Join us for a weekend of conversations, connections and support. If you are a gentleman affected by a bleeding disorder, please join us at this special event designed for you. All men ages 18+ are encouraged to attend – diagnosed and caregivers living in HASDC’s service area.

You will have the opportunity to connect with friends old and new, meet and interact with staff from UC San Diego Health HTTC, as well as network with industry representatives at the exhibitor booths.

DATE

Saturday, June 29 – Sunday, June 30, 2024

REGISTRATION
Registration table opens at 11:00AM

LOCATION
HYATT REGENCY Mission Bay Spa and Marina
1441 Quivira Rd.
San Diego, CA 92109

PARKING
Parking is available in the hotel self-parking lot.

AGENDA

Saturday, June 29, 2024

Sunday, June 30, 2024

REGISTRATION & FEE

Registration for this event is now closed.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSORS

Thank you to our sponsors who have made this program possible.

HASDC’s Camp Dragonfly has been serving the teens of San Diego and Imperial Counties since 2014. Camp Dragonfly is an outdoor adventure summer camp, hosted by the Hemophilia Association of San Diego County in partnership with Rady Children’s Hospital Hemophilia & Thrombosis Treatment Center. Camp Dragonfly serves campers affected with hemophilia, von Willebrand’s disease, platelet disorders, and other rare chronic bleeding disorders from San Diego and Imperial Counties. 

WHO CAN ATTEND CAMP?

HASDC’s Camp Dragonfly is for our teen campers, ages 14-18, diagnosed with a bleeding disorder (given priority), carriers and their siblings. Campers must be 14-years old on the first day of camp in order to attend. Siblings must attend with their affected sibling in order to attend. Campers diagnosed with a bleeding disorder must independently manage all personal care and mobility, which includes being able to self-infuse or administer factor product. Those living within San Diego & Imperial Counties will be given priority.

WHY ATTEND CAMP?

Camp Dragonfly provides teens with the tools they need to overcome the challenges presented to them by their disorder as well as connect with peers, gain leadership skills, test personal limits and the opportunity to commune with nature. By attending Camp Dragonfly, campers will experience camping and an outdoor program which challenges at both the individual and group levels.

Professional medical staff from Rady Children’s Hospital Hemophilia & Thrombosis Treatment Center are on site for duration of the camp program.

CAMP COST

Each camper is to pay a non-refundable $45.00 registration fee. Additional camp costs are underwritten by grants and funds raised by HASDC’s Unite for Bleeding Disorders Walk.

DATES | LOCATION

Monday, July 8 – Friday, July 12, 2024
ETC River Camp – Lotus, CA

ABOUT & TRAVEL

Join us as we return to rafting on the South Fork of the American River. Come experience the beauty of the South Fork, and the excitement, challenge and connection to nature that comes with whitewater rafting. This is a memorable adventure, perfect for those who have spent time on the river before or novice paddlers.

We will be tent camping for five days and four nights at the ETC (Environmental Traveling Companions) River Camp’s riverfront property located in Lotus, CA. Along with rafting, participants will be sleeping under the stars (tent optional), cooking all meals in their full outdoor kitchen, enjoying group activities and nightly campfires. Please note: there will be accessible bathrooms but no showers.

July 8, 2024: Attendees will travel via plane from San Diego to Sacramento
July 12, 2024: Attendees will travel via plane from Sacramento to San Diego

REQUIRED FORMS

Please make sure you have all the required camper information, including health information and documents, provided below, ready to submit either in your application or via email to HASDC.

You will need to provide and/or upload the following documents:

• HASDC Physicians Form: to be completed by your local Hemophilia Treatment Center (HTC). Date of your child’s last comprehensive visit with the HTC but be within 12-months of the first day of camp (July 8) OR completed by primary care physician (if child does not have a bleeding disorder) showing physical examination within 12-months of the first day of camp (July 8). 
• Medications: complete list of medications your child takes (includes but not limited to factor, other prescription meds, over the counter medications, inhalers, etc.)
• Insurance Card: copy of your child’s insurance card, front and back. 
• Immunization Records: a copy of your child’s immunization records, signed and validated by your primary care physician. The following immunizations/vaccinations are required: DTap (Diphtheria/Tetanus/Pertussis), MMR (Measles/Mumps/Rubella), Measles, Varicella (chicken pox), Polio, Hepatitis A & B, and COVID-19 (highly recommended). 
• ETC Health & Liability Release: please complete this form and upload when asked in the application.

CAMPER REGISTRATION

Registration for our teen camp is now closed.
If you have questions regarding Camp Dragonfly or your camper’s application, please contact our office.

STAFF REGISTRATION

HASDC will email potential staff directly with registration instructions.

