Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.
DATE | TIME (Fecha | Hora)
Tuesday, August 12, 2025 | 6:00PM – 8:00PM
LOCATION Seasons 52 4505 La Jolla Village Dr. San Diego, CA 92122
PARKING Parking in lot outside restaurant. Make sure to validate your parking ticket inside the restaurant. Parking without validation will cost $2. HASDC will not be covering parking.
PROGRAM LANGUAGE (Idioma del programa)
Presented in English | Presentado en inglés
TOPIC (Tema)
“HEMGENIX: Steps to Treatment” Join us for an informative presentation on gene therapy, covering the entire process from consultation to treatment. Hear firsthand from someone who has undergone this groundbreaking therapy for hemophilia B and get your questions answered!
CSL Advocate, Michael, will be joining to share his hemophilia B gene therapy experience!
6:00 PM Arrive at Seasons 52 (please arrive on time) 6:15 PM Welcome & Program Begins 8:00 PM Program Concludes
REGISTRATION (Inscripción)
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
WAITLIST POLICY
If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
SPONSOR (Patrocinador)
Thank you to our sponsor for partnering with us to make this educational program possible.
Join us for our very first family retreat, Tides of Togetherness: A Bleeding Disorders Family Weekend, at the beautiful YMCA Camp Surf in Imperial Beach! This exciting weekend getaway is designed for families in the bleeding disorders community to connect, recharge, and learn—all while enjoying the sun, sand, and sea.
Set against the scenic backdrop of the Pacific Ocean, this retreat offers the perfect balance of fun and education. Families can look forward to classic camp programming provided by the YMCA, including archery, campfires, beach games, team-building activities, and surfing lessons—all adapted to be inclusive and safe for individuals with bleeding disorders.
In addition to the outdoor adventure, the retreat will feature interactive educational sessions for parents and kids. Topics may include:
Pathfinders – provided by GutMonkey
Mental wellness and coping strategies
Age-appropriate education for newly diagnosed families and caregivers
Infusion Training
We can’t wait to welcome you to our first-ever Tides of Togetherness: A Bleeding Disorders Family Weekend!
WHY ATTEND?
Opportunities for peer connection, small group discussions, and guided support circles will help build lasting relationships and strengthen our shared community.
This retreat is a unique opportunity to blend meaningful education with memorable experiences—all in a supportive and inclusive environment. Whether you’re newly diagnosed or have been managing a bleeding disorder for years, there’s something here for everyone.
WHO CAN ATTEND?
Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area (San Diego & Imperial Counties). Due to limited space, we are unable to accept event registrations for those without a bleeding disorder in their immediate family, as well as family of volunteers, exhibitors, and sponsors.
WHAT TO EXPECT
Families will stay together in cozy onsite cabins, just steps away from the beach, and take part in a variety of camp-style activities meant to be enjoyed together — think beach walks, games, crafts, and group challenges that bring families closer while building lasting memories.
This retreat is all about community. You’ll have the opportunity to connect with other families who understand the unique challenges and strengths of living with a bleeding disorder. Through shared meals, campfire chats, and educational sessions, there will be plenty of time to bond, share stories, and build supportive relationships that can last beyond the weekend.
Please note: This is a family-centered event and childcare will not be provided. Programming is designed for families to participate in together, and all children must be supervised by a parent or guardian at all times.
EVENT DETAILS
Friday, August 15 – Sunday, August 17, 2025 Venue: YMCA Camp Surf
LOCATION ADDRESS YMCA Camp Surf 560 Silver Strand Blvd. Imperial Beach, CA 91932
REGISTRATION | CHECK-IN 4:00PM – 6:00PM
PARKING YMCA Camp Surf parking lot.
FAMILY WEEKEND COST
Each family is to pay a non-refundable $50.00 registration fee. Additional retreat costs are underwritten by grants and funds raised by HASDC.
LODGING
You will be staying in the camp’s traditional cabins which sleep up to 16 people. They are clustered around two bathroom and shower blocks. If you wish to share a cabin with a specific family, there is a spot in the registration where you can indicate so, otherwise assignments will be made at random.
