Learn to better advocate for yourself personally, professionally and politically. Join us for our annual Advocacy Forum. Attendees will have the opportunity to learn about what advocacy is, the importance of being a self-advocate, empowerment, how to politically advocate at the local, state and national levels and current state of health insurance in California.

This year’s event will include a session on Infusion Training provided by our local Hemophilia Treatment Centers! 

*Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area.

DATE | TIME (Fecha | Hora)

Saturday, February 17, 2024 | 9:00AM – 2:00PM
Location: San Diego Zoo Safari Park
Venue: Kijamii Overlook (CLICK HERE FOR MAP)

San Diego Zoo Safari Park
15500 San Pasqual Valley Rd.
Escondido, CA 92027

Parking: Complimentary parking for ONE car per registered family.
Weather: Sunny/63 (please plan attire accordingly; venue is covered but has open walls)

CHILDCARE (cuidado de ni´ños)

Complimentary childcare will be provided for children ages 3-12 only. Children will participate in a tram tour. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements.

Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

AGENDA

REGISTRATION (Inscripción)

Registration for this event is now closed.
We are unable to take late registration requests.

*WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

SPONSORS (Patrocinadores)

Thank you to our sponsors for making this program possible.

The National Hemophilia Foundation (NHF) will be hosting its annual Washington Days advocacy event as a virtual experience this year. 

NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage and access to care.

Registration opportunities and Issues will be announced soon.

DATE | LOCATION

March 8-10, 2023 | Washington D.C.

REGISTRATION

Please click here for more information on how to register.

QUESTIONS

Please address any additional registration or housing questions to:

Alla Vaynshteyn
NHF Meetings Specialist
avaynshteyn@hemophilia.org

For any other concerns, please contact:
advocate@hemophilia.org

Join Future Leaders and meet other youth across the State in the bleeding disorders community. Future Leaders find inspiration among other teens to share your voice.  

The Hemophilia Council of California’s (HCC’s) Future Leaders Program provides leadership training and advocacy tools for teens and young adults affected by bleeding disorders. Leading up to their annual Legislative Day, Future Leaders gain understanding and skills on their role in the government process, insurance and programs that support care, educational opportunities, and how to be an effective advocate. Participants hear from statewide and national healthcare leaders, learn self-reliance, connect with their peers, meet with legislators at the State Capitol, have fun and find inspiration to share their voice where it matters most.

WHO CAN APPLY?

High school students (Grade 9 – 12) who have a bleeding disorder, are a sibling of someone with a bleeding disorder, or child of someone with a bleeding disorder.

DATES

March 13, 2024 | Online Legislative Day Orientation Webinar
March 16-19, 2024 | In Person Program in Sacramento

REGISTRATION

Registration for this program is now closed.

QUESTIONS

For more information or help applying, please email the Hemophilia Council of California at info@hemophiliaca.org or by phone at (916) 572-7771.

Legislative Day, put on and organized by the Hemophilia Council of California, is a chance for members of the bleeding disorders community to come together and meet with key members of the Senate and Assembly to educate them about hemophilia, other co-diagnosis, and issues of concern to the bleeding disorders community. Unite with us in Sacramento to share your story about living with a bleeding disorder. Advocate on issues – such as protecting patient assistance programs important to our community.

 We need your voice to make a difference!

DATES

March 13, 2024 | Online orientation webinar
March 18, 2024 | In Person Legislative Visits in Sacramento, CA

REGISTRATION

Registration Deadline: Friday, February 9, 2024

TRAVEL TO SACRAMENTO

Please note: you are responsible for booking your own travel to and from Sacramento. Breakfast and lunch will be provided by the Hemophilia Council of California. Please reach out to info@hemophiliaca.org or 916.572.7771 for more information.

EVENT CANCELLED

Join us this Bleeding Disorders Awareness Month for our Saturday Sweat: an HASDC Mindful Movement event. Our Saturday Sweat event is open to individuals with a bleeding disorder, their immediate family members and friends living in HASDC’s service area.

Please note: Attendees must be 15-years old or older to attend. 

DATE | TIME (Fecha | Hora)

THIS EVENT HAS BEEN CANCELLED
Location: F45 Training Sorrento Valley

F45 Training Sorrento Valley
6765 Mira Mesa Blvd. Suite 148
San Diego, CA 92121

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en ingles

TOPIC (Tema)

Join us for our Saturday Sweat event as we join F45 Training Sorrento Valley for a HIIT style workout. Bring a friend and come workout with us! Moving the body not only improves joint health, but your overall health as well.

