Hemophilia Council of California
THE FORMATION OF HCC
In the 1970′s, the four California bleeding disorders organizations, the Central California Hemophilia Foundation, Hemophilia Foundation of Northern California, Hemophilia Foundation of Southern California and the Hemophilia Association of San Diego County, formed the Hemophilia Council of California (HCC). In 1989, the HCC was incorporated as a 501(c)(3) nonprofit organization, to coordinate our shared advocacy agenda to create a more effective and unified voice for individuals living with bleeding disorders in California.
The HCC continues to pursue its’ mission to promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with its’ member organizations.
WHO ARE THEY
The Hemophilia Council of California’s primary services include information exchange, education, consumer and political advocacy and monitors California legislation that could affect people with bleeding disorders.
The Hemophilia Council of California has four advocacy programs: annual Legislative Day held at the California State Capitol; the Future Leaders Program, educating youth in the community about the political process; the Health Policy Summit and the CANEXTions Summit.
PARTNERSHIP
In conjunction with the Hemophilia Council of California, HASDC helps support and promote participation in their annual Future Leaders Program and Legislative Day. Legislative Day is a chance for members of the bleeding disorders community to come together and meet with key members of the Senate and Assembly to educate them about bleeding disorders, other co-diagnoses, and issues of concern to the bleeding disorders community.
MORE ABOUT HCC
For more information on bleeding disorders advocacy in California or to attend one of their programs, visit the Hemophilia Council of California.