MEALS
Meals are served buffet-style with a fruit and cereal bar at breakfast, and a salad bar at lunch and dinner. Five meals are included in your stay. (Friday dinner—Sun breakfast) The YMCA caters to vegetarians and, with prior notification, they can accommodate most food allergies and dietary needs. Please refer to the agenda for meal times.
ARRIVAL/DEPARTURE
Arrival Saturday, August 15 at 4:00PM
Departure Sunday, August 17 at 12:00PM
AGENDA
Activities are subject to change.
Friday, August 15, 2025
TIME
PROGRAM AGENDA
4:00PM – 6:00PM
Registration Open Please check in at HASDC welcome table.
6:00PM – 7:00PM
Dinner Dining Hall
7:00PM – 8:00PM
Family Movie Night
9:00PM
Quiet Hours Begin/YMCA Office Closed
Saturday, August 16, 2025
TIME
PROGRAM AGENDA
8:00AM
Breakfast Dining Hall
8:45AM
Safety & Activity Orientation
9:00AM – 12:00PM
Pathfinders presented by GutMonkey and Sanofi
12:30PM
Lunch Dining Hall
2:00PM – 4:00PM
Open Activities Infusion Training Surfing (potential to be at an offsite location) Body Boarding Arts & Crafts Archery Skate Park Climbing Tower Free time activities: sand sculpting, basketball, GaGa, beach volleyball, and more!
4:00PM – 5:00PM
Expect the Unexpected presented by Takeda
5:30PM
Dinner Dining Hall
7:00PM
Campfire/Skit Night
9:00PM
Quiet Hours Begin
Sunday, August 17, 2025
TIME
PROGRAM AGENDA
8:00AM
Breakfast Dining Hall
9:00AM – 12:00PM
Open Activities Surfing (potential to be at an offsite location) Body Boarding Arts & Crafts Archery Skate Park Climbing Tower Free time activities: sand sculpting, basketball, GaGa, beach volleyball, and more!
12:00PM
Activities Close/Clean Up/Departure from Camp Surf
REGISTRATION
Registration for this program is now closed.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
YMCA CAMP SURF WAIVER
Please make sure you have completed the required camp waiver prior to arrival.
PACKING LIST
You will receive a complete packing list and final details to the primary registrants email once your registration is received.
WAITLIST
If you are registering and live outside of HASDC’s service area (San Diego & Imperial Counties), you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
SMS SHARING DISCLOSURE
No mobile information will be shared with third parties/affiliates for marketing/promotional purposes.
SPONSORS
Thank you to our supporters and sponsors for making this event possible.
Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.
DATE | TIME (Fecha | Hora)
Wednesday, September 17, 2025 | 6:00PM – 8:00PM
LOCATION Phil’s BBQ 3750 Sports Arena Blvd. San Diego, CA 92110
Event space in back of parking lot
PARKING Parking in lot outside restaurant.
PROGRAM LANGUAGE (Idioma del programa)
Presented in English | Presentado en inglés
TOPIC (Tema)
“Understanding a Rebalancing Therapy Option for Hemophilia“ In this session, we’ll dive into a rebalancing treatment option. From how it works to clinical trial learnings, you’ll gain the latest information to help you or your loved ones understand this treatment option with confidence.
6:00 PM Arrive at Phil’s (please arrive on time) 6:15 PM Welcome & Program Begins 8:00 PM Program Concludes
REGISTRATION (Inscripción)
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
WAITLIST POLICY
If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
SPONSOR (Patrocinador)
Thank you to our sponsor for partnering with us to make this educational program possible.
Join us for a morning of education, connection, and baseball! It’s a Grand Slam is a special event for *men ages 16 and up in the bleeding disorders community. The day will kick off with an engaging education session focused on men’s health, empowerment, and navigating life with a bleeding disorder. Afterward, we’ll head to Petco Park to cheer on the Padres and enjoy the excitement of game day together.
Don’t miss this chance to learn, connect with others, and experience a Padres game—all in one grand slam of a day!
*This event is open to those living in HASDC’s service area. All those under 18 must be accompanied by a guardian who is over 18-years of age.
DATE
Sunday, September 28, 2025
REGISTRATION Registration table opens at 9:00 AM
LOCATION The Westin San Diego Gaslamp Quarter 910 Broadway Circle San Diego, CA 92101
PARKING Complimentary parking at hotel valet; (1) car per registered family (if you choose to move your car, cost is on your own).
