July 18, 2026
ETC River Camp – Lotus, CA

TRAVEL DETAILS

July 13, 2026: Attendees will travel via plane from San Diego to Sacramento (mid-morning)
July 18, 2026: Attendees will travel via plane from Sacramento to San Diego (afternoon)

REQUIRED FORMS

Please make sure you have all the required camper information, including health information and documents, provided below, ready to submit either in your application or via email to HASDC.

You will need to provide and/or upload the following documents:

  • HASDC Health Form: to be completed by your local Hemophilia Treatment Center (HTC). Date of your child’s last comprehensive visit with the HTC but be within 12-months of the first day of camp (July 13) OR completed by primary care physician (if child does not have a bleeding disorder) showing physical examination within 12-months of the first day of camp (July 13). Please reach out to your HTC and request they complete our camper Health Form.
  • Medications: complete list of medications your child takes (includes but not limited to factor, other prescription meds, over the counter medications, inhalers, etc.)
  • Insurance Card: copy of your child’s insurance card, front and back. 
  • Immunization Records: a copy of your child’s immunization records, signed and validated by your primary care physician. The following immunizations/vaccinations are required: DTap (Diphtheria/Tetanus/Pertussis), MMR (Measles/Mumps/Rubella), Measles, Varicella (chicken pox), Polio, Hepatitis A & B, and COVID-19 (highly recommended). 
  • ETC Health & Liability Release: please complete this form and upload when asked in the application.

CAMP COST

Registration Fee
Each camper is to pay a non-refundable $50.00 registration fee. Additional camp costs are underwritten by grants and funds raised by HASDC.

Luggage Fee
If you plan to check luggage, please expect to pay $35 each way ($70 total).

CAMPER REGISTRATION

If you have questions regarding Camp Dragonfly or your camper’s application, please contact our office.

THANK TO OUR SPONSORS

Thank you to our sponsors and supporters for making camp possible this year.

Camp Monarch: Family Retreat Weekend

Join us for Camp Monarch: Family Retreat Weekend. Camp Monarch celebrates the strength, resilience, and transformation found within every family living with a bleeding disorder. Like the monarch butterfly, whose remarkable journey is made possible through perseverance and generations working together, families come together at camp to learn, connect, and grow. Through shared adventures, meaningful conversations, and lasting friendships, Camp Monarch is a place where every family finds support, belonging, and the confidence to continue their bleeding disorder journey together.

Set against the scenic backdrop of Julian, this retreat offers the perfect balance of fun and education. Families can look forward to classic camp programming provided by the YMCA, including archery, campfires, team-building activities, and more — all adapted to be inclusive and safe for individuals with bleeding disorders.

In addition to the outdoor adventure, the retreat will feature interactive educational sessions for parents. Topics may include:

  • Pipeline – New Therapies
  • Understanding Hympavzi
  • Mental Wellness and Coping Strategies
  • Infusion Training 

WHY ATTEND?

Opportunities for peer connection, small group discussions, and guided support circles will help build lasting relationships and strengthen our shared community.

This retreat is a unique opportunity to blend meaningful education with memorable experiences—all in a supportive and inclusive environment. Whether you’re newly diagnosed or have been managing a bleeding disorder for years, there’s something here for everyone.

WHO CAN ATTEND?

Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area (San Diego & Imperial Counties). Due to limited space, we are unable to accept event registrations for those without a bleeding disorder in their immediate family, as well as family of volunteers, exhibitors, and sponsors.

WHAT TO EXPECT

Families will stay together in comfortable onsite cabins nestled among the pines at YMCA Camp Marston and enjoy a variety of classic camp activities designed for the whole family. From archery, hiking, and arts & crafts to team games, campfires, and outdoor adventures, every activity is an opportunity to have fun together while creating lasting memories.

This retreat is all about community. You’ll have the opportunity to connect with other families who understand the unique challenges and strengths of living with a bleeding disorder. Through shared meals, family activities, and educational sessions, there will be plenty of time to build friendships, share experiences, and strengthen the supportive connections that extend well beyond the weekend. Whether you’re attending for the first time or returning to reconnect with familiar faces, you’ll leave with new memories, valuable resources, and a stronger sense of belonging.

