All posts by Nooshin Kosar

Food for Thought

Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

DATE | TIME (Fecha | Hora)

Saturday, January 24, 2026 | 11:00AM – 2:00PM

LOCATION
Vincenzo Cucina + Lounge
550 W Date St. Ste A
San Diego, CA 92101

PARKING
Street parking outside of restaurant.

PROGRAM LANGUAGE (Idioma del programa)

Presented in English | Presentado en inglés

TOPIC (Tema)

Menopause
Expect the unexpected. End the silence. We will discuss what is happening and how you can manage the changes and symptoms.

SPEAKER (Presentador)

Amber Federizo, DNP
Octapharma

Introducing Dr. Federizo: a trailblazer in women’s health, armed with a doctorate and master’s in nursing education. Her dedication to supporting individuals with bleeding disorders earned her the title of 2018 Humanitarian of the Year from the National Hemophilia Foundation. Currently, as a Clinical Nurse Educator in Hematology at Octapharma USA, she’s making strides in improving care for those in rural and vulnerable communities. Join Dr. Federizo in her mission to change lives.

AGENDA (Agenda)

11:00 AM Arrive at Vincenzo Cucina + Lounge (please arrive on time)
11:15 AM Welcome & Program Begins
2:00 PM Program Concludes

REGISTRATION (Inscripción)

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Partners in Care: A Couples Evening

Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: minors (under 18-years old) must be accompanied by a parent and/or guardian to attend HASDC programming.

DATE | TIME

Friday, February 27, 2026 | 6:00PM – 8:00PM

LOCATION
Parq Bistro-Brasserie
2760 Fifth Ave.
San Diego, CA 92103

PARKING
Street parking outside of restaurant.

PROGRAM LANGUAGE

Presented in English

TOPIC

Partners in Care: A Couples Evening

SPEAKER

Annabelle Garcia, MPH
Takeda

AGENDA

6:00 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR

Thank you to our sponsor for partnering with us to make this educational program possible.

NBDF’s Washington Days

ABOUT WASHINGTON DAYS

The National Bleeding Disorders Foundation’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. We look forward to meeting with legislators and staff in person with hundreds of volunteer advocates across the United States to discuss issues important to our community.

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN.

DATES

March 4-6, 2026 | Washington D.C.

VENUE

Hyatt Regency Washington on Capitol Hill
400 New Jersey Avenue, NW
Washington, D.C. 20001

REGISTRATION

Please reach out to us if you are interested in registering and attending Washington Days this year.

Food for Thought

Join us for Food for Thought: an HASDC educational program. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area. 

Please note: minors (under 18-years old) must be accompanied by a parent and/or guardian to attend HASDC programming.

DATE | TIME

Wednesday, March 25, 2026 | 6:00PM – 8:00PM

LOCATION
To be determined.

PARKING
Street parking outside of restaurant.

PROGRAM LANGUAGE

Presented in English

TOPIC

Hemophilia B

SPEAKER

To be determined

AGENDA

6:00 PM Arrive at restaurant (please arrive on time)
6:15 PM Welcome & Program Begins
8:00 PM Program Concludes

REGISTRATION

Registration will open soon.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR

Thank you to our sponsor for partnering with us to make this educational program possible.

HFA Symposium

REGISTER TODAY

The Hemophilia Federation of America (HFA) will be holding their annual Symposium April 16-19, 2026 in New Orleans.

  • Valuable educational sessions for severe, milds, rates and more.
  • Rap sessions and information for men, women, parents, and Spanish-speaking community members.
  • Explore the latest products, services, and technologies designed to make life with a bleeding disorder more manageable.
  • Connect with friends, who are like family, and end with a fun Final Night Event!

THIS IS NOT AN HASDC PROGRAM; ALL EXPENSES MUST BE PAID ON YOUR OWN, NO SCHOLARSHIPS AVAILABLE THROUGH HASDC.

DATES | LOCATION

April 16-19, 2026 | The Sheraton San Diego Hotel & Marina

The Sheraton San Diego Hotel & Marina
1380 Harbor Island Drive
San Diego, CA 92101

SYMPOSIUM AGENDA

CLICK HERE to view HFA Symposium’s agenda.

REGISTRATION

If you need financial assistance to attend the HFA Symposium, you can refer to the Hemophilia Federation of America’s Scholarship page.

Steeped in Sisterhood: an Afternoon Tea

Join us for a special afternoon tea just for women and girls living with bleeding disorders. Enjoy a relaxing afternoon of delicious treats, heartfelt conversations, and shared experiences in a supportive and welcoming space.

Dress on Theme: Feel free to wear something floral, pastel, or tea-party chic to match the cozy, elegant vibe of the afternoon!

Let’s connect, uplift, and empower each other—you are not alone, and your story matters. Our Educational Programs are open to all individuals with a bleeding disorder and their immediate family members living in HASDC’s service area.

Program Audience
This event is intended exclusively for women, girls, and individuals who have the capacity to menstruate. It serves as a respectful and affirming space to honor shared experiences, foster connection, and support collective empowerment.

