Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

DATE | TIME (Fecha | Hora)

Saturday, January 24, 2026 | 11:00AM – 2:00PM

LOCATION
Vincenzo Cucina + Lounge
550 W Date St. Ste A
San Diego, CA 92101

PARKING
Street parking outside of restaurant.

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en inglés

TOPIC (Tema)

Menopause
Expect the unexpected. End the silence. We will discuss what is happening and how you can manage the changes and symptoms.

SPEAKER (Presentador)

Amber Federizo, DNP
Octapharma

Introducing Dr. Federizo: a trailblazer in women’s health, armed with a doctorate and master’s in nursing education. Her dedication to supporting individuals with bleeding disorders earned her the title of 2018 Humanitarian of the Year from the National Hemophilia Foundation. Currently, as a Clinical Nurse Educator in Hematology at Octapharma USA, she’s making strides in improving care for those in rural and vulnerable communities. Join Dr. Federizo in her mission to change lives.

AGENDA (Agenda)

11:00 AM Arrive at Vincenzo Cucina + Lounge (please arrive on time)
11:15 AM Welcome & Program Begins
2:00 PM Program Concludes

REGISTRATION (Inscripción)

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: minors (under 18-years old) must be accompanied by a parent and/or guardian to attend HASDC programming.

DATE | TIME

Friday, February 27, 2026 | 6:00PM – 8:00PM

LOCATION
Parq Bistro-Brasserie
2760 Fifth Ave.
San Diego, CA 92103

PARKING
Street parking outside of restaurant.

PROGRAM LANGUAGE

Presented in English

TOPIC

Partners in Care: A Couples Evening

SPEAKER

Annabelle Garcia, MPH
Takeda

AGENDA

6:00 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR

Thank you to our sponsor for partnering with us to make this educational program possible.

ABOUT WASHINGTON DAYS

The National Bleeding Disorders Foundation’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. We look forward to meeting with legislators and staff in person with hundreds of volunteer advocates across the United States to discuss issues important to our community.

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN.

DATES

March 4-6, 2026 | Washington D.C.

VENUE

Hyatt Regency Washington on Capitol Hill
400 New Jersey Avenue, NW
Washington, D.C. 20001

REGISTRATION

Please reach out to us if you are interested in registering and attending Washington Days this year.

ABOUT FUTURE LEADERS

The Bleeding Disorders Council of California’s Future Leaders Program provides leadership training and develops advocacy skills for teens affected by bleeding disorders. Leading up to Legislative Day, they find out more about their role in the government process.  Future Leaders also learn to be effective advocates for themselves and their families.

Future Leaders will attend a pre-Legislative Day program in person. There they will find out how to tell their stories to legislators.  They also learn to advocate for themselves and their families in other areas of their lives.  Future Leaders take part in leadership building games and activities.  Other fun highlights include a visit to the Capitol and team building games! Most importantly, teens learn about the legislative process and how it affects them.

During Legislative Day, Future Leaders take a lead role in legislative meetings! They tell their stories and advocate for important legislation at the State level. 

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES PAID BY THE BLEEDING DISORDERS COUNCIL OF CALIFORNIA.

WHO CAN APPLY?

• High school students (Grades 9 – 12 at time of program)
• Must have a bleeding disorder or be a sibling or child of a person with a bleeding disorder.
• Must be able to commit to participating in all parts of the program.

DATES

March 18, 2026 | Virtual Legislative Day Orientation (via Zoom)
March 21-24, 2026 | Future Leaders Program
March 23, 2026 | Legislative Day (Future Leaders participate)

REGISTRATION

Registration Deadline: Tuesday, February 17, 2026

QUESTIONS

For more information or help applying, please email the Bleeding Disorders Council of California at apalladino@hemophiliaca.org.

ABOUT LEGISLATIVE DAY

Protecting patient access to affordable care continues to be a crucial as we move into 2026, and we need your help! Join us on March 23, 2026 for the Bleeding Disorder Council of California’s Annual Legislative Day.

In 2026 we need to stay strong in our commitment to keeping health care accessible for the bleeding disorders community! Patient copay assistance is still at risk; State agencies in charge of health care affordability may not include the patient voice in their regulations or balance affordability with a commitment to the quality and availability of care.  We need YOUR voice. Will you join us?

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN.

DATES

March 18, 2026 | Virtual Legislative Day Webinar Orientation (via Zoom)
March 23, 2026 | Legislative Day (in Sacramento)

REGISTRATION

Registration Deadline: Tuesday, February 17, 2026

TRAVEL TO SACRAMENTO

Please note: you are responsible for booking your own travel to and from Sacramento. Breakfast and lunch will be provided by the Bleeding Disorder Council of California.

QUESTIONS

For more information or help applying, please email the Bleeding Disorder Council of California at apalladino@hemophiliaca.org.

Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: minors (under 18-years old) must be accompanied by a parent and/or guardian to attend HASDC programming.

