Category Archives: Events

CSL Behring

WHO IS CSL BEHRING?

CSL Behring is a global biotherapeutics leader driven by its promise to save lives. Focused on serving patients’ needs by using the latest technologies, we develop and deliver innovative therapies that are used to treat coagulation disorders, primary immune deficiencies, hereditary angioedema, respiratory disease, and neurological disorders. The company’s products are also used in cardiac surgery, burn treatment and to prevent hemolytic disease of the newborn. CSL Behring operates one of the world’s largest plasma collection networks, CSL Plasma. For inspiring stories about the promise of biotechnology, visit Vita CSLBehring.com/vita and follow us on Twitter.com/CSLBehring.

WEBSITE

Learn more about CSL Behring

BROCHURE

CONTACT US

Denise Atkinson-Thomas
Manager, Coagulation Products
E: Denise.Atkinson@cslbehring.com
P: 858-344-2691

Advocacy Forum

Learn to better advocate for yourself personally, professionally and politically. Join us for our annual Advocacy Forum. Attendees will have the opportunity to learn about what advocacy is, the importance of being a self-advocate, empowerment, how to politically advocate at the local, state and national levels and current state of health insurance in California.

This year’s event will include a session on Infusion Training provided by our local Hemophilia Treatment Centers! 

*Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area.

DATE | TIME (Fecha | Hora)

Saturday, February 17, 2024 | 9:00AM – 2:00PM
Location: San Diego Zoo Safari Park
Venue: Kijamii Overlook (CLICK HERE FOR MAP)

San Diego Zoo Safari Park
15500 San Pasqual Valley Rd.
Escondido, CA 92027

Parking: Complimentary parking for ONE car per registered family.
Weather: Sunny/63 (please plan attire accordingly; venue is covered but has open walls)

CHILDCARE (cuidado de ni´ños)

Complimentary childcare will be provided for children ages 3-12 only. Children will participate in a tram tour. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements.

Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

AGENDA

REGISTRATION (Inscripción)

Registration for this event is now closed.
We are unable to take late registration requests.

*WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

SPONSORS (Patrocinadores)

Thank you to our sponsors for making this program possible.

Food for Thought

Join us for Food for Thought: an HASDC Educational Dinner. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

DATE | TIME (Fecha | Hora)

Tuesday, February 20, 2024 | 6:00PM – 8:00PM
Location: Seasons 52 (UTC Mall)

Seasons 52 (UTC Mall) – Napa Room
4505 La Jolla Village Drive
San Diego, CA 92122

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en ingles

TOPIC (Tema)

HEMGENIX (etranacogene dezaparvovec-drlb): Gene Therapy Education Program
This educational program offers you and your family members the opportunity to:

  • Learn about HEMGENIX, the first and only gene therapy approved for Hemophilia B.
  • Gain insightful information and deepen your understanding of HEMGENIX through a LIVE Q&A session.
  • Ask questions and receive new resources on gene therapy.

SPEAKERS (Presentadores)

Richard Lemons, MD, PhD
University of Utah

Denise Atkinson
Manager, Coagulation Products, CSL Behring

AGENDA (Agenda)

6:00 PM Arrive at Seasons 52
6:15 PM Dinner Begins
6:30 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

Registration for this program will close on Sunday, February 18, 2024

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

NHF’s Washington Days

 

The National Hemophilia Foundation (NHF) will be hosting its annual Washington Days advocacy event as a virtual experience this year. 

NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage and access to care.

Registration opportunities and Issues will be announced soon.

DATE | LOCATION

March 8-10, 2023 | Washington D.C.

REGISTRATION

Please click here for more information on how to register.

QUESTIONS

Please address any additional registration or housing questions to:

Alla Vaynshteyn
NHF Meetings Specialist
avaynshteyn@hemophilia.org

For any other concerns, please contact:
advocate@hemophilia.org

HCC’s Future Leaders Program

Join Future Leaders and meet other youth across the State in the bleeding disorders community. Future Leaders find inspiration among other teens to share your voice.  

