Category Archives: Events

Pfizer

WHO IS PFIZER?

Pfizer is honored to partner and serve the bleeding disorder community for over 20 years. As you Patient Affairs Liaison, my role is non-sales non-promotional and I am here to answer any questions regarding, resources, education and product information reactively.

WEBSITE

Learn more about Pfizer: http://www.hemophiliavillage.com/

BROCHURE

CONTACT US

Eva Felix
Patient Affairs Liaison
E: eva.felix@pfizer.com
P: 661-632-6735

Infusion Training & Rock Climbing

REGISTRATION CLOSED

Get a Hand – Lend a Hand!
Join us for our Infusion Training Program in partnership with Rady Children’s Hospital HTTC & UC San Diego Health HTTC. This educational initiative is designed to make infusion easier for both patients and their caregivers. In a relaxed setting and with direction from licensed medical professionals, patients can practice the technique of self-infusion and caregivers can learn to administer home infusions for others. Light breakfast and boxed lunch provided. Rock climbing to follow.

Practical Application
All skill levels welcome. Training will consist of what you need to know to self-infuse, determining readiness for self-infusion, safety precautions, and staying organized.

Training will be offered by a team of treatment center nurses on cuffs, practice arms and one-on-one self-infusion. Training to include Sub-Q injections.

Already know how to self-infuse? Come join us to brush up on safety tips and hone your skills.

DATE
February 8, 2020

TIME
10:00am – 1:30pm

LOCATION
Mesa Rim – Mira Mesa
10110 Mesa Rim Road
San Diego, CA 92121

AGENDA
10:00 – 10:30am Registration
10:30 – 11:30am  Program & Infusion Training
11:30 – 12:00pm Closing and Box Lunch
12:00 – 1:30pm  Rock Climbing

REGISTRATION
Registration for this event is now closed as we have reached capacity. Please look out for our next training in the fall.

Educational Dinner Program

Join us in-person for an evening of education. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members.

COVID UPDATE:
The Hemophilia Association of San Diego County is committed to maintaining the health and safety of our community members, volunteers, staff and supporters. Due to the current numbers surrounding the current COVID-19 pandemic, to continue to keep our community safe and abide by state and CDC guidelines, we will be requiring ALL attendees to wear a mask at this time.   

DATE | TIME (Fecha | Hora)

Thursday, February 17, 2022 | 6:00PM – 8:00PM
Location: Phil’s BBQ (Sports Arena)

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en ingles

TOPIC (Tema)

“AFSTYLA”
Krysten Sargenton will present patient stories, review dosing, bleed protection, established safety, and storage and reconstitution. Additionally, she will review how to get started on AFSTYLA, as well as support and resources to start and maintain AFSTYLA treatment.

Caregivers, Make Yourself a Priority”
Being a caregiver is a full-time job, but that doesn’t mean caregivers have to neglect themselves – a struggle Krissy is familiar with. After Brody’s diagnosis, she put everything and everyone before herself and realized she needed to take a step back and regroup. She’s had to learn that it’s okay to make yourself a priority. When she begins to feel overwhelmed, she gently tells her kids that she needs a moment alone, which as also taught them that it’s okay to take a step back when they’re overwhelmed.

Key Messages:
– As caregivers you have to make time for yourself so you can care for your loved ones. Don’t put off potential health problems.
– It’s ok to say no sometimes.
– Time for yourself can be anything you enjoy doing – as long as you’re doing it for yourself.

SPEAKERS (Presentadores)

Krysten Sargenton, MSN, APRN, FNP-BC
Nurse Speaker, CSL Behring

Krissy M.
Common Factors Advocate, CSL Behring

Denise Atkinson
Manager, Coagulation Products, CSL Behring

AGENDA (Agenda)

6:00 PM Arrive at Phil’s BBQ
6:15 PM Dinner Begins
6:30 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Advocacy Forum

Learn to better advocate for yourself personally, professionally and politically. Join us for our annual Advocacy Forum. Attendees will have the opportunity to learn about what advocacy is, the importance of being a self-advocate, and how to politically advocate at the local, state and national levels. This event is open to all members of the bleeding disorders community, their immediate family members and caregivers.

Program Language
Presented in English. 

COVID UPDATE:
The Hemophilia Association of San Diego County is committed to maintaining the health and safety of our community members, volunteers, staff and supporters. Due to the current numbers surrounding the current COVID-19 pandemic, to continue to keep our community safe and abide by state and CDC guidelines, we will be requiring ALL attendees to wear a mask at this time.   