DATE | TIME

Wednesday, March 25, 2026 | 6:00PM – 8:00PM

LOCATION
Seasons 52
4505 La Jolla Village Dr.
San Diego, CA 92122

PARKING
Parking in lot outside of restaurant (please validate inside restaurant)

PROGRAM LANGUAGE

Presented in English

TOPIC

“Transforming Lives: Discover the Power of Therapy for Hemophilia B“
This educational program offers you and your family members the opportunity to learn how HEMGENIX works, the process for treatment and how CSL Behring can best support your treatment decisions.

SPEAKER

Guy Young, MD
Professor of Pediatrics
University of Southern California Keck School of Medicine

Michael
Patient Advocate

AGENDA

6:00 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION

Registration for this program is now closed.

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR

Thank you to our sponsor for partnering with us to make this educational program possible.

REGISTER TODAY

The Hemophilia Federation of America (HFA) will be holding their annual Symposium April 16-19, 2026 in New Orleans.

• Valuable educational sessions for severe, milds, rates and more.
• Rap sessions and information for men, women, parents, and Spanish-speaking community members.
• Explore the latest products, services, and technologies designed to make life with a bleeding disorder more manageable.
• Connect with friends, who are like family, and end with a fun Final Night Event!

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN, NO SCHOLARSHIPS AVAILABLE THROUGH HASDC.

DATES | LOCATION

April 16-19, 2026 | The Sheraton San Diego Hotel & Marina

The Sheraton San Diego Hotel & Marina
1380 Harbor Island Drive
San Diego, CA 92101

SYMPOSIUM AGENDA

CLICK HERE to view HFA Symposium’s agenda.

REGISTRATION

If you need financial assistance to attend the HFA Symposium, you can refer to the Hemophilia Federation of America’s Scholarship page.

Join us for an afternoon of education, connection, and soccer! Beyond the Pitch is a special event for men in the bleeding disorders community. The afternoon will kick off with an engaging educational sessions focused on men’s health, empowerment, and navigating life with a bleeding disorder. Afterward, we’ll head to Snapdragon to cheer on the San Diego FC and enjoy the excitement of game day together.

Target Audience
This event is open to men only living in HASDC’s service area. All those under 18 must be accompanied by a parent and/or guardian who is over 18-years of age that can transport them to the evening activity.

DATE

Saturday, April 25, 2026

REGISTRATION
Registration table opens at 2:00 PM
Program begins at 2:30 PM

LOCATION
Puesto
5010 Mission Center Rd.
San Diego, CA 92108

PARKING
Complimentary parking in restaurant parking lot.

AGENDA

Saturday, April 25, 2026

San Diego FC Game & Tickets

LOCATION
Snapdragon Stadium
2101 Stadium Way
San Diego, CA 92108

PARKING
$35 per vehicle for the Orange Lot. Parking is not included; please pay on your own.
CLICK HERE for Snapdragon parking details.

TICKETS
Tickets will be provided upon arrival for the program at Puesto. Must be on time and attend the entire educational program to receive game tickets.

KNOW BEFORE YOU GO

Snapdragon Stadium is a clear bag only venue. Guests are encouraged to limit the number of items they bring with them to the stadium. Only (1) one of the following style and size bag, package, or container per person:

• Bags that are clear plastic or clear vinyl and do not exceed 12” x 6” x 12” or a one-gallon clear plastic freezer bag.
• Purses, bags, or clutches no larger than 4.5” x 6.5”.

Prohibited bags include but are not limited to large purses, coolers, briefcases, backpacks, luggage of any kind, computer bags, or any bag larger than the permissible size.

This policy is not intended to interfere with guests attending with specific medical needs or guests caring for young children.

REGISTRATION

Please note: our educational programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. If you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSORS

Thank you to our sponsors who have made this program possible.

Join us for an upcoming unique webinar series. This virtual session is designed to support caregivers. Learn how to recognize and prevent caregiver burnout, and discover practical ways to get the help you need. Empower yourself with knowledge and self-care strategies in a welcoming, supportive online environment.

Únase a nosotros para una próxima serie única de seminarios web. Esta sesión virtual está diseñada para apoyar a los cuidadores. Aprenda a reconocer y prevenir el agotamiento del cuidador, y descubra formas prácticas de obtener la ayuda que necesita. Empoderarse con conocimientos y estrategias de autocuidado en un entorno en línea acogedor y de apoyo.

DATE

Thursday, May 7, 2026
Time: 6:30 PM – 7:30 PM

This program will be held virtually on the Zoom platform.

PROGRAM LANGUAGE

Presented in Spanish.

TOPIC

“Caregiver Burnout”
Recognizing the signs of caregiver burnout is the first step to getting the support that you deserve.

During this program you will learn:

• How to identify the signs of caregiver burnout
• How to prevent caregiver burnout
• How to get help

“Agotamiento del cuidador”
Conocer los signos del agotamiento del cuidador es el primer paso para obtener el apoyo que se merece.

Durante este programa, aprenderá:

• Cómo identificar los signos del agotamiento del cuidador
• Cómo evitar el agotamiento del cuidador
• Cómo obtener ayuda

SPEAKERS

Esmeralda Vázquez and Lucila Donaldson

Zoom Link

A Zoom link will be provided to registered attendees in the confirmation email.

REGISTRATION

SPONSOR

Thank you to our sponsor for partnering with us to make this educational program possible.