Western States Regional Network (IX)
Who They Are
The Western States/Region IX Hemophilia Network (WSRHN/RIX) represents 13 Hemostasis and Thrombosis Treatment Centers (HTC) in California, Guam, Hawaii, and Nevada. HTCs specialize in providing team-based medical care and related services to improve the health and wellbeing of people of all ages who have bleeding and clotting disorders that are rare, chronic, complex, and inherited. In 2021, the WSRHN/RIX HTC Network served over 7,200 residents of California, Hawaii, Nevada, and Guam who have a diagnosed bleeding or clotting disorders, plus conducted over 3,100 diagnostic tests for residents with suspected blood disorders.
What Disorders Do They Treat?
- Von Willebrand Disease
- Platelet Disorders
- Sickle Cell
- Thrombosis & Clotting
- Women’s Bleeding Disorders
- Rare Bleeding Disorders
What Do They Provide?
Regional IX’s HTCs are among over 140 centers in the U.S. that are partially supported by the federal Centers for Disease Control and Prevention (CDC) and Health Resources and Services Administration (HRSA). HTCs fulfill CDC and HRSA goals to monitor health and ensure access to care. HTCs are located in university medical centers and community hospitals, free-standing clinics, and, in the case of Guam, the Department of Health and Social Services. HTC services are provided in line with the National Bleeding Disorders Foundation recommendations. HTCs are committed to actively contributing to their region, sharing their expertise and innovations with one another, to strengthen patient health.
HTCs promote comprehensive care and prevent blood disorder complications to achieve goals set by the Federal Centers for Disease Control and Prevention and the Maternal and Child Health Bureau. Services are provided in line with the National Bleeding Disorders Foundation’s recommendations.
HTCs also coordinate care with dentists, genetic counselors, obstetrician/gynecologists, and primary care practitioners and they educate school personnel.
HTC care in the U.S. is organized into regions. Regional leadership provide fiscal and administrative oversight, grants management, capacity building, clinical education, technical assistance, evaluation, and liaison with related public and private health agencies at the local, state, and federal levels.
CLICK HERE to visit the Region IX website.
Local Hemophilia Treatment Centers
Rady Children’s Hospital Hemophilia & Thrombosis Treatment Center
UC San Diego Health Hemophilia & Thrombosis Treatment Center