ABOUT CONFERENCE

The four California bleeding disorders organizations invite you and your family to join us for the 8th Annual Familia de Sangre, a two-day conference on blood disorders with all programming presented in Spanish.

Educational sessions and networking opportunities covering healthcare, education, mental health and support services

Las cuatro fundaciones de trastornos sanguíneos de California lo invitan cordialmente a usted y a su familia a la 8ta conferencia anual, Familia de Sangre, una conferencia de dos días sobre desórdenes sanguíneos con toda la programación presentada en español.

Sesiones educativas y oportunidades de networking que cubrirán asistencia médica, educación, salud mental y servicios de apoyo.

DATE

September 5-7, 2025 | 5-7 de septiembre de 2025

Anaheim Marriott
700 W Convention Way
Anaheim, CA 92802

REGISTRATION

Registration for Familia de Sangre will open in 2025

Join us at the largest all Spanish speaking bleeding disorders conference in the nation. Register before June 30^th for Early Bird pricing. 

Familia de Sangre is the largest bleeding disorders conference completely in Spanish. The conference will take place September 5-7 at the Anaheim Marriott in Anaheim, CA. 

Acompáñenos en la conferencia sobre trastornos hemorrágicos de habla hispana más grande del país. Regístrese antes del 30 de junio para precios “Early Bird.”

Familia de Sangre es la conferencia más grande sobre trastornos sanguíneos completamente en español. La conferencia será del 5 al 7 de septiembre en el Anaheim Marriott en Anaheim, CA. 

HASDC’s SCHOLARSHIP APPLICATION

The Hemophilia Association of San Diego County will be providing limited local scholarships for this year’s Familia de Sangre Conference. Submitting a scholarship application through the Hemophilia Association of San Diego County DOES NOT guarantee acceptance. As scholarship funding is limited, applications will be reviewed by HASDC and acceptance will be dependent on the order the application is received and that ALL required fields are complete, accurate, and submitted. Priority will be given to first time attendees. 

Eligibility
Must live in San Diego or Imperial Counties, have someone in your immediate family with a diagnosed bleeding disorder and currently be in HASDC’s database.

Application submission will open in 2025

THANK YOU TO OUR CONFERENCE SPONSORS

Join us for a day of conversations, connections and support. If you are a woman or teen affected by a bleeding disorder, please join us at this special event designed for you. All women and girls ages 14+ are encouraged to attend – diagnosed, caregivers, carriers, undiagnosed, living in HASDC’s service area.

You will have the opportunity to connect with friends old and new, meet with staff from Rady Children’s Hospital HTTC and UC San Diego Health HTTC, as well as network with industry representatives at the exhibitor booths.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

DATE | TIME

Saturday, June 17, 2023 | 9:00AM – 2:30PM

LOCATION
Rady Children’s Hospital San Diego – Education Office Building
7960 Birmingham Dr.
San Diego, CA 92123

PARKING
Parking is available in the North Visitors Parking Garage on Children’s Way (across from the HTC clinic). Parking costs will be covered.

WALKING DIRECTIONS FROM NORTH VISITORS PARKING
– Walk toward the Medical Office Building across the street.
– Head south toward Rose Pavilion Emergency Room.
– Walk the path between the Hahn and Rose building (past the ER) through the archways.
– Walk under the white canopies and around the cul-de-sac to the EOB.
– Follow HASDC signage.

AGENDA

REGISTRATION

Registration Deadline: June 16, 2023

WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSORS

Thank you to our sponsors who have made this program possible.

DATE | TIME

Saturday, August 26, 2023 | 9:00AM – 3:00PM

LOCATION
Courtyard by Marriott San Diego Airport/Liberty Station
2592 Landing Rd.
San Diego, CA 92106

PARKING
Complimentary parking in Marriott parking lot.

REGISTRATION TABLE
HASDC’s registration table can be found outside the hotel. Please arrive on time as the registration table will be closing at 9:45AM and we will be unable to provide entry past that time.

AGENDA

SAN DIEGO BAY WATER ACTIVITIES

Join us for a morning of education and an afternoon on the San Diego Bay. Participants will be able to enjoy paddle boarding and kayaking on the bay after lunch. Please indicate your preference on your registration form.

