The Bleeding Disorders Council of California’sFuture Leaders Program provides leadership training and develops advocacy skills for teens affected by bleeding disorders. Leading up to Legislative Day, they find out more about their role in the government process. Future Leaders also learn to be effective advocates for themselves and their families.
Future Leaders will attend a pre-Legislative Day program in person. There they will find out how to tell their stories to legislators. They also learn to advocate for themselves and their families in other areas of their lives. Future Leaders take part in leadership building games and activities. Other fun highlights include a visit to the Capitol and team building games! Most importantly, teens learn about the legislative process and how it affects them.
During Legislative Day, Future Leaders take a lead role in legislative meetings! They tell their stories and advocate for important legislation at the State level.
THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES PAID BY THEBLEEDING DISORDERS COUNCIL OF CALIFORNIA.
WHO CAN APPLY?
High school students (Grades 9 – 12 at time of program)
Must have a bleeding disorder or be a sibling or child of a person with a bleeding disorder.
Must be able to commit to participating in all parts of the program.
DATES
March 18, 2026 | Virtual Legislative Day Orientation (via Zoom) March 21-24, 2026 | Future Leaders Program March 23, 2026 | Legislative Day (Future Leaders participate)
REGISTRATION
Registration Deadline: Tuesday, February 17, 2026
QUESTIONS
For more information or help applying, please email the Bleeding Disorders Council of California at apalladino@hemophiliaca.org.
Protecting patient access to affordable care continues to be a crucial as we move into 2026, and we need your help! Join us on March 23, 2026 for the Bleeding Disorder Council of California’s Annual Legislative Day.
In 2026 we need to stay strong in our commitment to keeping health care accessible for the bleeding disorders community! Patient copay assistance is still at risk; State agencies in charge of health care affordability may not include the patient voice in their regulations or balance affordability with a commitment to the quality and availability of care. We need YOUR voice. Will you join us?
THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN.
DATES
March 18, 2026 | Virtual Legislative Day Webinar Orientation (via Zoom) March 23, 2026 | Legislative Day (in Sacramento)
REGISTRATION
Registration Deadline: Tuesday, February 17, 2026
TRAVEL TO SACRAMENTO
Please note: you are responsible for booking your own travel to and from Sacramento. Breakfast and lunch will be provided by the Bleeding Disorder Council of California.
QUESTIONS
For more information or help applying, please email the Bleeding Disorder Council of California at apalladino@hemophiliaca.org.
In partnership with Rady Children’s Health Hemophilia & Thrombosis Treatment Center and The Center for Bleeding & Clotting Disorders atUC San Diego Health, we invite you to join us for a day of connection and education at our Family Education Day. You will have the opportunity to connect with friends old and new, network with industry representatives via our Exhibitor Fair, and hear from medical professionals in the community. Attendees have the opportunity to get tickets to Sunday’s San Diego Padres game. This event DOES NOT include any hotel overnight stays.
HASDC’s programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area (San Diego & Imperial Counties).
EVENT DETAILS
Saturday, June 6, 2026 | Community Education Day Time: 9:00AM – 3:00PM
Venue Hyatt Regency Mission Bay Spa and Marina 1441 Quivira Rd. San Diego, CA 92109
Please note:this event DOES NOT include any hotel overnight stays.
Sunday, June 7, 2026 | San Diego Padres Game Time: 1:10pm Venue: Petco Park
REGISTRATION& PARKING
REGISTRATION | CHECK-IN 9:00AM – 10:00AM Please arrive on time to check-in. Our registration table will be closing promptly at 10:00AM.
PARKING Complimentary self-parking provided for ONE car per registered family.
CHILDCARE
Complimentary childcare will be provided for children ages 3-12 only. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.
Childcare check in: 9:00AM (all children must be checked into childcare by 10:00AM)
AGENDA
Saturday, June 6, 2026
TIME
PROGRAM AGENDA
9:00AM – 10:00AM
Registration Open (registration will close at 10:00AM sharp; no late arrivals)
9:00AM – 10:00AM
Exhibitor Booths Open (enter drawing) Coffee and Pastries Available Drop off at Childcare by 10:00AM
10:00AM
WelcomeRemarks HASDC Opening Remarks Rady Children’s Health HTTC Introduction Center for Bleeding & Clotting Disorders Introduction
10:30AM – 12:30PM
Plenary Sessions Access and Self Advocacy in Healthcare Clinical Updates Across the Bleeding & Clotting Spectrum What’s in a Clown Doctor’s Medical Bag?
12:30PM – 1:15PM
Lunch Exhibitor Booths Open
1:15PM – 2:00PM
Breakout Sessions 1 Transitioning Care with Confidence Gene Therapy for Hemophilia B
2:00PM – 2:45PM
Breakout Sessions 2 Understanding HYMPAVZI Infusion Training
2:45PM – 3:00PM
Closing Remarks Childcare Pickup
Sunday, June 7, 2026
Join us at the San Diego Padres game to be held at 1:10pm at Petco Park. Sundays are for family fun! Arrive when gates open for KidsFest, presented by Nuna. Located in the fully renovated Gallagher Square, you’ll find the redesigned Nuna playground, bounce houses, face painting, games, and more. Some activities will end prior to first pitch, inflatables and the Play Ball field will remain open through the end of the 7th inning, and the Nuna playground will be open all game!
REGISTRATION
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
WAITLIST
If you are registering and live outside of HASDC’s service area (San Diego & Imperial Counties), you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event. Due to limited space, we are unable to accept event registrations for those without a bleeding disorder in their immediate family and family of volunteers, exhibitors, and sponsors.
SMS SHARING DISCLOSURE
No mobile information will be shared with third parties/affiliates for marketing/promotional purposes.
SPONSORS
Thank you to our partners and sponsors for making this event possible.
The National Bleeding Disorders Foundation (NBDF) is thrilled to announce that the Annual Bleeding Disorders Conference (BDC) will take place this August 13-15, 2026 in Orlando, Florida.
BDC will bring the entire bleeding disorders community together for three full days of incredible educational sessions, valuable networking opportunities, and exciting exhibits and presentations.
THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN.