PROGRAMMING PARTNERS

In addition to working with Environmental Traveling Companions (ETC) for our river trip, we are excited to be partnering with GutMonkey to bring you a unique and interactive experience.  Thank you GutMonkey for partnering with HASDC to provide programming and camp support for Camp Dragonfly this year.

THANK TO OUR SPONSORS

Thank you to our sponsors and supporters for making camp possible this year.

REGISTER TODAY!

HASDC’s Camp Firefly has been serving the youth of San Diego and Imperial Counties for over 20 years. Camp Firefly is a weekend camp experience hosted by the Hemophilia Association of San Diego County in partnership with Rady Children’s Hospital Hemophilia & Thrombosis Treatment Center. Camp Firefly serves campers affected with hemophilia, von Willebrand’s disease, platelet disorders, and other rare chronic bleeding disorders from San Diego and Imperial Counties. 

Join us on a wildlife adventure! Pack up your “trunk” for a sleepover adventure at the San Diego Zoo Safari Park. All sleepovers include camp activities, an after-hours look at the wild lives of wildlife, guided walks, s’mores around the campfire, and more. Join us as we connect with peers and learn self-infusion techniques, while exploring the park after dark.

*Camper Family Picnic
Join us the next day, Sunday, July 28, at the San Diego Bay from 11:00AM – 3:00PM, for water activities and lunch, at our camper family picnic. This portion of camp is open to registered campers and their families. Must have a child ages 7-14 to attend our camper family picnic. A parent/guardian must be in attendance; no dropping off of campers. See below for more details.

WHO CAN ATTEND CAMP?

HASDC’s Camp Firefly is for campers, ages 7-14, diagnosed with a bleeding disorder (given priority), carriers and their siblings. Campers must be 7-years old on the first day of camp in order to attend. Siblings must attend with their affected sibling in order to attend. Campers must independently manage all personal care and mobility. Those living within San Diego & Imperial Counties will be given priority.

WHY ATTEND CAMP?

Camp Firefly provides youth with the tools they need to overcome the challenges presented to them by their disorder as well as lead healthy, vibrant and more importantly, full lives. By attending Camp Firefly, campers will gain independence, connect with peers, experience bleeding disorder education and attend self-infusion training provided by our local HTTC staff. Learning to self-infuse is an important rite of passage for children living with a bleeding disorder as most often their parents have performed this task since they were infants. Learning self-infusion is a critical step towards gaining independence.

Medical staff from Rady Children’s Hospital Hemophilia & Thrombosis Treatment Center are on site for duration of the camp program.

CAMP COST

Each camper is to pay a non-refundable $25.00 registration fee. Additional camp costs are underwritten by grants and funds raised by HASDC’s Unite for Bleeding Disorders Walk.

DATES

July 26-27, 2024 | Roar & Snore (4:00PM – 12:30PM)

LOCATION
San Diego Zoo Safari Park
15500 San Pasqual Valley Rd.
Escondido, CA 92027

July 28, 2024 | Camper Family Picnic* (11:00AM – 3:00PM)

LOCATION
The Point
1010 Santa Clara Place
San Diego, CA 92109

Items to Bring:

• Beach Chair
• Towel
• Sunscreen
• Swimsuit or clothes for water activities

CAMPER DROP OFF/PICK UP FOR ROAR & SNORE

Friday, July 26, 2024 | 4:00PM Camper Drop-Off
Campers to be dropped off by guardian at the San Diego Zoo Safari Park.

Saturday, July 27, 2024 | 12:30PM Camper Pick-Up
Campers to be picked up by guardian at the San Diego Zoo Safari Park.

REQUIRED FORMS

Please make sure you have all the required camper information, including health information and documents, provided below, ready to upload, before completing your application.

You will need to provide and/or upload the following documents:

• Medical History
• Insurance Card: copy of your child’s insurance card, front and back. 
• $25 Non-Refundable Application Fee: be ready to process your application fee via credit card at the end of the application. 

CAMPER REGISTRATION

Camper registration is now closed.

CAMP SPONSORS & SUPPORTERS

Thank you to our sponsors & supporters who make camp possible.

REGISTER TODAY!

Join us for a day of conversations, connections and support. If you are a woman or teen affected by a bleeding disorder, please join us at this special event designed for you. All women and girls ages 14+ are encouraged to attend – diagnosed, caregivers, carriers, undiagnosed, living in HASDC’s service area.

You will have the opportunity to connect with friends old and new, meet with staff from Rady Children’s Hospital HTTC and UC San Diego Health HTTC, as well as network with industry representatives at the exhibitor booths.