Please note: This is a family-centered event and childcare will not be provided. Programming is designed for families to participate in together, and all children must be supervised by a parent or guardian at all times.

EVENT DETAILS

Friday, August 21 – Sunday, August 23, 2026
Venue: YMCA Camp Marston

VENUE ADDRESS
YMCA Camp Marston
4761 Pine Hills Rd.
Julian, CA 92036

REGISTRATION | CHECK-IN
4:00PM – 6:00PM

PARKING
YMCA Camp Marston parking lot.

FAMILY WEEKEND COST

Each family is to pay a non-refundable $50.00 registration fee. Additional retreat costs are underwritten by grants and funds raised by HASDC.

LODGING

You will be staying in the camp’s traditional cabins which sleep up to 12 people per room. Each cabin has a bathroom inside. If you wish to share a cabin with a specific family, there is a spot in the registration where you can indicate so, otherwise assignments will be made at random.

MEALS

Meals are served buffet-style with a fruit and cereal bar at breakfast, and a salad bar at lunch and dinner. Five meals are included in your stay. (Friday dinner—Sun breakfast) The YMCA caters to vegetarians and, with prior notification, they can accommodate most food allergies and dietary needs. Please refer to the agenda for meal times.

ARRIVAL/DEPARTURE

Arrival
Friday, August 21 at 4:00PM

Departure
Sunday, August 23 at 12:00PM

AGENDA

Activities are subject to change.

Friday, August 21, 2026

TIMEPROGRAM AGENDA
4:00PM – 6:00PMRegistration Open
Please check in at Camp Office (HASDC welcome table)
6:00PM – 7:00PMDinner (Dining Hall)
7:45PM – 8:00PMCookies! (Dining Hall)
8:00PM – 8:30PMNight Hike (led by YMCA)
10:00PMQuiet Hours Begin

Saturday, August 22, 2026

TIMEPROGRAM AGENDA
8:00AMBreakfast
Dining Hall
8:45AMSafety & Activity Orientation
9:30AM – 11:45AMPresentation by Takeda (Upper Holmes)
Presentation by TBD (Upper Holmes)
Open Activities
Arts & Crafts
Archery Range
Climbing Tower
Marksmanship Range
Paintball Slingshots
Self-led Activities: nature hike, Ga Ga, Bouldering Wall, Basketball, Horseshoes, Lower Holmes (ping pong)
12:00PMLunch (Dining Hall)
2:00PM – 4:45PMOpen Activities
Arts & Crafts
Archery Range
Climbing Tower
Marksmanship Range
Paintball Slingshots
Self-led Activities: nature hike, Ga Ga, Bouldering Wall, Basketball, Horseshoes, Lower Holmes (ping pong)
4:00PM – 5:00PMUnderstanding Hympavzi (Upper Holmes)
5:30PMDinner (Dining Hall)
7:00PMCampfire/Skit Night
9:00PMQuiet Hours Begin

Sunday, August 23, 2026

TIMEPROGRAM AGENDA
8:00AMBreakfast (Dining Hall)
8:30AM – 9:30AMPack, Clean and Vacate Lodges
9:30AM – 10:30AMPresentation by Rady Children’s Health HTTC (Upper Holmes)
Open Activities
Arts & Crafts
Archery Range
Climbing Tower
Marksmanship Range
Paintball Slingshots
Self-led Activities: nature hike, Ga Ga, Bouldering Wall, Basketball, Horseshoes, Lower Holmes (ping pong)
12:00PMDeparture from Camp Marston

REGISTRATION

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

PACKING LIST

You will receive a complete packing list and final details to the primary registrants email once your registration is received.

WAITLIST

If you are registering and live outside of HASDC’s service area (San Diego & Imperial Counties), you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SMS SHARING DISCLOSURE

No mobile information will be shared with third parties/affiliates for marketing/promotional purposes.

SPONSORS

Thank you to our supporters and sponsors for making this event possible.

