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HCC’s Future Leaders Program

Future Leaders is back in person!

Join Future Leaders and meet other youth across the State in the bleeding disorders community. Future Leaders find inspiration among other teens to share your voice.  

The Hemophilia Council of California’s (HCC’s) Future Leaders Program provides leadership training and advocacy tools for teens and young adults affected by bleeding disorders. Leading up to their annual Legislative Day, Future Leaders gain understanding and skills on their role in the government process, insurance and programs that support care, educational opportunities, and how to be an effective advocate. Participants hear from statewide and national healthcare leaders, learn self-reliance, connect with their peers, meet with legislators at the State Capitol, have fun and find inspiration to share their voice where it matters most.

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WHO CAN APPLY?

High school students (Grade 9 – 12) who have a bleeding disorder, are a sibling of someone with a bleeding disorder, or child of someone with a bleeding disorder.

DATES

March 15, 2023 | Online Legislative Day Orientation Webinar
March 19-21, 2023 | In Person Program in Sacramento

REGISTRATION

For more information on the HCC’s Future Leaders program and to register.

Registration Deadline: Friday, February 3, 2023

QUESTIONS

For more information or help applying, please email the Hemophilia Council of California at info@hemophiliaca.org or by phone at (916) 572-7771.

HCC’s Legislative Day

LEGISLATIVE DAY IS BACK IN PERSON!

Legislative Day, put on and organized by the Hemophilia Council of California, is a chance for members of the bleeding disorders community to come together and meet with key members of the Senate and Assembly to educate them about hemophilia, other co-diagnosis, and issues of concern to the bleeding disorders community. Unite with us in Sacramento to share your story about living with a bleeding disorder. Advocate on issues – such as protecting patient assistance programs important to our community.

 We need your voice to make a difference!

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DATES

March 15, 2023 | Online orientation webinar
March 20, 2023 | Future Leaders Alumni Network Reception
March 21, 2023 | In Person Legislative Visits in Sacramento

REGISTRATION

Registration Deadline: Friday, February 17, 2023

TRAVEL TO SACRAMENTO

Please note: you are responsible for booking your own travel to and from Sacramento. Breakfast and lunch will be provided by the Hemophilia Council of California. Please reach out to info@hemophiliaca.org or 916.572.7771 for more information.

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Family Education Day

Join us for a day of connection and education. You will have the opportunity to connect with friends old and new, and network with industry representatives via our virtual booth breakout sessions. Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area.

DATE | TIME

Saturday, May 13, 2023 | 9:00AM – 2:00PM

Location
San Diego Zoo
2920 Zoo Drive
San Diego, CA 92101

REGISTRATION TABLE
HASDC’s registration table can be found outside the main gate of the San Diego Zoo. Please arrive on time as the registration table will be closing at 10:00AM and we will be unable to provide entry past that time.

AGENDA

Agenda coming soon.

CHILDCARE

Complimentary childcare will be provided for children ages 3-12 only. Children will participate in a bus tour and behind the scenes animal presentations. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

REGISTRATION

Registration will open April 1, 2023

SPONSORS

Thank you to our sponsors for making this event possible.

NHF’S Bleeding Disorders Conference

The National Hemophilia Foundation (NHF) is thrilled to announce that the 75th Annual Bleeding Disorders Conference (BDC) will take place from August 17 to 19, 2023, in the Washington D.C. area. 

For those that cannot join them in Houston, they will also be offering a virtual component. A total of 28 hours of selected sessions from the Consumer, Teen, and Chapter tracks will be live-streamed. These sessions will also be available on-demand immediately after the live broadcast. On-demand sessions will be accessible on our virtual platform until September 25, 2022.

DATES | LOCATION

August 17-19, 2023
Washington D.C. Area

INTERACTIVE PROGRAM

CLICK HERE to view NHF’s interactive program.

REGISTRATION

Registration to open in 2023