DATE | TIME

Saturday, August 10, 2024 | 9:00AM – 3:00PM

VENUE

Courtyard Marriott Liberty Station
2592 Laning Road
San Diego, CA 92106

PARKING
Free parking is available in the hotel parking lot.

AGENDA

Saturday, August 10, 2024

REGISTRATION

Registration for this event is now closed.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSORS

Thank you to our sponsors who have made this program possible.

Join us at a Padre Game for this month’s Food for Thought: an HASDC Educational program! Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Must live in San Diego or Imperial Counties, have someone in your immediate family with a diagnosed bleeding disorder and currently be in HASDC’s database. Space for this event is limited.

DATE | TIME

Tuesday, August 13, 2024
5:00PM – 9:00PM

VENUE

The Westin San Diego Gaslamp Quarter
910 Broadway Circle
San Diego, CA 92101

PARKING
Complimentary parking at hotel valet; (1) car per registered family (if you choose to move your car, cost is on your own).

MEAL
Food vouchers will be distributed to purchase dinner inside the ballpark.

TICKETS
Tickets will be provided upon arrival for the program at The Westin San Diego Gaslamp Quarter. Must be on time and attend program to receive game tickets.

Petco Park Bag Policy

PROGRAM LANGUAGE

Presented in English | Presentado en ingles

TOPIC (Tema)

“Kinesiology Taping“
Dr. Mike Zolo will be presenting on Kinesiology Taping – an interactive presentation where demonstrations of how to tape the shoulder, elbow, wrist, neck, low back, knee, and ankle will be performed while discussing the indications during acute injury.

AGENDA (Agenda)

5:00PM Arrive at the Westin San Diego Gaslamp Quarter
5:15PM Program Begins
6:00PM Walk Over to Petco Park
6:40PM Baseball Game Begins
9:00PM Event Concludes

REGISTRATION (Inscripción)

Registration for this event is now closed.
This event is full.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our supporter for partnering with us to make this event possible.

Join us for Food for Thought: an HASDC Educational Dinner. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. Priority registration will be given to those with Hemophilia B. 

DATE | TIME (Fecha | Hora)

Wednesday, August 21, 2024 | 6:00PM – 8:00PM
Location: Seasons 52

Seasons 52 – Napa Room
4505 La Jolla Village Drive
San Diego, CA 92122

PARKING
Public parking in lot outside of restaurant. Must get validation inside Restaurant. Without validation, parking is $2.

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en inglés

TOPIC (Tema)

“HEMGENIX: Steps to Treatment”
Join us for an education program where you will learn about the science behind gene therapy. We will review the steps to gene therapy treatment from the initial discussion with your provider to determining eligibility and considerations through treatment for the first gene therapy approved for Hemophilia B.

SPEAKER (Presentador)

Amber Campbell, RN BSM
Patient Resource Navigator

Amber Campbell lives in Denver, CO with her two children Dylan and Elliott where she has been involved in the hemophilia community since 2014. Amber is a former HTC RN who worked at the Aurora hemophilia and thrombosis treatment center affiliated with Children’s Hospital and University Hospital Colorado. She also initiated the HTC’s RN role for the CHCO pediatric stroke program. Priorto working at the Colorado HTC, she worked as a hematology/oncology/BMT nurse in Tampa and Denver starting in 2008. After her time at the HTC, she was a home infusion Director of Nursing providing home education and infusions to the bleeding disorder community and was additionally responsible for training all nurses west of the Mississippi on how to care for bleeding disorder patients. Hemophilia B holds a special place in Amber’s heart, so she is thrilled to be a part of CSL Behring’s gene therapy program and to have the opportunity to know more of the hemophilia community in the Western region. Amber loves gardening, cooking, and traveling during her free time.

AGENDA (Agenda)

5:45 PM Arrive at Seasons 52 (please arrive on time)
6:00 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

Registration for this program is closed.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

REGISTER TODAY!

The Center for Bleeding and Clotting Disorders at UC San Diego Health (CBCD), the Hemophilia Association of San Diego County (HASDC), Rady Children’s Hospital HTTC, Center for Inherited Blood Disorders (CIBD), and the LA Orthopedic Hemophilia Treatment Center (LA Ortho) extend a cordial invitation to you and your family to participate in our Education Day.

Join us for an event that is dedicated to offering educational sessions focusing on overall patient wellness, their families, and caregivers. Enjoy complimentary breakfast and lunch while meeting local treatment center providers, connecting with other patients and hearing their stories, and learning about blood clotting factors from pharmaceutical partners.

DATE | TIME

Saturday, October 12, 2024
9:00AM – 4:00PM

VENUE

Estancia La Jolla Hotel & Spa
9700 N Torrey Pines Rd.
La Jolla, CA 92037

PARKING
Self-parking is available on-site. Validation will be provided during the event. Drop-off is available at the Circular Drive (turn left at the hotel entrance).

