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HCC’s Future Leaders Program

Join Future Leaders and meet other youth across the State in the bleeding disorders community. Future Leaders find inspiration among other teens to share your voice.  

The Hemophilia Council of California’s (HCC’s) Future Leaders Program provides leadership training and advocacy tools for teens and young adults affected by bleeding disorders. Leading up to their annual Legislative Day, Future Leaders gain understanding and skills on their role in the government process, insurance and programs that support care, educational opportunities, and how to be an effective advocate. Participants hear from statewide and national healthcare leaders, learn self-reliance, connect with their peers, meet with legislators at the State Capitol, have fun and find inspiration to share their voice where it matters most.

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WHO CAN APPLY?

High school students (Grade 9 – 12) who have a bleeding disorder, are a sibling of someone with a bleeding disorder, or child of someone with a bleeding disorder.

DATES

March 13, 2024 | Online Legislative Day Orientation Webinar
March 16-19, 2024 | In Person Program in Sacramento

REGISTRATION

Registration for this program is now closed.

QUESTIONS

For more information or help applying, please email the Hemophilia Council of California at info@hemophiliaca.org or by phone at (916) 572-7771.

HCC’s Legislative Day

Legislative Day, put on and organized by the Hemophilia Council of California, is a chance for members of the bleeding disorders community to come together and meet with key members of the Senate and Assembly to educate them about hemophilia, other co-diagnosis, and issues of concern to the bleeding disorders community. Unite with us in Sacramento to share your story about living with a bleeding disorder. Advocate on issues – such as protecting patient assistance programs important to our community.

 We need your voice to make a difference!

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DATES

March 13, 2024 | Online orientation webinar
March 18, 2024 | In Person Legislative Visits in Sacramento, CA

REGISTRATION

Registration Deadline: Friday, February 9, 2024

TRAVEL TO SACRAMENTO

Please note: you are responsible for booking your own travel to and from Sacramento. Breakfast and lunch will be provided by the Hemophilia Council of California. Please reach out to info@hemophiliaca.org or 916.572.7771 for more information.

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Family Education Day

In partnership with UC San Diego Health Hemophilia & Thrombosis Treatment Center and Rady Children’s Hospital Hemophilia & Thrombosis Treatment Center, we invite you to join us for a day of connection and education at our Family Education Day. You will have the opportunity to connect with friends old and new, network with industry representatives via our Exhibitor Fair, and hear from medical professionals in the community.

*Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area.

EVENT DETAILS

Saturday, May 11, 2024 | 9:00AM – 2:00PM
Venue: Nautilus Pavilion

LOCATION ADDRESS
SeaWorld San Diego
500 Sea World Dr.
San Diego, CA 92109

REGISTRATION | CHECK-IN
9:00AM – 10:00AM
Please arrive on time to check-in and walk over to the venue. Our registration table will be closing promptly at 10:00AM and are unable to provide tickets for entry after that time.

PARKING
(1) parking pass provided per registered family. Parking passes will be mailed to address provided in registration form and should be received by Friday, May 10.

CHILDCARE

Complimentary childcare will be provided for children ages 3-12 only. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

SPEAKERS

REGISTRATION

Registration for this event is now closed.
We are unable to take any late registrations.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST

If you are registering and live outside of HASDC’s service area (San Diego & Imperial Counties), you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SMS SHARING DISCLOSURE

No mobile information will be shared with third parties/affiliates for marketing/promotional purposes.

SPONSORS

Thank you to our sponsors for making this event possible.

NBDF’S Bleeding Disorders Conference

The National Bleeding Disorders Foundation (NBDF) is thrilled to announce that the Annual Bleeding Disorders Conference (BDC) will take place in September in Atlanta, Georgia. 

BDC will bring the entire bleeding disorders community together for three full days of incredible educational sessions, valuable networking opportunities, and exciting exhibits and presentations.

Please mark your calendar and be on the lookout for an e-mail from NBDF the week of January 22 containing Conference & registration information. Those who register early will receive the lowest early-bird pricing. 

DATES | LOCATION

September 12-14, 2024 | Georgia World Congress Center

INTERACTIVE PROGRAM

CLICK HERE to view NBDF’s interactive program.

REGISTRATION

Registration to open in 2024