Items to bring:
– Blanket/towel for the grass
– Sunscreen
– Swimsuit or clothes appropriate for paddle boarding/kayaking
– Hat

CHILDCARE

Complimentary childcare will be provided for children ages 3-12 only. Young adults 13 and older are invited to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

REGISTRATION

WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSORS

Thank you to our sponsors for making this event possible.

Join us for Food for Thought: an HASDC Educational Dinner. Our Educational Dinner Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

DATE | TIME (Fecha | Hora)

Wednesday, October 4, 2023 | 6:00PM – 8:00PM

LOCATION
Seasons 52 (UTC Mall)
4505 La Jolla Village Dr.
San Diego, CA 92122

PARKING
Public parking in lot outside of restaurant. Parking will be $2 after two hours (make sure to validate your parking in the restaurant).

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en inglés

TOPIC (Tema)

“Gene Therapy in Hemophilia: Come find out what all the buzz is about—from curiosity to eligibility and beyond”

Gene Therapy has arrived! Join us for a one-hour presentation to hear how gene therapy is designed to work and why eligibility testing is the first step on the gene therapy journey. We’ll share the findings from a clinical trial and what it could mean for you. Learn how to get started, what questions to ask your doctor, and hear one patient’s experience.

SPEAKER (Presentador)

Billy Duckworth
Sr. Account Manager, Gene Therapy, BioMarin

AGENDA (Agenda)

5:45 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
6:30 PM Dinner Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

Registration for this program is now closed as we have reached capacity.
Please contact our office if you would like to be added to the Waitlist.

WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Join us for Food for Thought: an HASDC Educational Dinner. Our educational dinner programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

DATE | TIME (Fecha | Hora)

Monday, October 30, 2023 | 6:00PM – 8:00PM

LOCATION
Seasons 52 (UTC Mall)
4505 La Jolla Village Dr.
San Diego, CA 92122

PARKING
Public parking in lot outside of restaurant.

PROGRAM LANGUAGE (Idioma del programa)

Presented in Spanish | Presentado en español

TOPIC (Tema)

“Emotional Wellbeing: Exploring the Mind-Body Connection”
Venga a aprender, compartir e interactuar con personas que “lo entienden” porque también viven con esos trastornos. Estas presentaciones están diseñadas de manera personalizada para ayudarle a comprender la base científica que has detrás de los trastornos sanguíneos o a afrontar los desafíos a los que podría enfrentarse. A cargo de un presentador de Takeda que proporcionará al grupo asesoramiento práctico y consejos útiles.

SPEAKER (Presentador)

Annabelle Garcia
Community Education Specialist, Takeda

AGENDA (Agenda)

5:45 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
6:30 PM Dinner Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

Registration for this program is now closed.

WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Join us for Food for Thought: an HASDC Educational Dinner. Our educational dinner programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

DATE | TIME (Fecha | Hora)

Thursday, November 9, 2023 | 6:00PM – 8:00PM

LOCATION
Puesto (Mission Valley)
5010 Mission Center Road
San Diego, CA 92108

PARKING
Public parking in lot outside of restaurant.

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en inglés

TOPIC (Tema)

“HEMGENIX”
The first and only FDA approved Gene Therapy for Hemophilia B. This educational program offers you and your family members the opportunity to:

• Learn about HEMGENIX, the first and only gene therapy approved for Hemophilia B.
• Gain insightful information and deepen your understanding of HEMGENIX through a LIVE Q&A session.
• Ask questions and receive new resources on gene therapy.

SPEAKER (Presentador)

Doris Quon, MD, PhD
Orthopedic Institute for Children Los Angeles

AGENDA (Agenda)

5:45 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
6:30 PM Dinner Begins
8:00 PM Program Concludes

REGISTRATION (Inscripción)

If you have any questions regarding your registration please email the office at info@hasdc.org

WAITLIST
Please note: if you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Join us virtually for our Wellness Wednesdays: Summer Series. Our Wellness Wednesdays series will bring you interactive conversations and movement opportunities as we provide you with wellness resources. Our Wellness Wednesdays: Summer Series is open to individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

GIVEAWAY
HASDC will cover parking for one vehicle per household. Any additional cars will have to pay the parking cost of $35 on their own. We will also provide a snack for reach participant. 