Familia de Sangre

ABOUT CONFERENCE

The four California bleeding disorders organizations invite you and your family to join us for the 10th Annual Familia de Sangre, a two-day conference on blood disorders with all programming presented in Spanish.

Educational sessions and networking opportunities covering healthcare, education, mental health and support services.


Las cuatro fundaciones de trastornos sanguíneos de California lo invitan cordialmente a usted y a su familia a la 10o conferencia anual, Familia de Sangre, una conferencia de dos días sobre desórdenes sanguíneos con toda la programación presentada en español.

Sesiones educativas y oportunidades de networking que cubrirán asistencia médica, educación, salud mental y servicios de apoyo.

DATE

September 4-6, 2026

Hilton Anaheim
777 W Convention Way
Anaheim, CA 92802

REGISTRATION

Join us at the largest all Spanish speaking bleeding disorders conference in the nation.

Familia de Sangre is the largest bleeding disorders conference completely in Spanish. The conference will take place September 4-6 at the Hilton Anaheim in Anaheim, CA. 


Acompáñenos en la conferencia sobre trastornos hemorrágicos de habla hispana más grande del país.

Familia de Sangre es la conferencia más grande sobre trastornos sanguíneos completamente en español. La conferencia será del 4 al 6 de septiembre en el Hilton Anaheim en Anaheim, CA. 

HASDC’s SCHOLARSHIP APPLICATION

The Hemophilia Association of San Diego County will be providing limited local scholarships for this year’s Familia de Sangre Conference. Submitting a scholarship application through the Hemophilia Association of San Diego County DOES NOT guarantee acceptance. As scholarship funding is limited, applications will be reviewed by HASDC and acceptance will be dependent on the order the application is received and that ALL required fields are complete, accurate, and submitted. Priority will be given to FIRST TIME attendees. 

Eligibility
Must live in San Diego or Imperial Counties, have someone in your immediate family with a diagnosed bleeding disorder and currently be in HASDC’s database.

Application Deadline: Monday, May 25, 2026

Applications are now closed.

Unite Walk

Welcome to the Hemophilia Association of San Diego County’s 13th Annual Unite for Bleeding Disorders Walk. We look forward to getting together at Liberty Station – NTC Park to raise vital funds for the San Diego bleeding disorders community. 

DATE | TIME

Saturday, October 24, 2026 | 9:00AM – 1:00PM

WALK DAY

Schedule of Events

  • 9:00AM: Registration will open, exhibit booths, refreshments
  • 10:00AM: Unite for Bleeding Disorders Ceremony will begin. 
  • 10:30AM: 5k Unite Walk will begin! 

Recognitions & Prizes

  • Top Fundraising Team
  • Top Fundraising Industry Team
  • Top Individual Fundraiser

Individual participants who raise or make a minimum donation of $25 will receive a Unite for Bleeding Disorders Walk T-Shirt (while supplies last) and a VIP wristband for lunch. 

HOW TO PARTICIPATE

Join us in person! Register and join us at Liberty Station Park on Saturday, October 24 and walk a 5k. 

Support HASDC! More than ever people living with bleeding disorders in San Diego and Imperial Counties are in need of our support. Make a team or join an existing team. Reach out to family or friends to support our mission and consider making a personal donation if you are able. 

DONATE TODAY

When making a donation via check, please make checks payable to Hemophilia Association of San Diego County. Make sure to include the name of the Team or Individual Walker you are supporting. 

WALKER | TEAM REGISTRATION

Registration for this event will open later this year.

SPONSORS

Thank you to the Unite Walk program National Sponsors for your continued support.

Factor & Frost

SAVE THE DATE

‘TIS THE SEASON TO CELEBRATE COMMUNITY!

Join us for our annual end of the year gathering and celebration of the season. Factor & Frost is open to all individuals with a bleeding disorder and their immediate family members.

DATE | TIME

Date: Saturday, December 12, 2026
Time: 11:00AM – 2:00PM
Location: TBD

PROGRAM AGENDA

Coming soon.

REGISTRATION

Registration for this event will open later this year.

Please note: our educational programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. If you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSORS

Thank you to our sponsors for partnering with us to make this end of the year program possible.