AGENDA

CHILDCARE

Complimentary childcare will be provided for children ages 3-12 only. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

REGISTRATION

Registration Deadline: October 9, 2024

SPONSORS

Thank you this year’s program sponsors.

Join us for Food for Thought: an HASDC Educational Dinner. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.

This program is only open to those with Hemophilia A. 

DATE | TIME (Fecha | Hora)

Tuesday, October 15, 2024 | 6:00PM – 8:00PM
Location: Seasons 52

Seasons 52 – Napa Room
4505 La Jolla Village Drive
San Diego, CA 92122

PARKING
Public parking in lot outside of restaurant. Must get validation inside Restaurant. Without validation, parking is $2.

PROGRAM LANGUAGE (Idioma del programa)

Presented in Spanish ONLY | Presentado en español

TOPIC (Tema)

“La Vida Pasa y Adíate estará allí cuando esto suceda”
El programa clínico ADVATE de Takeda incluye una presentación de un especialista clínico sénior de Takeda. Este programa proporciona una descripción general de ADVATE y de cómo puede trabajar con su médico para ayudarle a personalizar su tratamiento y satisfacer sus necesidades y estilo de vida únicos. 

SPEAKER (Presentador)

Annabelle Garcia, MPH
Community Education Specialist

Annabelle Garcia received her Bachelor in Community Health at the Department of Public Health Sciences from New Mexico State University in Las Cruces, New Mexico. After graduating, she moved to Phoenix, AZ where she was the Lead Educator for the Diabetes Prevention Program and Nutrition educator for the Gila River Indian Community. Implementing and educating on a healthy lifestyle for children, parents, and elders. She is passionate about educating communities and equipping them with the right tools to live a healthy and active lifestyle. Annabelle joined Takeda as a Community Education Specialist (CES) where she has been providing health education for the Hemophilia & Bleeding Disorder Community in Spanish.

AGENDA (Agenda)

5:45 PM Arrive at Seasons 52 (please arrive on time)
6:00 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

Registration will close on Monday, October 14, 2024

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Welcome to the Hemophilia Association of San Diego County’s 11^th Annual Unite for Bleeding Disorders Walk. We look forward to getting together at Liberty Station – NTC Park to raise vital funds for the San Diego bleeding disorders community. 

DATE | TIME

Saturday, October 26, 2024 | 9:00AM – 1:00PM

WALK DAY

Schedule of Events

• 9:00AM: Registration will open, exhibit booths, refreshments
• 10:00AM: Unite for Bleeding Disorders Ceremony will begin. 
• 10:30AM: 5k Unite Walk will begin! 

Recognitions & Prizes

• Top Fundraising Team
• Top Fundraising Industry Team
• Top Individual Fundraiser

Individual participants who raise or make a minimum donation of $25 will receive a Unite for Bleeding Disorders Walk T-Shirt (while supplies last) and a wristband for lunch. 

HOW TO PARTICIPATE

Join us in person! Register and join us at Liberty Station Park on Saturday, October 26 and walk a 5k. 

Join us virtually. Walk 11 miles! Register as a virtual walker, start raising money as you walk, run, hike or bike 11 miles at home, in your neighborhood or around town safely. The great thing about being a virtual walker, is you can pick any location, time, and length. This is also a great chance to invite relatives or friends to join you and experience the San Diego Unite Walk virtually with our community. 

Support HASDC! More than ever people living with bleeding disorders in San Diego and Imperial Counties are in need of our support. Make a team or join an existing team. Reach out to family or friends to support our mission and consider making a personal donation if you are able. 

DONATE TODAY

When making a donation via check, please make checks payable to Hemophilia Association of San Diego County. Make sure to include the name of the Team or Individual Walker you are supporting. 

Checks may be sent to:
Hemophilia Association of San Diego County
3550 Camino Del Rio North, Suite 105
San Diego, CA 92108

WALKER | TEAM REGISTRATION

SPONSORS

Thank you to the Unite Walk program National Sponsors for your continued support.

REGISTER TODAY!

Join the Hemophilia Council of California (HCC) and HASDC for Fall Advocacy Days. If you’ve been interested in advocacy, but the trip to Sacramento is too far, sign up today for Fall Advocacy Days to speak to the legislators in your backyard! 

• Meet your local legislators
• Have your meetings closer to home
• Learn to advocate for the community
• Make a difference!

DATE

November 7-8, 2024

VENUE

By region, exact location TBD

AGENDA

November 7, 2024
Evening advocacy training.

November 8, 2024
One to two meetings with your local senator and/or assemblymember.

REGISTRATION

Registration Deadline: October 18, 2024