Category Archives: Events

Genentech

WHO IS GENENTECH?

For more than 40 years, Genentech has been following the science, seeking solutions to unmet medical needs. As a proud member of the Roche Group, Genentech makes medicines to treat patients with serious medical conditions. Genentech is headquartered in South San Francisco, California.

WEBSITE

Learn more about Genentech: www.TreatHemA.com

CONTACT US

Angelica Flores, MSN, RN, PHN
Clinical Education Manager
E: flores.angelica@gene.com
P: 951-903-6860

Bayer

WHO IS BAYER?

Bayer is dedicated to providing treatment options for people living with rare, serious and life-threatening disease. Bayer has been a committed partner to the community delivering therapeutic options, educational and support programs and continuing research designed to meet the needs of patients throughout their life journey.

WEBSITE

Learn more about Jivi: https://www.jivi-us.com/

BROCHURES

CONTACT US

Karen Arrieta
Account Manager
E: karen.arrieta@bayer.com
P: 714-746-9000

CSL Behring

WHO IS CSL BEHRING?

CSL Behring is a global biotherapeutics leader driven by its promise to save lives. Focused on serving patients’ needs by using the latest technologies, we develop and deliver innovative therapies that are used to treat coagulation disorders, primary immune deficiencies, hereditary angioedema, respiratory disease, and neurological disorders. The company’s products are also used in cardiac surgery, burn treatment and to prevent hemolytic disease of the newborn. CSL Behring operates one of the world’s largest plasma collection networks, CSL Plasma. For inspiring stories about the promise of biotechnology, visit Vita CSLBehring.com/vita and follow us on Twitter.com/CSLBehring.

WEBSITE

Learn more about CSL Behring

BROCHURE

CONTACT US

Denise Atkinson-Thomas
Manager, Coagulation Products
E: Denise.Atkinson@cslbehring.com
P: 858-344-2691

Spark Therapeutics

WHO IS SPARK THERAPEUTICS?

Spark Therapeutics is creating a path for advancements in hemophilia gene therapy research. We are committed to discovering, developing and delivering gene therapies, we challenge the inevitability of genetic diseases.

WEBSITE

Learn more about Investigational Gene Therapy: https://hemophiliaforward.com/

Science of Gene Therapy Video

BROCHURES

CONTACT US

Guillermo Campillo
Sr. Patient Education Liaison
E: guillermo.campillo@sparktx.com
P: 720-364-6214

CVS Specialty

WHO IS CVS SPECIALTY?

Our commitment to helping patients and their physicians manage complex drug therapies by delivering expert individualized care and unmatched, multi-channel access has made us one of the leading specialty pharmacies in the country. We provide a full-range of pharmaceutical care, dispensing the latest FDA-approved medications.

Nuestro compromiso de ayudar a los pacientes y a sus médicos a administrar terapias farmacológicas complejas al brindar atención individualizada experta y acceso multicanal sin igual nos ha convertido en una de las farmacias especializadas líderes en el país. Ofrecemos una gama completa de atención farmacéutica, distribuyendo los últimos medicamentos aprobados por la FDA.

WEBSITE

Learn more about CVS: https://www.cvsspecialty.com/wps/portal/specialty

CONTACT US

Felipe Greven
Client Relations Executive
E: felipe.greven@cvshealth.com
P: 510-468-8845

Novo Nordisk

WHO IS NOVO NORDISK?

For 30 years, Novo Nordisk has been a driving force for people living with rare bleeding disorders. We take pride in striving for innovative solutions to help improve patients’ lives. This motivates us to uphold the highest standards in our product research and development. This vital research is just the beginning of our commitment in hemophilia. We’ll continue our research and connect with people with hemophilia and healthcare professionals to ensure we understand and respond to specific needs of the hemophilia community. We’ll continue to develop innovative solutions that can help improve the lives of people with hemophilia in the future.

WEBSITE

Learn more about Novo Nordisk: www.signup.novonordiskhemophilia.com

BROCHURE

CONTACT US

Marquez Washington
Hemophilia Community Liaison
E: MQWT@novonordisk.com
P: 279-321-2757

Pfizer

WHO IS PFIZER?

At Pfizer, we apply science and our global resources to bring therapies to people that extend and significantly improve their lives. We strive to set the standard for quality, safety and value in the discovery, development and manufacture of health care products. Every day, Pfizer colleagues work across developed and emerging markets to advance wellness, prevention, treatments and cures that challenge the most feared diseases of our time.

WEBSITE

Learn more about Pfizer: http://www.hemophiliavillage.com/

BROCHURE

Pfizer Pal: https://www.pfizerpal.com/

CONTACT US

Eva Felix
Patient Affairs Liaison
E: eva.felix@pfizer.com
P: 661-632-6735

Infusion Training & Rock Climbing

REGISTRATION CLOSED

Get a Hand – Lend a Hand!
Join us for our Infusion Training Program in partnership with Rady Children’s Hospital HTTC & UC San Diego Health HTTC. This educational initiative is designed to make infusion easier for both patients and their caregivers. In a relaxed setting and with direction from licensed medical professionals, patients can practice the technique of self-infusion and caregivers can learn to administer home infusions for others. Light breakfast and boxed lunch provided. Rock climbing to follow.

Practical Application
All skill levels welcome. Training will consist of what you need to know to self-infuse, determining readiness for self-infusion, safety precautions, and staying organized.

Training will be offered by a team of treatment center nurses on cuffs, practice arms and one-on-one self-infusion. Training to include Sub-Q injections.

Already know how to self-infuse? Come join us to brush up on safety tips and hone your skills.

DATE
February 8, 2020

TIME
10:00am – 1:30pm

LOCATION
Mesa Rim – Mira Mesa
10110 Mesa Rim Road
San Diego, CA 92121

AGENDA
10:00 – 10:30am Registration
10:30 – 11:30am  Program & Infusion Training
11:30 – 12:00pm Closing and Box Lunch
12:00 – 1:30pm  Rock Climbing

REGISTRATION
Registration for this event is now closed as we have reached capacity. Please look out for our next training in the fall.