AGENDA
Sunday, September 28, 2025
TIME
AGENDA
9:00 AM – 10:00 AM
Registration & Exhibitor Booths Open
10:00 AM
Welcome
10:00 AM – 12:00 PM
Education Sessions
12:00 PM
Head to Padres Game (walk to Petco Park)
Padre Tickets
Tickets will be provided upon arrival for the program at The Westin San Diego Gaslamp Quarter. Must be on time and attend the entire educational program to receive game tickets.
Petco Park Bag Policy
REGISTRATION
This event is now FULL. You will now be directed to our waitlist.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
WAITLISTPOLICY
If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
SPONSORS
Thank you to our sponsors who have made this program possible.
Join us for a day of conversations, connections and support. If you are a woman or teen affected by a bleeding disorder, please join us at this special event designed for you. All women and girls ages 14+ are encouraged to attend – diagnosed, caregivers, carriers, undiagnosed, living in HASDC’s service area.
You will have the opportunity to connect with friends old and new, meet with staff from Rady Children’s Hospital HTTC and UC San Diego Health HTTC, as well as network with industry representatives at the exhibitor booths.
DATE | TIME
Saturday, August 10, 2024 | 9:00AM – 3:00PM
VENUE
Courtyard Marriott Liberty Station 2592 Laning Road San Diego, CA 92106
PARKING Free parking is available in the hotel parking lot.
AGENDA
Saturday, August 10, 2024
TIME
AGENDA
9:00AM – 10:00AM
Registration & Exhibitor Booths Open
10:00AM
Welcome Remarks
10:15AM – 12:15PM
Plenary Session: Caregivers Compass
12:15PM – 1:00PM
Lunch
1:00PM – 2:00PM
Plenary Sessions (continued)
2:00PM – 3:00PM
Meditating with Flowers: A Mindful Experience
3:00PM
Closing Remarks
REGISTRATION
Registration for this event is now closed.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed.
WAITLISTPOLICY
If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
SPONSORS
Thank you to our sponsors who have made this program possible.
The National Bleeding Disorders Foundation (NBDF) is thrilled to announce that the Annual Bleeding Disorders Conference (BDC) will take place this September 12-14, 2024 in Atlanta, Georgia.
BDC will bring the entire bleeding disorders community together for three full days of incredible educational sessions, valuable networking opportunities, and exciting exhibits and presentations.
Those who register early will receive the lowest early-bird pricing.
DATES | LOCATION
September 12-14, 2024 | Georgia World Congress Center
The four California bleeding disorders organizations invite you and your family to join us for the 8th Annual Familia de Sangre, a two-day conference on blood disorders with all programming presented in Spanish.
Educational sessions and networking opportunities covering healthcare, education, mental health and support services.
Las cuatro fundaciones de trastornos sanguíneos de California lo invitan cordialmente a usted y a su familia a la 8ta conferencia anual, Familia de Sangre, una conferencia de dos días sobre desórdenes sanguíneos con toda la programación presentada en español.
Sesiones educativas y oportunidades de networking que cubrirán asistencia médica, educación, salud mental y servicios de apoyo.
DATE
September 5-7, 2025 | 5-7 de septiembre de 2025
Anaheim Marriott 700 W Convention Way Anaheim, CA 92802
CLICK HERE if you are interested in joining Familia de Sangre’s email list.
REGISTRATION
Registration for Familia de Sangre is now OPEN!
Join us at the largest all Spanish speaking bleeding disorders conference in the nation.
Familia de Sangre is the largest bleeding disorders conference completely in Spanish. The conference will take place September 5-7 at the Anaheim Marriott in Anaheim, CA.
Acompáñenos en la conferencia sobre trastornos hemorrágicos de habla hispana más grande del país.
Familia de Sangre es la conferencia más grande sobre trastornos sanguíneos completamente en español. La conferencia será del 5 al 7 de septiembre en el Anaheim Marriott en Anaheim, CA.