The Hemophilia Council of California’s (HCC’s) Future Leaders Program provides leadership training and advocacy tools for teens and young adults affected by bleeding disorders. Leading up to their annual Legislative Day, Future Leaders gain understanding and skills on their role in the government process, insurance and programs that support care, educational opportunities, and how to be an effective advocate. Participants hear from statewide and national healthcare leaders, learn self-reliance, connect with their peers, meet with legislators at the State Capitol, have fun and find inspiration to share their voice where it matters most.

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WHO CAN APPLY?

High school students (Grade 9 – 12) who have a bleeding disorder, are a sibling of someone with a bleeding disorder, or child of someone with a bleeding disorder.

DATES

March 13, 2024 | Online Legislative Day Orientation Webinar
March 16-19, 2024 | In Person Program in Sacramento

REGISTRATION

Registration for this program is now closed.

QUESTIONS

For more information or help applying, please email the Hemophilia Council of California at info@hemophiliaca.org or by phone at (916) 572-7771.

HCC’s Legislative Day

Legislative Day, put on and organized by the Hemophilia Council of California, is a chance for members of the bleeding disorders community to come together and meet with key members of the Senate and Assembly to educate them about hemophilia, other co-diagnosis, and issues of concern to the bleeding disorders community. Unite with us in Sacramento to share your story about living with a bleeding disorder. Advocate on issues – such as protecting patient assistance programs important to our community.

 We need your voice to make a difference!

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DATES

March 13, 2024 | Online orientation webinar
March 18, 2024 | In Person Legislative Visits in Sacramento, CA

REGISTRATION

Registration Deadline: Friday, February 9, 2024

TRAVEL TO SACRAMENTO

Please note: you are responsible for booking your own travel to and from Sacramento. Breakfast and lunch will be provided by the Hemophilia Council of California. Please reach out to info@hemophiliaca.org or 916.572.7771 for more information.

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Saturday Sweat

EVENT CANCELLED

Join us this Bleeding Disorders Awareness Month for our Saturday Sweat: an HASDC Mindful Movement event. Our Saturday Sweat event is open to individuals with a bleeding disorder, their immediate family members and friends living in HASDC’s service area.

Please note: Attendees must be 15-years old or older to attend. 

DATE | TIME (Fecha | Hora)

THIS EVENT HAS BEEN CANCELLED
Location: F45 Training Sorrento Valley

F45 Training Sorrento Valley
6765 Mira Mesa Blvd. Suite 148
San Diego, CA 92121

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en ingles

TOPIC (Tema)

Join us for our Saturday Sweat event as we join F45 Training Sorrento Valley for a HIIT style workout. Bring a friend and come workout with us! Moving the body not only improves joint health, but your overall health as well.

Heroes Hollywood Workout
Heroes Hollywood is a 60-minute session designed to get your weekend off to a great start! This workout is a hybrid workout which will consist of 18 stations where you will have 40 seconds of work, 15 seconds of rest, 1 set at each station and 3 laps through the room. There will be a 45-second hydration break between each lap.

SPEAKERS (Presentadores)

Peter Aguero, PT, DPT, RMSK
Physical Therapist III, UC San Diego Health Hemophilia & Thrombosis Treatment Center

Rob MacDonald, LMT
Licensed Massage Therapist, UC San Diego Health Hemophilia & Thrombosis Treatment Center

AGENDA (Agenda)

11:45AM Arrive at F45 Training Sorrento Valley (please arrive early to complete waivers)
12:00PM Heroes Hollywood Workout Begins (no late arrivals)
1:00PM Post Workout Refreshments, PT Demonstration, Massage Therapy benefits
1:30PM Event Concludes

REGISTRATION (Inscripción)

THIS EVENT HAS BEEN CANCELLED

*WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

SPONSOR (Patrocinador)

Thank you to our supporter for partnering with us to make this event possible.