DATE | TIME (Fecha | Hora)

Saturday, May 16, 2026 | 11:00AM – 2:00PM
Location: TBD

PARKING
Free parking available in venue parking lot.

PROGRAM LANGUAGE

Presented in English

TOPIC (Tema)

“Women’s Empowerment”
We will explore women’s awareness and advocacy, how bleeding disorders uniquely impact women’s health, and ways in which women function as caregivers for loved ones with bleeding disorders.

SPEAKERS

Annabelle Garcia, MPH
Community Education Specialist, Takeda

AGENDA

11:00 AM Arrive at venue
11:30 AM Program Begins
2:00 PM Program Concludes

REGISTRATION

Registration for this program will open soon.

Please note: if you are not currently in our database, you will receive an email to complete our Member Database form before your registration can be confirmed. 

WAITLIST POLICY

If you are registering and live outside of HASDC’s service area, you will be placed on a waitlist. If space is available, we will reach out to you via email to confirm registration for this event.

SPONSOR (Patrocinador)

Thank you to our sponsor for partnering with us to make this educational program possible.

Camp Dragonfly

HASDC’s Camp Dragonfly has been serving the teens of San Diego and Imperial Counties since 2014. Camp Dragonfly is an outdoor adventure summer camp, hosted by the Hemophilia Association of San Diego County in partnership with Rady Children’s Health Hemophilia & Thrombosis Treatment Center. Camp Dragonfly serves campers affected with hemophilia, von Willebrand’s disease, platelet disorders, and other rare chronic bleeding disorders from San Diego and Imperial Counties. 

WHO CAN ATTEND CAMP?

HASDC’s Camp Dragonfly is for our teen campers, ages 14-18, diagnosed with a bleeding disorder (given priority), carriers and their siblings. Campers must be 14-years old on the first day of camp in order to attend. Siblings must attend with their affected sibling in order to attend. Campers diagnosed with a bleeding disorder must independently manage all personal care and mobility, which includes being able to self-infuse OR administer factor product. Those living within San Diego & Imperial Counties will be given priority.

WHY ATTEND CAMP?

Camp Dragonfly provides teens with the tools they need to overcome the challenges presented to them by their disorder as well as connect with peers, gain leadership skills, test personal limits and the opportunity to commune with nature. By attending Camp Dragonfly, campers will experience camping and an outdoor program which challenges at both the individual and group levels.

Professional medical staff from Rady Children’s Health Hemophilia & Thrombosis Treatment Center are on site for duration of the camp program.

CAMP COST

Each camper is to pay a non-refundable $50.00 registration fee. Additional camp costs are underwritten by grants and funds raised by HASDC.

DATES | LOCATION

Monday, July 13 – Saturday, July 18, 2026
ETC River Camp – Lotus, CA

ABOUT & TRAVEL

Join us as we return to rafting on the South Fork of the American River. Come experience the beauty of the South Fork, and the excitement, challenge and connection to nature that comes with whitewater rafting. This is a memorable adventure, perfect for those who have spent time on the river before or novice paddlers.

We will be tent camping for five days and four nights at the ETC (Environmental Traveling Companions) River Camp’s riverfront property located in Lotus, CA. Along with rafting, participants will be sleeping under the stars (tent optional), cooking all meals in their full outdoor kitchen, enjoying group activities and nightly campfires. Please note: there will be accessible bathrooms but no showers.

July 13, 2026: Attendees will travel via plane from San Diego to Sacramento
July 18, 2026: Attendees will travel via plane from Sacramento to San Diego

REQUIRED FORMS

Please make sure you have all the required camper information, including health information and documents, provided below, ready to submit either in your application or via email to HASDC.

You will need to provide and/or upload the following documents:

  • HASDC Health Form: to be completed by your local Hemophilia Treatment Center (HTC). Date of your child’s last comprehensive visit with the HTC but be within 12-months of the first day of camp (July 13) OR completed by primary care physician (if child does not have a bleeding disorder) showing physical examination within 12-months of the first day of camp (July 13). Please reach out to your HTC and request they complete our camper Health Form.
  • Medications: complete list of medications your child takes (includes but not limited to factor, other prescription meds, over the counter medications, inhalers, etc.)
  • Insurance Card: copy of your child’s insurance card, front and back. 
  • Immunization Records: a copy of your child’s immunization records, signed and validated by your primary care physician. The following immunizations/vaccinations are required: DTap (Diphtheria/Tetanus/Pertussis), MMR (Measles/Mumps/Rubella), Measles, Varicella (chicken pox), Polio, Hepatitis A & B, and COVID-19 (highly recommended). 
  • ETC Health & Liability Release: please complete this form and upload when asked in the application.

CAMPER REGISTRATION

Registration for Camp Dragonfly will open soon.

If you have questions regarding Camp Dragonfly or your camper’s application, please contact our office.

THANK TO OUR SPONSORS

Thank you to our sponsors and supporters for making camp possible this year.