HASDC’sSCHOLARSHIP APPLICATION
The Hemophilia Association of San Diego County will be providing limited local scholarships for this year’s Familia de Sangre Conference. Submitting a scholarship application through the Hemophilia Association of San Diego County DOES NOT guarantee acceptance. As scholarship funding is limited, applications will be reviewed by HASDC and acceptance will be dependent on the order the application is received and that ALL required fields are complete, accurate, and submitted. Priority will be given to FIRST TIME attendees.
Eligibility Must live in San Diego or Imperial Counties, have someone in your immediatefamily with a diagnosed bleeding disorder and currently be in HASDC’s database.
The Center for Bleeding and Clotting Disorders at UC San Diego Health (CBCD), the Hemophilia Association of San Diego County (HASDC), Rady Children’s Hospital HTTC, Center for Inherited Blood Disorders (CIBD), and the LA Orthopedic Hemophilia Treatment Center (LA Ortho) extend a cordial invitation to you and your family to participate in our Education Day.
Join us for an event that is dedicated to offering educational sessions focusing on overall patient wellness, their families, and caregivers. Enjoy complimentary breakfast and lunch while meeting local treatment center providers, connecting with other patients and hearing their stories, and learning about blood clotting factors from pharmaceutical partners.
DATE | TIME
Saturday, October 11, 2025 9:00AM – 3:30PM
VENUE
Hilton Del Mar 15575 Jimmy Durante Blvd. Del Mar, CA 92014
PARKING Self-parking is available on-site.
AGENDA
TIME
AGENDA
9:00AM
Registration Open; Light Breakfast Available
9:45AM
Welcome Remarks
10:00AM
Main Lectures
11:15AM
Patient Panel Discussion
12:30PM
Lunch & Raffle Winners Announced
1:30PM
Breakout Sessions
2:30PM
Closing Remarks & Raffle Winners Announced
2:45PM
Extended Fun Workshops Available
3:30PM
Event Concludes
CHILDCARE
Complimentary childcare will be provided for children ages 3-12 only. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.
Welcome to the Hemophilia Association of San Diego County’s 12th Annual Unite for Bleeding Disorders Walk. We look forward to getting together at Liberty Station – NTC Park to raise vital funds for the San Diego bleeding disorders community.
DATE | TIME
Saturday, October 25, 2025 | 9:00AM – 1:00PM
WALK DAY
Schedule of Events
9:00AM: Registration will open, exhibit booths, refreshments
10:00AM: Unite for Bleeding Disorders Ceremony will begin.
10:30AM: 5k Unite Walk will begin!
Recognitions & Prizes
Top Fundraising Team
Top Fundraising Industry Team
Top Individual Fundraiser
Individual participants who raise or make a minimum donation of $25 will receive a Unite for Bleeding Disorders Walk T-Shirt (while supplies last) and a VIP wristband for lunch.
HOW TO PARTICIPATE
Join us in person! Register and join us at Liberty Station Park on Saturday, October 25 and walk a 5k.
Support HASDC! More than ever people living with bleeding disorders in San Diego and Imperial Counties are in need of our support. Make a team or join an existing team. Reach out to family or friends to support our mission and consider making a personal donation if you are able.
DONATE TODAY
When making a donation via check, please make checks payable to Hemophilia Association of San Diego County. Make sure to include the name of the Team or Individual Walker you are supporting.
Checks may be sent to: Hemophilia Association of San Diego County 3550 Camino Del Rio North, Suite 105 San Diego, CA 92108
WALKER | TEAM REGISTRATION
SPONSORS
Thank you to the Unite Walk program National Sponsors for your continued support.
‘TIS THE SEASON TO WEAR YOUR FAVORITE HOLIDAY SWEATER!
Wear your favorite holiday sweater and join us for our annual end of the year gathering and celebration of the season. Factor & Frost is open to all individuals with a bleeding disorder and their immediate family members.
Contests Best Holiday Sweater (adult) Best Holiday Sweater (child)
Drawings Exhibitor Booth Passport Various Gift Baskets
Parking: Complimentary per registered family. Weather: This event will be held inside.
PROGRAM AGENDA
REGISTRATION (Inscripción)
Registration for this eventwill open in October.
Please note: if you are not currently in our database, you will receive an email to complete our Member Database Form before your registration can be confirmed/accepted.
WAITLIST
If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.
SPONSORS (Patrocinadores)
Thank you to our sponsors for partnering with us to make this end of the year program possible.