“Heroes Hollywood Workout“
Heroes Hollywood is a 60-minute session designed to get your weekend off to a great start! This workout is a hybrid workout which will consist of 18 stations where you will have 40 seconds of work, 15 seconds of rest, 1 set at each station and 3 laps through the room. There will be a 45-second hydration break between each lap.

SPEAKERS (Presentadores)

Peter Aguero, PT, DPT, RMSK
Physical Therapist III, UC San Diego Health Hemophilia & Thrombosis Treatment Center

Rob MacDonald, LMT
Licensed Massage Therapist, UC San Diego Health Hemophilia & Thrombosis Treatment Center

AGENDA (Agenda)

11:45AM Arrive at F45 Training Sorrento Valley (please arrive early to complete waivers)
12:00PM Heroes Hollywood Workout Begins (no late arrivals)
1:00PM Post Workout Refreshments, PT Demonstration, Massage Therapy benefits
1:30PM Event Concludes

REGISTRATION (Inscripción)

THIS EVENT HAS BEEN CANCELLED

*WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

SPONSOR (Patrocinador)

Thank you to our supporter for partnering with us to make this event possible.

Celebrate World Hemophilia Day with Us!

Join us for Food for Thought: an HASDC Educational Dinner. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.

DATE | TIME (Fecha | Hora)

Wednesday, April 17, 2024 | 6:00PM – 8:00PM
Location: Filippi’s Pizza Grotto Kearny Mesa

Filippi’s Pizza Grotto Kearny Mesa
5353 Kearny Villa Rd.
San Diego, CA 92123

PARKING
Public parking in lot outside of restaurant.

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en ingles

TOPIC (Tema)

“HEMLIBRA with Genentech”
Join us as we discuss HEMLIBRA and hear from Gabe, a Patient Ambassador as he shares his story.

SPEAKERS (Presentadores)

Gabe
Patient Ambassador

Brian Taylor Garcia
HEMLIBRA Senior Account & Community Manager
Genentech

AGENDA (Agenda)

6:00 PM Arrive at Filippi’s Pizza Grotto (please arrive on time)
6:15 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

Registration for this program will close on Monday, April 15, 2024

*WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

In partnership with UC San Diego Health Hemophilia & Thrombosis Treatment Center and Rady Children’s Hospital Hemophilia & Thrombosis Treatment Center, we invite you to join us for a day of connection and education at our Family Education Day. You will have the opportunity to connect with friends old and new, network with industry representatives via our Exhibitor Fair, and hear from medical professionals in the community.

*Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area.

EVENT DETAILS

Saturday, May 11, 2024 | 9:00AM – 2:00PM
Venue: Nautilus Pavilion

LOCATION ADDRESS
SeaWorld San Diego
500 Sea World Dr.
San Diego, CA 92109

REGISTRATION | CHECK-IN
9:00AM – 10:00AM
Please arrive on time to check-in and walk over to the venue. Our registration table will be closing promptly at 10:00AM and are unable to provide tickets for entry after that time.

PARKING
(1) parking pass provided per registered family. Parking passes will be mailed to address provided in registration form and should be received by Friday, May 10.

CHILDCARE

Complimentary childcare will be provided for children ages 3-12 only. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

SPEAKERS

REGISTRATION

Registration for this event is now closed.
We are unable to take any late registrations.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST

If you are registering and live outside of HASDC’s service area (San Diego & Imperial Counties), you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SMS SHARING DISCLOSURE

No mobile information will be shared with third parties/affiliates for marketing/promotional purposes.

SPONSORS

Thank you to our sponsors for making this event possible.

Join us for an afternoon tea as we celebrate the women in our lives this May. Come dressed up ready for afternoon tea! Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.

This program is for Women only (must be 16+) in the San Diego bleeding disorders community. 

DATE | TIME (Fecha | Hora)

Saturday, May 25, 2024 | 12:30PM – 3:00PM
Location: The Britannia Tearooms

The Britannia Tearooms
2323 Midway Dr.
San Diego, CA 92110

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en ingles

TOPIC (Tema)

Join us for an afternoon tea as we celebrate the women in our lives this May. Come dressed up ready for afternoon tea!

“Women’s Empowerment“
This HELLO Talk explores women’s awareness and advocacy, how bleeding disorders uniquely impact women’s health, and ways in which women function as caregivers for loved ones with bleeding disorders.

SPEAKERS (Presentadores)

Annabelle Garcia
Community Education Specialist, Takeda

AGENDA (Agenda)

12:15 PM Arrive at The Britannia Tearooms
12:30 PM Welcome & Program Begins
3:00 PM Program Concludes

REGISTRATION (Inscripción)

Registration for this program will close on Friday, May 17, 2024

*WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.