Category Archives: Events

Food for Thought

Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

DATE | TIME (Fecha | Hora)

Saturday, January 24, 2026 | 11:00AM – 2:00PM

LOCATION
Vincenzo Cucina + Lounge
550 W Date St. Ste A
San Diego, CA 92101

PARKING
Street parking outside of restaurant.

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en inglés

TOPIC (Tema)

Menopause
Expect the unexpected. End the silence. We will discuss what is happening and how you can manage the changes and symptoms.

SPEAKER (Presentador)

Amber Federizo, DNP
Octapharma

Introducing Dr. Federizo: a trailblazer in women’s health, armed with a doctorate and master’s in nursing education. Her dedication to supporting individuals with bleeding disorders earned her the title of 2018 Humanitarian of the Year from the National Hemophilia Foundation. Currently, as a Clinical Nurse Educator in Hematology at Octapharma USA, she’s making strides in improving care for those in rural and vulnerable communities. Join Dr. Federizo in her mission to change lives.

AGENDA (Agenda)

11:00 AM Arrive at Vincenzo Cucina + Lounge (please arrive on time)
11:15 AM Welcome & Program Begins
2:00 PM Program Concludes

REGISTRATION (Inscripción)

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Partners in Care: A Couples Evening

Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: minors (under 18-years old) must be accompanied by a parent and/or guardian to attend HASDC programming.

DATE | TIME

Friday, February 27, 2026 | 6:00PM – 8:00PM

LOCATION
Parq Bistro-Brasserie
2760 Fifth Ave.
San Diego, CA 92103

PARKING
Street parking outside of restaurant.

PROGRAM LANGUAGE

Presented in English

TOPIC

Partners in Care: A Couples Evening

SPEAKER

Annabelle Garcia, MPH
Takeda

AGENDA

6:00 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR

Thank you to our sponsor for partnering with us to make this educational program possible.

NBDF’s Washington Days

ABOUT WASHINGTON DAYS

The National Bleeding Disorders Foundation’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. We look forward to meeting with legislators and staff in person with hundreds of volunteer advocates across the United States to discuss issues important to our community.

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN.

DATES

March 4-6, 2026 | Washington D.C.

VENUE

Hyatt Regency Washington on Capitol Hill
400 New Jersey Avenue, NW
Washington, D.C. 20001

REGISTRATION

Please reach out to us if you are interested in registering and attending Washington Days this year.

BDCC’s Future Leaders Program

ABOUT FUTURE LEADERS

The Bleeding Disorders Council of California’s Future Leaders Program provides leadership training and develops advocacy skills for teens affected by bleeding disorders. Leading up to Legislative Day, they find out more about their role in the government process.  Future Leaders also learn to be effective advocates for themselves and their families.

Future Leaders will attend a pre-Legislative Day program in person. There they will find out how to tell their stories to legislators.  They also learn to advocate for themselves and their families in other areas of their lives.  Future Leaders take part in leadership building games and activities.  Other fun highlights include a visit to the Capitol and team building games! Most importantly, teens learn about the legislative process and how it affects them.

During Legislative Day, Future Leaders take a lead role in legislative meetings! They tell their stories and advocate for important legislation at the State level. 

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES PAID BY THE BLEEDING DISORDERS COUNCIL OF CALIFORNIA.

WHO CAN APPLY?

  • High school students (Grades 9 – 12 at time of program)
  • Must have a bleeding disorder or be a sibling or child of a person with a bleeding disorder.
  • Must be able to commit to participating in all parts of the program.

DATES

March 18, 2026 | Virtual Legislative Day Orientation (via Zoom)
March 21-24, 2026 | Future Leaders Program
March 23, 2026 | Legislative Day (Future Leaders participate)

REGISTRATION

Registration Deadline: Tuesday, February 17, 2026

QUESTIONS

For more information or help applying, please email the Bleeding Disorders Council of California at apalladino@hemophiliaca.org.

BDCC’s Legislative Day

ABOUT LEGISLATIVE DAY

Protecting patient access to affordable care continues to be a crucial as we move into 2026, and we need your help! Join us on March 23, 2026 for the Bleeding Disorder Council of California’s Annual Legislative Day.

In 2026 we need to stay strong in our commitment to keeping health care accessible for the bleeding disorders community! Patient copay assistance is still at risk; State agencies in charge of health care affordability may not include the patient voice in their regulations or balance affordability with a commitment to the quality and availability of care.  We need YOUR voice. Will you join us?

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN.

DATES

March 18, 2026 | Virtual Legislative Day Webinar Orientation (via Zoom)
March 23, 2026 | Legislative Day (in Sacramento)

REGISTRATION

Registration Deadline: Tuesday, February 17, 2026

TRAVEL TO SACRAMENTO

Please note: you are responsible for booking your own travel to and from Sacramento. Breakfast and lunch will be provided by the Bleeding Disorder Council of California.

QUESTIONS

For more information or help applying, please email the Bleeding Disorder Council of California at apalladino@hemophiliaca.org.

Food for Thought

Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: minors (under 18-years old) must be accompanied by a parent and/or guardian to attend HASDC programming.

DATE | TIME

Wednesday, March 25, 2026 | 6:00PM – 8:00PM

LOCATION
To be determined.

