All posts by hasdc_admin

HCC’s Future Leaders Program

ABOUT FUTURE LEADERS

The Hemophilia Council of California’s (HCC’s) Future LeadersProgram provides leadership training and develops advocacy skills for teens affected by bleeding disorders. Leading up to Legislative Day, they find out more about their role in the government process.  Future Leaders also learn to be effective advocates for themselves and their families.

Future Leaders will attend a pre-Legislative Day program in person. There they will find out how to tell their stories to legislators.  They also learn to advocate for themselves and their families in other areas of their lives.  Future Leaders take part in leadership building games and activities.  Other fun highlights include a visit to the Capitol and team building games! Most importantly, teens learn about the legislative process and how it affects them.

During Legislative Day, Future Leaders take a lead role in legislative meetings! They tell their stories and advocate for important legislation at the State level. 

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES PAID BY THE HEMOPHILIA COUNCIL OF CALIFORNIA.

WHO CAN APPLY?

  • High school students (Grades 9 – 12 at time of program)
  • Must have a bleeding disorder or be a sibling or child of a person with a bleeding disorder.
  • Must be able to commit to participating in all parts of the program.

DATES

March 12, 2025 | Virtual Legislative Day Orientation (via Zoom)
March 15-18, 2025 | Future Leaders Program
March 17, 2025 | Legislative Day (Future Leaders participate)

REGISTRATION

Registration Deadline: Monday, February 10, 2025

QUESTIONS

For more information or help applying, please email the Hemophilia Council of California at apalladino@hemophiliaca.org.

HCC’s Legislative Day

ABOUT LEGISLATIVE DAY

Protecting patient access to affordable care continues to be a crucial as we move into 2025, and we need your help! Join us on March 17th, 2025 for the Hemophilia Council of California’s Annual Legislative Day.

In 2025 we need to stay strong in our commitment to keeping health care accessible for the bleeding disorders community! Patient copay assistance is still at risk; State agencies in charge of health care affordability may not include the patient voice in their regulations or balance affordability with a commitment to the quality and availability of care.  We need YOUR voice. Will you join us?

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN.

DATES

March 12, 2025 | Virtual Legislative Day Webinar Orientation (via Zoom)
March 17, 2025 | Legislative Day (in Sacramento)

REGISTRATION

Registration Deadline: Monday, February 10, 2025

TRAVEL TO SACRAMENTO

Please note: you are responsible for booking your own travel to and from Sacramento. Breakfast and lunch will be provided by the Hemophilia Council of California.

QUESTIONS

For more information or help applying, please email the Hemophilia Council of California at apalladino@hemophiliaca.org.

Family Education Day

In partnership with UC San Diego Health Hemophilia & Thrombosis Treatment Center and Rady Children’s Hospital Hemophilia & Thrombosis Treatment Center, we invite you to join us for a day of connection and education at our Family Education Day. You will have the opportunity to connect with friends old and new, network with industry representatives via our Exhibitor Fair, and hear from medical professionals in the community.

*Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area.

EVENT DETAILS

Saturday, May 11, 2024 | 9:00AM – 2:00PM
Venue: Nautilus Pavilion

LOCATION ADDRESS
SeaWorld San Diego
500 Sea World Dr.
San Diego, CA 92109

REGISTRATION | CHECK-IN
9:00AM – 10:00AM
Please arrive on time to check-in and walk over to the venue. Our registration table will be closing promptly at 10:00AM and are unable to provide tickets for entry after that time.

PARKING
(1) parking pass provided per registered family. Parking passes will be mailed to address provided in registration form and should be received by Friday, May 10.

CHILDCARE

Complimentary childcare will be provided for children ages 3-12 only. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

SPEAKERS

REGISTRATION

Registration for this event is now closed.
We are unable to take any late registrations.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST

If you are registering and live outside of HASDC’s service area (San Diego & Imperial Counties), you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SMS SHARING DISCLOSURE

No mobile information will be shared with third parties/affiliates for marketing/promotional purposes.

SPONSORS

Thank you to our sponsors for making this event possible.

NBDF’S Bleeding Disorders Conference

REGISTER TODAY

The National Bleeding Disorders Foundation (NBDF) is thrilled to announce that the Annual Bleeding Disorders Conference (BDC) will take place this September 12-14, 2024 in Atlanta, Georgia. 

BDC will bring the entire bleeding disorders community together for three full days of incredible educational sessions, valuable networking opportunities, and exciting exhibits and presentations.

Those who register early will receive the lowest early-bird pricing. 

DATES | LOCATION

September 12-14, 2024 | Georgia World Congress Center

INTERACTIVE PROGRAM

CLICK HERE to view NBDF’s BDC interactive program.

REGISTRATION

Attendees can register anytime; however, NBDF encourages everyone to register as early as possible for registration savings.