World Federation of Hemophilia
Who They Are
The World Federation of Hemophilia (WFH), an international nonprofit organization, was established in 1963. It is a global network of patient organizations in 127 countries and has official recognition from the World Health Organization.
What They Do
For 50 years, the World Federation of Hemophilia (WFH) has provided global leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders.
They save and improve lives by:
- Training experts in the field to properly diagnose and manage patients
- Advocating for adequate supply of safe treatment products
- Educating and empowering people with bleeding disorders to help them live healthier, longer and more productive lives
However, much more still remains to be done. The reality is that 75 per cent of people with bleeding disorders still receive very inadequate treatment or no treatment at all. The percentage is even higher for those with von Willebrand disease and rare factor deficiencies.
There vision of “Treatment For All” is that one day, all people with a bleeding disorder will have proper care, no matter where they live. Treatment for all means:
- Proper diagnosis, management, and care by a multidisciplinary team of trained specialists
- Safe, effective treatment products for all people with bleeding disorders
- Expanding services beyond hemophilia, to those with von Willebrand disease, rare factor deficiencies, and inherited platelet disorders
The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
For more information visit World Federation of Hemophilia.
SDM: WFH Shared Decision Making Tool
When patients and clinicians make decisions together.
Shared decision-making (SDM) is a process where you and your healthcare team work together to make a decision about your hemophilia care and treatment. Your decision should be made through thoughtful consideration and discussion around the following:
- Your life goals and how they are affected by your hemophilia.
- The therapies that are available to you.
- The available information for each therapy.
To use the tool CLICK HERE.