DATE | TIME| LOCATION (Fecha | Hora | Lugar)

Please note this event is on a Saturday
Saturday, July 24, 2021 | 9:00AM – 10:00AM | Cabrillo National Monument

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en Inglés

ACTIVITY (Activo)

Hike the Coast
Join us for a guided hike along the coast with Nichole Wilkinson. We will be hiking the Bayside Trail at Cabrillo National Monument which is a 2.5 mile hike up with an elevation gain of 340ft in Point Loma. You will have the option to go see the tide pools on the other side of the hill when we finish. The hike should take 1.5 hours. Make sure to wear comfortable shoes, bring a snack, and one liter of water. For more tips on hiking you can check out Nichole’s Top Ten Hiking Essentials.

Disclaimer: Contact your doctor or physical therapist before starting any physical activity or exercise program for recommendations that are specific to your current level of health. Do not practice yoga if a joint or muscle has had a recent bleed, is swollen, warm, or painful.

SPEAKER (Presentador)

Nichole Wilkinson
Soul Vibes Yoga

A lifelong San Diegan with a penchant for the outdoors, Nichole craves connecting with other outdoor enthusiasts, encouraging others to start hiking, and compiling tips and advice from her own experience. She is First Aid, CPR, and AED certified and brings adventure and outdoor education to her members and local schools. She offers a monthly membership that includes 2 guided hikes per month, monthly education and REI meetups, exclusive invitations to backpacking and climbing trips, as well as priority registration to the upcoming backpacking course!

AGENDA (Agenda)

8:50 AM Arrive at Cabrillo and wait for gates to open to park
9:00 AM Check-in for Hike (no late arrivals)
9:10 AM Hike Begins
10:00 AM Hike Concludes

REGISTRATION (Inscripción)

GIVEAWAYS

**Bleeding disorder participants and their immediate family, living in our service area, who register and attend the full 1-hour program are eligible for a the yoga mat and towel. Additionally, to qualify for our program giveaway, we ask that you be arrive on time, no later than 9:00AM. One yoga mat and towel per participant.

Our service area is San Diego and Imperial Counties. If there is availability, those living outside our service area may qualify; distributed in order based on registration date/time. 

SPONSOR (Patrocinador)

Thank you to our program sponsor for making this Wellness Wednesdays program possible.

Join us virtually for an evening of education. Our Educational Dinner Programs are open to those with a bleeding disorder and their immediate family members living in HASDC’s service area. 

GIVEAWAY
$50 Grubhub gift card from HASDC to purchase a meal on a later date. See details below on how to qualify. 

DATE | TIME (Fecha | Hora)

Thursday, September 30, 2021 | 6:00PM – 7:00PM

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en Inglés

TOPIC (Tema)

Hemophilia & Academic Success: Tools for Success in College
Do you know how to define your adult identity and take ownership of your health management in college? We’ll discuss powerful tools to make the transition to college easier, successful, and exciting. Let’s hit the ground running!

This program is also great for parents to help transitioning students to college.

SPEAKER (Presentadore)

Marquez Washington, MBA
SR HCL – Southern California, Hawaii

AGENDA (Agenda)

5:50 PM Connect to Zoom link (make sure everything is working)
6:00 PM Welcome & Program Begins
6:45 PM Q&A
7:00 PM Program Concludes

REGISTRATION (Inscripción)

GRUBHUB GIFT CARDS (Tarjetas de regalo de Grubhub)

**Bleeding disorder participants and their immediate family, living in our service area, who register and are logged in for the full 1-hour program are eligible for a Grubhub gift card to purchase a meal on a later date. Additionally, to qualify for our program giveaway, we ask that you be logged on by 6:00 PM and actively participate by having your camera on and participating in the chat throughout the program. One gift card provided per family.

Our service area is San Diego and Imperial Counties. If there is availability, those living outside our service area may qualify; distributed in order based on registration date/time. 

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

FREQUENTLY ASKED QUESTIONS

How do I join the webinar?
After you have registered via the HASDC website, you will receive a confirmation email directly from Zoom with the program link. Please use the “Click Here to Join” link in that email.

What if I get disconnected or can’t login?
We will be actively troubleshooting throughout the web-conference. Text 619-325-9401 if you have any technical difficulties and we will try to help you get back into the web-conference. We encourage everyone to start logging in at 5:50PM so that we have time to help you troubleshoot and you will still be eligible for the dinner.

How will I receive my dinner gift card?
HASDC will email you an e-gift card from GrubHub to be used to purchase a meal on a later date. Please note: gift cards will be sent to the email you used to register.