DATE

Saturday, February 26, 2022 | 10:00AM – 2:00PM
Location: San Diego Zoo Safari Park

CHILDCARE

Complimentary childcare will be provided for children ages 4-12 only. Children will participate in a tram tour and a behind the scenes animal presentation. Young adults 13 and older are expected to participate in the educational program. Children under 5 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

AGENDA

REGISTRATION

SPONSORS

Educational Dinner Program

Join us in-person for an evening of education. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members.

COVID UPDATE:
The Hemophilia Association of San Diego County is committed to maintaining the health and safety of our community members, volunteers, staff and supporters. At this time, we will be requiring ALL attendees to wear a mask. 

DATE | TIME (Fecha | Hora)

Thursday, April 14, 2022 | 6:00PM – 8:00PM
Location: King’s Fish House

King’s Fish House
825 Camino De La Reina
San Diego, CA 92108

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en ingles

TOPIC (Tema)

SevenFact”
Dr. Guy Young will be speaking about SevenFact, the first inhibitor bypassing agent approved in the US in over 20 years—for the treatment and control of bleeding episodes in people with hemophilia A or B with inhibitors.

SPEAKERS (Presentadores)

Dr. Guy Young
Director, Hemostasis and Thrombosis Center at Children’s Hospital Los Angles

Angélica Flores
Regional Account Manager, Hema Biologics

AGENDA (Agenda)

6:00 PM Arrive at (Location TBD)
6:15 PM Dinner Begins
6:30 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Educational Dinner Program

Join us in-person for an evening of education. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members.

COVID UPDATE:
The Hemophilia Association of San Diego County is committed to maintaining the health and safety of our community members, volunteers, staff and supporters. At this time, we will be requiring ALL attendees to wear a mask. 

DATE | TIME (Fecha | Hora)

Monday, June 6, 2022 | 6:00PM – 8:00PM
Location: Puesto (Mission Valley)

Puesto
5010 Mission Center Rd.
San Diego, CA 92108

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en ingles

TOPIC (Tema)

Gene Therapy Reserach: Understanding the Science”
Explore the science behind Gene Therapy research. This program will answer questions about gene therapy research, including:
– How is gene therapy research designed to work?
– What different types of gene therapies are being researched?
– Why are some people better candidates than others of gene therapy research?

SPEAKERS (Presentadores)

Billy Duckworth
Senior Account Manager, BioMarin Pharmaceuticals

AGENDA (Agenda)

6:00 PM Arrive at Puesto
6:15 PM Dinner Begins
6:30 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

Registration for this program is now closed.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

NHF’s Washington Days

 

The National Hemophilia Foundation (NHF) will be hosting its annual Washington Days advocacy event as a virtual experience this year. 

NHF’s Washington Days is an opportunity for people affected by bleeding disorders to advocate for issues that are important to them. In 2020, Washington Days had more than 450 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and access to Skilled Nursing Facilities (SNFs). The issues and priorities for 2021 Washington Days will be announced later this year.

DATE

March 1-5, 2021 | Time TBD

REGISTRATION

Please click here for more information on how to register.

QUESTIONS

Please address any additional registration or housing questions to:

Alla Vaynshteyn
NHF Meetings Specialist
avaynshteyn@hemophilia.org

For any other concerns, please contact:
advocate@hemophilia.org

Family Education Day

Join us for a day of connection and education. You will have the opportunity to connect with friends old and new, and network with industry representatives via our virtual booth breakout sessions. Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area.

DATE | TIME

Saturday, May 7, 2022 | 9:00AM – 2:00PM

REGISTRATION TABLE
HASDC’s registration table can be found outside the main gate of the San Diego Zoo. Please arrive on time as the registration table will be closing at 10:00AM and we will be unable to provide entry past that time.

AGENDA

CHILDCARE

Complimentary childcare will be provided for children ages 3-12 only. Children will participate in a bus tour and behind the scenes animal presentations. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

REGISTRATION

Registration for this event is now closed and we are no longer able to take additional registrations.

SPONSORS

Thank you to our sponsors for making this event possible.

Women’s Retreat

Join us for a day of conversations, connections and support. If you are a woman affected by a bleeding disorder, please join us at this special event designed for you. All women and girls ages 15+ are encouraged to attend – diagnosed, caregivers, carriers, undiagnosed, and family members.

You will have the opportunity to connect with friends old and new, and network with industry representatives via our virtual booth breakout sessions. Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area.

DATE | TIME

Saturday, May 28, 2022 | 9:00AM – 3:00PM

The Point (at Mission Bay)
1010 Santa Clara Pl.
San Diego, CA 92109

AGENDA

REGISTRATION

SPONSORS

Thank you to our sponsors who have made this program possible.