PARKING
Street parking outside of restaurant.

PROGRAM LANGUAGE

Presented in English

TOPIC

Hemophilia B

SPEAKER

To be determined

AGENDA

6:00 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION

Registration will open soon.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR

Thank you to our sponsor for partnering with us to make this educational program possible.

HFA Symposium

REGISTER TODAY

The Hemophilia Federation of America (HFA) will be holding their annual Symposium April 16-19, 2026 in New Orleans.

  • Valuable educational sessions for severe, milds, rates and more.
  • Rap sessions and information for men, women, parents, and Spanish-speaking community members.
  • Explore the latest products, services, and technologies designed to make life with a bleeding disorder more manageable.
  • Connect with friends, who are like family, and end with a fun Final Night Event!

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN, NO SCHOLARSHIPS AVAILABLE THROUGH HASDC.

DATES | LOCATION

April 16-19, 2026 | The Sheraton San Diego Hotel & Marina

The Sheraton San Diego Hotel & Marina
1380 Harbor Island Drive
San Diego, CA 92101

SYMPOSIUM AGENDA

CLICK HERE to view HFA Symposium’s agenda.

REGISTRATION

If you need financial assistance to attend the HFA Symposium, you can refer to the Hemophilia Federation of America’s Scholarship page.

Steeped in Sisterhood: an Afternoon Tea

Join us for a special afternoon tea just for women and girls living with bleeding disorders. Enjoy a relaxing afternoon of delicious treats, heartfelt conversations, and shared experiences in a supportive and welcoming space.

Dress on Theme: Feel free to wear something floral, pastel, or tea-party chic to match the cozy, elegant vibe of the afternoon!

Let’s connect, uplift, and empower each other—you are not alone, and your story matters. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.

Program Audience
This event is intended exclusively for women, girls, and individuals who have the capacity to menstruate. It serves as a respectful and affirming space to honor shared experiences, foster connection, and support collective empowerment.

DATE | TIME (Fecha | Hora)

Saturday, May 16, 2026 | 11:00AM – 2:00PM
Location: TBD

PARKING
Free parking available in venue parking lot.

PROGRAM LANGUAGE

Presented in English

TOPIC (Tema)

“Women’s Empowerment”
We will explore women’s awareness and advocacy, how bleeding disorders uniquely impact women’s health, and ways in which women function as caregivers for loved ones with bleeding disorders.

SPEAKERS

Annabelle Garcia, MPH
Community Education Specialist, Takeda

AGENDA

11:00 AM Arrive at venue
11:30 AM Program Begins
2:00 PM Program Concludes

REGISTRATION

Registration for this program will open soon.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Family Education Day

SAVE THE DATE!

In partnership with Rady Children’s Hospital Hemophilia & Thrombosis Treatment Center and The Center for Bleeding & Clotting Disorders at UC San Diego Health , we invite you to join us for a day of connection and education at our Family Education Day. You will have the opportunity to connect with friends old and new, network with industry representatives via our Exhibitor Fair, and hear from medical professionals in the community.

*Our programs and events are open to individuals with a bleeding disorder, carriers, immediate family members/caregivers living in HASDC’s service area (San Diego & Imperial Counties).

EVENT DETAILS

Saturday, June 6, 2026 | 9:00AM – 3:30PM
Venue: Coming Soon

REGISTRATION | CHECK-IN
9:00AM – 10:00AM
Please arrive on time to check-in. Our registration table will be closing promptly at 10:00AM.

PARKING
Parking available in venue lot.

CHILDCARE

Complimentary childcare will be provided for children ages 3-12 only. Young adults 13 and older are expected to participate in the educational program. Children under 3 are welcome to stay with their parents or please make alternate arrangements. Please inform HASDC in advance if your child has any special needs (behavioral, educational, dietary, etc.) and we will do our best to make accommodations.

Childcare check in: 9:00AM (all children must be checked into childcare by 10:00AM)

AGENDA

Saturday, June 6, 2026

TIMEPROGRAM AGENDA
9:00AM – 10:00AMRegistration Open
(registration will close at 10:00AM sharp; no late arrivals)
Plan to arrive early as the line can get long entering into the parking lot.
9:00AM – 10:00AMBreakfast
Exhibitor Booths Open (enter drawing)
Drop off at Childcare by 10:00AM
10:00AMWelcome
Childcare Begins
10:15AM – 12:30PMPlenary Sessions
12:30PM – 1:15PMLunch
Exhibitor Booths Open
1:15PM – 2:00PMBreakout Sessions 1
2:00PM – 2:45PMBreakout Sessions 2
2:45PM – 3:30PMProgramming TBD
3:30PMClosing Remarks

REGISTRATION

Registration for this event will open soon.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST

If you are registering and live outside of HASDC’s service area (San Diego & Imperial Counties), you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event. Due to limited space, we are unable to accept event registrations for those without a bleeding disorder in their immediate family and family of volunteers, exhibitors, and sponsors.

SMS SHARING DISCLOSURE

No mobile information will be shared with third parties/affiliates for marketing/promotional purposes.

SPONSORS

Thank you to our supporters and sponsors for making this event possible.